I am sorry about the urine sample all over the floor.You have a busy day ahead of you....
We will be right here when you get a break.
bizi

Kay
You are one strong woman. And I'm glad your pcp asked what the
neurologist said. Shows he or someone read the things you wrote
back.

Donna

Kay,

Good luck with the two appts today.

=-=-
I hope that someone helps you with the BP.

Let the PT make some
adjustments so that you can benefit from the PT AND be safe in the pool.


M

I agree with Mari about the PT making adjustments so you
are safe in the pool. They should be able to do that.

Good luck with your appointments today.

Donna

how was your infusion? Did you get to see your pdoc?
how are you doing today?
((((HUGS))))
bizi

I already have to hold onto the side of the pool when I do my PT exercises. I have been symptomatic while in the water, and when it's happened, I have just kinda put my arms over the side and taken a break (without saying why). The pool PT understands very well that I have good days and bad days, and doesn't push me, but knows I always make my best effort. I have definitely made gains tho. I have a regular evaluation on Friday, so I'll discuss my concerns with the other PT then, and see what she has to say.

I got no response from my PCP to the message I sent.
I sent my update to my gastro via his patient portal since his medical assistant has trouble returning phone calls. No response from his office yet either.

When I went to get my Tysabri infusion yesterday, I got the slow nurse, who left me waiting for 1/2hr before she took me into the infusion room. I made sure to ask her if she could get me out of there in 2 hrs at the latest before she ordered the med from the pharmacy. I was freed at the 11th hour, so I managed to make it to my pdoc appointment by the skin of my teeth.

I filled my pdoc in on everything that has been going on...

She talked about adding an adjunct med to help me out, or a making a med change (from Seroquel to something else) because so many doctors have talked about the meds I'm on, but both of those options would come with the risk of side effects that could complicate my medical problems, or land me in the nut house because I'm so brittle, so we dismissed those ideas.

Even adjusting the meds I'm already on is a problem. I'm maxed out on my other meds, so we've been moving the dose of gabapentin up and down as needed, but it comes with the risk of sedation, and she's worried it may make me more susceptible to passing out. I'm taking 400mg of it right now. She wrote a script for 1-2 100mg pills as tolerated (along with the 400's, which I take it at night).
I would like to wait until Monday to try adding anything because I have nothing to do next week, but I think I need the extra help now.
I see her in a month.

Yesterday was such a long day, I was F- EXHAUSTED when I came home. I took a 4hr nap, and woke up feeling like total crap. I can't make double appointments like that again. Something will just have to wait next time.

I'm doing okay. Tired as usual.

(((((HUGS and love ))))))
bizi

Thank you, Bizi. Love you lots (((HUGS)))

I ran a few errands yesterday. By the time I went out it was almost 90 degrees... too hot for me to be running around, but when I decide I'm going to do something, I'm going to do it.

The bath mat that goes around the toilet got pee on it when I was trying to get that urine sample, so it was "tainted," and I had to go buy another one. I went to BBB, where I bought the set, to get another one that matched. I had a $10 off coupon, so it worked out perfectly. For those of you who remember me doing this before... I know I'm ridiculous.

I also bought cigarettes and went to Staples to pick a few things up.
But when I went to pick up my prescriptions, they weren't there. My pdoc sent them to my old pharmacy. They're controlled substances (Klonopin and gabapentin), and they can't be transferred, so I have to head over there today to pick them up.

I have the PT reevaluation this morning, then I plan on going to buy more medical MJ, and I have to go grocery shopping. So, I'm not happy having to add something else to my to-do list.

I also didn't get to start trying the extra 100mg of gabapentin last night...

I'm BS at Corey...
He started drinking as soon as he got home around 2:30pm yesterday, and he was totally s- faced by the time I got up from my nap. He must have just been pounding the beers cuz the trash can was FULL of the empties.
I was about halfway through making dinner when he informed me that he wouldn't be eating. Then around 7, he said he was going to bed...
But he didn't make it there before throwing up in the sink, which he was too drunk to even rinse out. I was just thrilled about that.
Before he had a chance to fall asleep, I went in the bedroom to remind him to set his alarms, which he did, so he would wake up in time for work...
He didn't, and he woke up freaking out and swearing.

I finished making dinner, but I made thin pork chops from the supermarket. They will dry out a lot when I try to reheat them, so I'll probably end up having to throw them out.

I hate cleaning up throw up....maybe you could save the pork chops by cutting them in little pieces and make a pasta dish with them???
I am not much of a cook but if you add enough cheese anything is edible!
I wish your life was easier for you.
You don't need his BS right now. Is he aware of all of the stress that you are under??
(((((HUGS))))
bizi