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PurpleFoot721 08-07-2018 04:14 PM

I'm sorry Kay. I hope the pdoc can help as well. Hopefully your not in a manic state and will feel better tomorrow.:hug::hug::hug:

Dmom3005 08-07-2018 04:21 PM

Good luck Kay, hope things are getting better.

Donna :hug::grouphug:

bizi 08-07-2018 08:18 PM

oh how we have to self monitor our selves....
...spouses can hardly take care of themselves

let alone figure us out.
Is corey mindful or does he notice when things are going sour?
Does he help you when you are getting worried?
I am sorry this sounds like a terrible place to be, agitated.
(((HUGS))))
bizi

mymorgy 08-08-2018 05:46 AM

I am hoping you are feeling better now
love'bobby

OhKay 08-08-2018 08:42 AM

Mari, up until now I have had very good luck moving the dose of gabapentin up and down as needed. When I've need to come down, increasing the dose has usually helped with that, and with my anxiety disorders, but it sedates me for a while until I adjust to it. It's has never been activating before.

I think I know what happened, but it just makes things more confusing...

When I went to take my pills last night, there was an extra empty slot, so I probably took my night pills twice on Monday night. And I took my a.m. pills around 10:30am. So that means in 24hrs (for psych meds) I took:
1,600mg Seroquel
800mg Lamictal
400mg Topamax
1,000mg gabapentin
Can't remember how much Klonopin- maybe 4mg?

It's really f- weird because doubling the Seroquel overnight should have REALLY put me out, and it should have been really easy for me to go back to bed and sleep that med mistake off like I have in the past, especially since I took my day pills as well because I was unaware that I had made an error. But instead, I woke up early with little sleep, and even tho I was sedated, I was off the wall... I think it was all the gabapentin I took, since even going up to 500mg at night was activating, and I took double that.

Either way, I'm very lucky I didn't pass out, fall, or worse.

I couldn't hide what was going on yesterday from Corey, so I had to explain it to him. He had a hard time understanding me because I was so f- ed up, and he told me I needed to go to bed, but I couldn't settle down. I wasn't comfortable taking anymore Klonopin, so I smoked a little pot, and was able to nap for 1 1/2hrs, which is just a drop in the bucket for me.

I'm feeling much better this morning, which is not saying much lol.
I didn't take the extra gabapentin, and slept for seven hours last night, which is normal for me. I'm having some sx of hypomania that are easier to recognize this morning. I just took an extra 1/2mg of Klonopin to see if some of my symptoms are due to anxiety.

I'm not going to contact my pdoc today because what happened yesterday was due to a med mistake. I'll be vigilant today to (hopefully) see what's happening minus the med mistake and the extra gabapentin in my system. I don't need her to add on another med if I don't really need it. I don't want to add anything on at all.

bizi 08-08-2018 08:52 AM

I am sorry you made a medication mistake.
It will probably take a while to get back to normal. I am very glad that you slept 7 hours last night.
maybe with a good nap you can catch up for your not sleeping before.
(((((HUGS))))
bizi

Mari 08-09-2018 05:14 AM

Kay,

I am posting these links in case something here seems helpful:

Neurontin (Gabapentin) Abuse: Side Effects and Overdose Risks - San Diego Addiction Treatment Center

Gabapentin Overdose | Can You Overdose on Gabapentin?


I am glad that you did not pass out and that you are o.k.

Are that you saying that maybe you did not need all of the full dose of morning meds?

It's wonderful that you use the pill minder and can retrace your steps to
get an idea of what probably happened.

It's hard for many of us to take care of ourselves. Trust your instincts. :):):):)

M

OhKay 08-09-2018 09:52 AM

Thank you for the links, Mari :hug:

I used to take a total of 2400mg of gabapentin a day for the neurological pain from MS for years without any apparent side effects... but I was on lithium- NOT Seroquel then. I stopped taking the gabapentin because it stopped helping with the pain. Seroquel doesn't play nice with other meds, so there's no way I could take anywhere close to that dose now... just going up from 300 to anywhere up to 600mg can be really sedating at first.

Had I known that I took double my night pills, there's no question that I would NOT have taken any of my morning psych meds (more Seroquel, Lamictal, and Klonopin) because that would just have compounded the problem. But I was unaware I made the mistake until about 10pm... and had already taken them.

That night I thought about not taking/reducing the dose of Seroquel I usually take (700mg) because I already had so much in my system, but decided against it because I didn't want to make matters worse by messing around.


Right now, I'm really not sure if I'm hypo or not because I'm so tired and don't feel well. I'm having symptoms early in the day, but they seem to disappear or improve the more tired I get later in the morning/in the early afternoon.
I napped from 1:30-6pm yesterday, and it didn't feel like it was enough.
Today is a bad day. I will probably take a shower, go play the lottery up the street, and go back to bed.

bizi 08-09-2018 05:33 PM

I hope you win the lottery and that your day goes better for you....good nap for sure.
(((((HUGS)))))
bizi

Mari 08-10-2018 01:43 AM

Kay,

I hope your day got better after you posted it. I hope sleep helped.

Most of the time, one day is enough for me to recover from a mistake,
but other times, I need an extra day.


M

OhKay 08-10-2018 07:52 AM

Mari, sometimes it takes me more than one day to recover from med mistakes too, and this one was a doozy...
I was particularly tired and I didn't feel well yesterday, so maybe my body was still trying to bounce back from it. But it's not unusual for me to feel like total s-, so who the f- knows.

I have pool PT at 10:15am this morning. I'm looking forward to it.

I have to go grocery shopping today, and I planned on trying Stop and Shop's pick up service for the first time. Unfortunately, I had to wait until Corey came home to find out what he wanted. So, by the time I tried to choose a pick-up time, the earliest I could get was 3-4pm, which is too late in the day for me...

So, I guess I will have to wait to try that service another time, and I'll have to drag myself through the store again today.
My list is WAY too long. I will have to cut it down, and plan on shopping again later in the week, to make things more manageable.

I usually nap early after going to the supermarket, but I'll have to stay up until 2-2:30pm to wait for the postman because Corey's Blue Emu is arriving, unless he comes home early from work, and can answer the door.

I won $100 on a scratch ticket yesterday! It's not a lot, but I'm very happy because I never win more than $10-20 on those things. I don't know if I will buy two more, or just take the money and run?

My next door neighbor has been having a hard time financially, and has been very depressed. She said she only had $24 in her checking account after gassing up her car the other day. I offered to GIVE her money twice, but she refused my offers. Since I just won the money on the scratch ticket, I slid an envelope with a $20 bill under her door. I left no indication of who the money was from.

bizi 08-10-2018 08:30 AM

congratulations on the $100 and you are a very generous lady. That was very thoughtful of you.:) I am surprised that the emu has to be signed for if that is what you mean. If you weren't home would not they leave it at the office?
I am excited to hear how the grocery service drive up works out for you. That is when ever you use it.
I hope PT goes well for you today.
((((HUGS)))))
bizi

bizi

mymorgy 08-10-2018 09:27 AM

that was so very nice of you

Dmom3005 08-10-2018 01:18 PM

Good luck with the shopping and all the other things. I am so glad you
won the $100. I also think it was nice to slide the $20 under your neighbors door. She will get a nice surprise.

Donna :hug::grouphug:

Mari 08-10-2018 10:58 PM

Kay,

Is the blue emu oil new to him?
I looked it up because its odd name caught my attention.:)

The pool sounds good.



M

OhKay 08-11-2018 10:12 AM

Mary probably knows it was me who left the money, but hopefully by leaving it anonymously on her doorstep, she won't feel embarrassed about accepting it, and won't feel obligated to pay it back. If she asks me, I will tell her the truth tho.

Our leasing office is off-site, so there is nobody to sign for packages here. My mailman won't leave anything that won't fit in the mailbox whether or not a signature is required because the post office says there's no safe place to leave it. It's very frustrating to have to be here/be awake for deliveries. It's possible that packages have a habit of disappearing around here tho. I know that my renters' insurance went up quite a bit when we moved here, which I thought was unusual. We live in the sticks, but there are A LOT of apartments spread out in our complex.

This is the first time Corey has tried the Blue Emu. I put it on his shoulder last night, and he said it really helped fast, and his shoulder still felt better when he went to bed. He kept going on about how amazed he was about how well it worked because he's tried so many things that don't do s-.

Pool PT went well. I got through my exercises pretty quickly this time around, but I limited some of the reps I did for exercises that were tiring my muscles out or aggravating pain too much. I'm still feeling the workout this morning tho.

Afterwards, I went to the butcher shop. It's not exactly around the corner anymore, and the one that is closer to me is just terrible. So, I bought a couple of steaks and chops while I was In the area. That's what freezers are for.
When I went grocery shopping, I "pulled something" in pretty much the whole left side of myself putting a case of water into the cart, but I shouldn't be doing things like that, so I guess I deserved it.

Our upstairs neighbors had a little party last night, but they weren't very loud when they were outside when it got late, they kept their window closed, and kept they kept banging to a minimum :)
Janet from the leasing office must have called Ellen, my b- upstairs neighbor, and whatever she said worked :)
Let's see if it sticks tho...

Dmom3005 08-11-2018 10:28 AM

Sorry about the side. I'm glad you did good in pool therapy.

I'm glad the neighbors did quiet things. Hopefully it will keep
up. If not hopefully Janet can do an reminder.

Maybe that is what it will take if nothing else.

Donna :hug::grouphug:

bizi 08-11-2018 10:30 AM

Glad the blue emu works!

Could you PM me the link to it?
Thanks
bizi
you picked up a case of water by yourself!!!!:eek:
Please don't do that again, ask for help and then leave it in the car for corey to bring it in.
(((((HUGS))))
bizi

OhKay 08-11-2018 11:45 AM

Here is the link to the Blue Emu Cream:

Amazon.com: Blue Emu Original Analgesic Cream, 12 Ounce (Packaging May Vary): Health & Personal Care

They also have a 4oz container:

Amazon.com: Blue-Emu Super Strength Emu Oil, 4 Oz: Health & Personal Care


I can only lift a heavy object maybe up/down for a couple of feet for a few seconds, and I usually hurt myself doing it. I put the case of water in the backset of the car, and Corey brought it in.

I wonder what Janet said to Ellen to make her change their behavior so drastically? I really don't care because it worked.

OhKay 08-11-2018 12:56 PM

I forgot to mention that the 12oz jar I bought was huge, and a little seems to go a long way.

bizi 08-11-2018 01:06 PM

Thank you for the links...I can suggest this for my clients.
bizi

mymorgy 08-11-2018 03:20 PM

I just ordered blue emu. thank you

Dmom3005 08-11-2018 05:37 PM

Kay

I always have either one of my son's or my husband lift the bottles
of water. You can ask the staff at the store to lift the water.
If I have to get it with no one with me then I have someone else help
me. i get it that way. I never lift it because I would hurt myself.

Donna :hug::grouphug:

OhKay 08-12-2018 09:33 AM

I think you will be happy with it, Bobby :)
Don't worry about it being blue, it's not when it's applied, and didn't stain Corey's shirt.

Even though I have been handicapped for almost a decade now, I still have a hard time asking for/accepting help. I don't know why I'm like that. I do injure myself a lot because I don't. But I think part of that messed up stubborn mentality of needing/wanting to do things myself is what has kept me going for so long.

Corey was buying cases of water at the corner store for $8! :eek:
I think it's ridiculous to to pay that kind of money when you can get it at the supermarket for less than $3, but forget about trying to get him to go there to get it.

Even though we aren't experiencing black/brown water problems right now (I didn't write about the last incident), we aren't drinking the water here anymore. If you fill up a glass, you can see particles in it before they settle, and we don't have confidence that our Brita can filter that s-, so bottled water it is from now on.The cats have noticed the difference. They are drinking A LOT more since the change. That should tell you something.
Apparently we are not alone. The shelves in the bottled water aisle were almost bare when I went to the store Friday.

bizi 08-12-2018 09:53 AM

yuck about your water!
bizi

mymorgy 08-12-2018 10:21 AM

I think it is because you were never nurtured but was the nurturer

Dmom3005 08-12-2018 11:06 AM

Kay

Remember though that its part of their job to help with the
bottled water. And other things that need to be done.
So please start asking for help. You can always say thank you.

Gosh I've had to ask other customer's to get things off top shelves
for me. And that isn't honestly any different to me than the bottled
water. So please start asking.

Even when the things on the bottom shelves are in the way back
sometimes I have to ask someone to please get it for me. Because I
cant bend that far down, or whatever you want to call it. I always
feel really silly when I have to say something to ask someone for
that but its much better than me being on the ground and can't get
up.

Donna :hug::grouphug:

mymorgy 08-14-2018 06:09 AM

Kay I think the blue emu worked on my knee. Thank you so much!

bizi 08-14-2018 07:07 AM

I hope you are alright kay?
((((HUGS))))
bizi

OhKay 08-14-2018 09:31 AM

Don't worry, I'm okay, Bizi :hug::hug::hug:
I just didn't have the time to read or post yesterday.

I'm so happy it helped you, Bobby! :)
I tried the it on my elbow last night and it worked really well, really fast! That s- is awesome! I plan on trying it on my shoulder for my rotator cuff problem soon.

No, I wasn't nurtured. My family was never like that, but I was born and bred to be. I took care of my mother at the end of her life, took care of my grandmothers, and helped raise my younger bother. I ended up choosing to become a home health aide, then a CNA, and went to nursing school...
I have learned how to take better care of myself, but only over the last couple of years.

I know how to ask for help. I do know better than to do some of the things I do. If someone is around, I will ask, but I will not go out of my way. Many people are surprised that I'm still doing my grocery shopping, and I've heard more than once that I shouldn't be doing it myself...
That's why I want to try Stop and Shop's pick up service. I won't have to walk through the store, and they will put the groceries in the trunk of the car for me.

I see the surgeon this afternoon about a possible biopsy of my swollen lymph node(s). I really don't have much confidence that he will do it because even though they are wide spread, they aren't huge. I have a feeling he will question why my PCP didn't do certain things before sending me to him, but IDK. I guess I will see.

I'm running late because I had to return a pressing email this morning.
It takes me a LONG time to read and write, so I won't be able to read or post today. I have to try to get some housework done before my appointment... I'm sorry :grouphug:

Dmom3005 08-14-2018 10:14 AM

Kay

No reason to be sorry. You take things as slow as you need
with responding. We all realize its what you need to do.

Donna :hug::grouphug:

bizi 08-14-2018 12:43 PM

just a quick note, like I am fine or not fine so we can hear from you.
I worry when I don't hear from you.
(((((HUGS)))))
bizi

OhKay 08-15-2018 07:45 AM

On Sunday, I was so FOS and gas, I was having sharp left-sided abdominal pain, and it hurt very badly just to sit down, so I had to take mag. citrate Sunday night and I spent over 3 hours on the toilet Monday, so that's why I never got around to posting. I'll have to take mag. citrate again tonight :(
Please don't try to recommend any laxative, etc to me. I have major colorectal problems, and only mag. citrate works. I have a gastro, and we've tried everything.

The surgeon I saw yesterday said that my swollen lymph nodes were small, and only felt larger because they are in a chains, and I'm thin, so they are more pronounced (I'm not that thin. I'm 5'8" and weigh 140lbs). He explained that the high eosinophil count I've been having for the last year could be due to medication interactions/side effects (something that my PCP never said). Obviously he declined to do a biopsy, but I asked his opinion about what was going on, and he said that he thinks my problems are due to a combination of my MS, all the heavy medications I take, and psychiatric issues (I don't agree with him there).

I figured that the appointment would be a waste of my time, but I feel like it was productive. I'm relieved that he said that the lymph nodes were nothing to worry about, and I appreciated his feedback about the relationship between my meds and the abnormal blood work. He's yet another doctor who has told me that my medications are the culprit.

I went back, and checked the side effects of Seroquel, and it could have caused/could be causing all my symptoms...
So that leaves me with the decision of whether or not I will be changing from Seroquel to another heavy hitter or not, and when. My pdoc and I discussed that topic briefly the last time I saw her. I'm hesitant to make a change because I'm stable, and I don't want to wind up in the nut house for the 3rd time.

I need to have some pretty serious colorectal surgery to repair a sigmoidocele (herniation of the sigmoid colon), a rectocele (thinning of the wall between the rectum and vagina), and rectal intussusception (rectum is folding over itself). I don't know if I should make a med change before or after I have that done, but I'm absolutely f- miserable in the BR department, so I would like to have it done sooner rather than later...

I will rely on the advice of my pdoc and my gastro than my PCP because they know me much better, and will know whether or not I should make that med change before or after surgery.

bizi 08-15-2018 08:16 AM

Thank you for posting, sorry about your br problems. You have struggled far too long in my books.
I am glad that the surgeon did not believe you needed a biopsy.and eased your mind a bit.
Who would do you colon surgery?
Have you gotten that far yet?
bizi
thinking about you and the challenges you over come each and every day.
(((((HUGS))))
bizi

OhKay 08-15-2018 09:07 AM

My gastro refers cases like mine to 2 surgeons at different hospitals in Boston. They gave me the names of them, and they are both very experienced in these types of complicated surgeries, but how should I know which one to choose? I would like my gastro to tell me which one he thinks would be best for me, and set up a consultation.

I'm waiting for a call back from my gastro's medical assistant so she can relay my message and I can get his opinion about whether or not I should try a med change before the surgery.

I don't see my pdoc for another month. I can call to try to get any earlier appointment...


I have a HUGE to-do list. I'm kinda paralyzed by it because I have no idea where to start :o

bizi 08-15-2018 09:11 AM

I hope you get the referral.
((((HUGS))))
bizi

Dmom3005 08-15-2018 10:18 AM

Good luck Kay.

I think if it was me I'd want the surgery first. I'd like to know what
my meds are doing. Even if its bad.

Donna :hug::grouphug:

OhKay 08-16-2018 08:37 AM

My gastro highly recommends I have the surgery, and it's already been decided that I will, provided one of those surgeons agrees to do it. His office staff will set up an appointment for the surgical consult when I'm ready. So that's no problem.

Donna, I definitely do want to do the surgery first. I just don't know if they will be okay doing it since I haven't been feeling well tho... and I think that my PCP will think that this is coming out of left field.
I think a med change will be a total s- show, and it will take forever to get me stabilized on a new medication, and I don't want to wait that long. I could also end up much worse off than I am now.

So I may just say that I don't want to f- around with a med change before I have it done, and see where that gets me. I've been thoroughly worked up, and they couldn't find anything wrong with me, so maybe that will fly. IDK.


I love my kitties, but I HATE them right now.
Yesterday I woke up to puke all over the carpet in the spare bedroom, and one of them had either pooped on or kicked poop onto the rug in there, too.
And if that wasn't bad enough, Dottie "missed" the box in the kitchen again, and got pee all over the litter mat and it leaked under the box onto the floor.
Later, I found more puke in the spare bedroom when I went in there to iron a shirt :mad::mad::mad:

Then the next thing on my to-do list became cleaning out the tub and shower because the tub doesn't drain well, and Corey never rinsed it out after he took his shower Tuesday night, so there was s- all over the bottom of the tub (he must have been f- filthy). That took me over an hour (I have to actually get in there to do it), and I never got around to doing the sink or toilet.

I got pretty much nothing done on my to-do list yesterday, and I don't have high hopes for today... it's already 9:30.

bizi 08-16-2018 09:02 AM

I know you love your kitties,

they can be a lot of work for such independent cats.
We continue to find throw up on the hard laminate floors, hazel usually throws up just liquid so it dries and then you notice it a day later so then who ever finds it cleans it up.
It is supposed to work that way. Jeff will ignre it and I will eventually clean it up.
bizi

Dmom3005 08-16-2018 10:34 AM

Kay

I think you can tell the surgeon and the rest the first step to feeling
better is to have the surgery. Then you can work on the rest of
the things. They are all connected. Since as you say all the doctor's
agree there is nothing wrong except the meds. Heehee, if now
the surgeon says a med needs taken away for a few days before then
you talk to the other doctor's about how to do this.

That is normal for some meds as you already know.

Donna :hug::grouphug:


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