One of the maintenance guys came promptly to fix the tub drain. They are all overwhelmed with these kind of calls because all that crap is clogging everyone's tubs, sinks, and faucets. They guy who came yesterday said he was on call one night over the weekend and got 37 service calls

I called town hall and left a message for the town manager. She called me back very quickly to let me know that our water actually comes from a private company, so they have little to no authority over them.

I called the water company, and the same dumb b- answered the phone. I told her I needed her to escalate the call. I got the superintendent's voicemail and left a long message. He also called me back very quickly. He was a fast talking slippery SOB full of excuses, but I managed to get my point across. He promised they would do a better job next time, but I doubt they will.

There is a meeting of the "commissioners" of the water supply company tomorrow, but I cannot speak publicly, so there's no point in me going.


I have an appointment with my nephrologist today. I hope that after reviewing my records, he has some idea of what's causing/has caused my kidney failure... and maybe there's a treatment (doubtful)? I also want to ask him if my mysterious illness and all these swollen lymph nodes could be connected?

My appointment is at 2:30pm, which is a terrible time for me, but you have to take what you can get when it comes to specialists.
I think I'm going to try to take a nap now so I won't be so out of it later today.

good luck with the nephroogist today.

keep us posted.
hope you had a good nap.
glad that the maintenance guy came.
((((HUGS))))
bizi

Kay

Write down what you want the commissioners to hear.

And send it to them. That is what I would do.

Donna

How are you today? what did the doctor say yesterday?
I know that you have many things going on with your body.
I hope one of them would settle down and give you a break.
(((((HUGS)))))
bizi

I could email one or all of the commissioners via the water department website, so maybe I will do that if I get a burst of energy. Thank you for the idea, Donna

I did not feel well yesterday. I tried to nap, but I maybe got an hour's worth of sleep before my appointment.

I got that familiar dizzy and lightheaded feeling while walking from the waiting room to the room where the medical assistant took my vitals. When she took my BP with the automatic cuff, it was 102/33... NOT a typo.
The dumb s- medical assistant was going to just have me walk back to the waiting room! But I wasn't going anywhere until my BP went back up because that's dangerously low. I had her send for the RN to do a MANUAL BP, and by that time, it had gone back up to 110/70, which is normal for me.

That's the first time anyone's caught me when I've been symptomatic and there's been OBJECTIVE evidence of why I feel so f- shitty... I hope that my PCP catches it in my nephrologist's notes.

I took my BP this morning after getting lightheaded and dizzy, and it was 92/60 and my pulse was 137.
All the cardiac testing, including the tilt table test, came back normal... WTF is wrong with me?!

My nephrologist was happy with my recent test results, and said that people can live in stage 3 for many years, but "no promises."
He is having me do a 24 hr urine, but this time he wants me to send it away to a private lab. They will send me the collection materials, but I don't know how sending it back will work out. I guess I will find out. I have to have more blood and other pee tests, but those can be done at the local hospital. All of these tests are in the interest of trying to pin down a diagnosis.
I see him again in 4 months.
At least I'm holding my own in the kidney department

Kay

I'm sorry no one is figuring this out. THis has to be so frustrating.

I sure wish I knew what kind of doctor you need to go to.

Donna

I wonder about your swollen lymph nodes.
who is supposed to deal with those?
(((HUGS)))))
bizi

Kay,


That's good about your kidneys.

=-=-
I hope your water gets worked out completely and soon.



M

M[/QUOTE]
Kay,

Please look into postural orthostatic tachycardia POTs.
I have similar symptoms and am being evaluated. I must keep fluid and salt intake high. Helps some with symptoms. Table tilt test was normal. I think you have to pass out before they consider abn results. Of course standing from a seated position must by very slow to help the body equalize before standing.

Take care. I hope it is not POTS. It can be difficult to diagnose in early stages.

Cindy

Kay,

Please look into postural orthostatic tachycardia POTs.
I have similar symptoms and am being evaluated. I must keep fluid and salt intake high. Helps some with symptoms. Table tilt test was normal. I think you have to pass out before they consider abn results. Of course standing from a seated position must by very slow to help the body equalize before standing.

Take care. I hope it is not POTS. It can be difficult to diagnose in early stages.

Cindy[/QUOTE]



Thank you, Cindy. I'm sorry that you have POTS

When I looked it up quickly, one thing that struck me was that there is a connection to the digestive system...
I had a lot of abdominal discomfort during the tilt table test, which I thought was odd. I did tell the RN who was observing me.

I also have MS.