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Old 10-17-2018, 02:09 PM #1
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I don't know if I'm hypo or not. Monday I was totally off the wall, but yesterday I was pretty calm for most of the day despite anxiously awaiting that phone call from my pdoc's office. I did do some cleaning, but I wasn't driven or in a frenzy. I was doing it as more of a distraction. But I'm still having a hard time sitting still, and I can't nap even tho I've been exhausted, but maybe part of that is stress/anxiety. The s- seems to hit the fan in the afternoon for some reason. I'm okay this morning, so IDK.

I still hadn't gotten a call from my pdoc's office by 3:30pm, so I called and spoke to one of the secretaries. She said my pdoc wasn't in, and that's why I hadn't gotten a call back (yesterday). She said she would leave her another note. I have no idea what happened on Monday when she was in the office.

I don't have to wait for a call back anymore. My pdoc called:
She immediately agreed I had to stop taking the Vraylar. So, I'm doing an 11 day taper to get off of it. I'm going to take a low dose of Rexulti for a very short period of time to replace it. She's giving me samples because I can't afford it, and I picked them up today.
I'm going to have a lot of med on board, so I'm going to have to end up lowering my dose of gabapentin to reduce sedation, probably by 200mg, exactly as expected. Probably not going to reduce it tonight tho cuz I'll be cutting the Vraylar in 1/2, and I don't want to do too much at once, but I'm still thinking about that.
So, I got exactly what I wanted. I just hope that it works out the way I want/need.

I had a 10am appointment with my neurologist on Friday, but rescheduled it because I'm sure I'll be sedated for a few days and unable to drive.
I went to the butcher shop and grocery store to pick some things up so I won't have to worry about having to beg Corey to drive me later in the week, but he's going to have to drive me up the street so I can play the lottery tomorrow lol
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Old 10-17-2018, 06:57 PM #2
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Kay

I'm so glad you got a call back.

I sure hope this works.

Donna
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Old 10-18-2018, 07:56 AM #3
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Thanks Donna

I didn't wake up feeling sedated at all. I actually feel really good
So it was much to do about nothing... at least for now.
I'm so happy I'm okay to drive!!! I just wish I had waited to cancel my neuro appointment.

I sent my PCP a love note to let him know what's going on.
I don't know how long it will take for for my kidney fx to improve if it's going to, but he will probably decide when it's time to redraw a kidney panel *whenever* based on what I wrote to him, or when the surgeon requests it again.

Now that I'm addressing the issue with my kidneys, and I feel like the mental health piece is falling into place, it's time to start figuring out what's going on with the surgery...

My surgeon is back in her suburban office tomorrow, and that's the best time to reach her. The last time I talked to her:
1) She was waiting for the results of the repeat blood work, which was (finally) faxed to her Monday
2) She was waiting for X-Rays from a test from my local hospital, which they probably had to mail to her on a CD, but she should have it by now, and
3) She wanted to talk to my gastro, who is hardly ever in the office

So, maybe that's why I didn't hear from her last week, but the fact that I didn't still makes me nervous. I'm going to call her office today to get a jump on things. Maybe I will get a call back today. Who knows? My surgeon is very nice, so I'm pretty confident I'll get a call back by tomorrow at the latest because I think she will understand my anxiety at this point.

If she wants to wait to schedule the surgery until my kidney fx starts to rebound, that makes sense, so I will have to accept that.
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Old 10-18-2018, 09:28 AM #4
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Kay

I'm hoping that she will have an idea how long it will take
for the kidney's to rebound.

Maybe if nothing else she will be able to set the surgery
for a month or so.

Donna
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Tags
420pm, appointment, pcps, south, unlucky


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