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Old 06-12-2019, 01:42 AM #1
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Thanks for the check-in, Kay



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Old 06-12-2019, 11:57 AM #2
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Constipation is infrequent, hard to pass, or hard stool.
When I wrote my last post, I was having bits of D that were hard to pass.

Bizi, to answer your question about if I can feel if I'm constipated, I can- easily. The large intestines kinda hold everything in. When they're removed, the small intestines hang rather loosely, and I don't have much abdominal fat, so I can feel where everything is by gently pressing on my abdomen. I could feel a mass like a mini football in my lower left quadrant. It has happened on and off in that place since I had the surgery.

Monday was terrible. I had tons of diarrhea early in the morning, which is fine. Let's get rid of everything... But then I had 9 HOURS of just terrible unrelenting S*** pains and a strong urgency to use the BR without any results. I have no idea how many times I sat on the toilet. Then I went through a couple of hours of that again yesterday.

That mass in my abdomen is gone, which is a very good thing
But I'm not taking the Mirilax for a few days in case it could be contributing to the symptoms I've been having. I have to go out to get grocery shopping done today, and have morning appointments tomorrow and Friday. I hope that I'm making the right decision. I will obviously be keeping a close eye on things.

I've been having pain on my mid-to-lower right side by where the obstruction was since I woke up this morning. So, now I'm going to have to worry about THAT. And I was still having the other issues this morning so I'll be going out to do the shopping late today.

My friend sent me an email, which I replied to. In her reply, she let me know that she had sent 3 emails before that I had never responded to. I NEVER GOT THEM, though I would have been VERY happy to have had, and don't know why. The only reason I can think of is that I may have put an email from that chain in the spam folder instead of the trash by accident, but IDK. Since it was 3 emails, she doesn't believe me. I sent her an email to kinda defend myself and say I was sorry that I never received them and that had worried her. I feel really miserable about the whole situation, but that's about all the energy I can manage to put into the matter. I hope that my word is good enough.

I'm just very overwhelmed....

I do not feel well at all, and it worries me A LOT. And I've been stuck at home because I've been glued to the toilet.
I have a colposcopy tomorrow morning because of the abnormal Pap smear.
And I have an appointment with the hematologist/oncologist on Friday because of the funky results from the biopsy of my lymph node.
All those things I need to do, but have not been able to, are just piling up, making me feel pressured to get them done.

I'm still not 100% on the mental health front, and none of this s*** is helping. I'm doing my best and hanging in there tho.
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Old 06-12-2019, 12:29 PM #3
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Kay

Is it possible some of the emails came during the time
you were in the hospital? And its always possible that
they got lost in limbo too. I know that even with my
emails in work emails, that sometimes they do.

And its hard for people to get that till it happens to them.

I hope things go good the next couple days for you.

Donna
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Old 06-12-2019, 01:15 PM #4
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sending prayers
love
bobby
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Old 06-14-2019, 04:19 PM #5
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Thinking of you and sending healing thoughts and calming energy.
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Old 06-14-2019, 06:19 PM #6
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Sending you hugs Kay. Hoping you are rested better later.

I really wish you could get a break.

Donna
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Old 06-14-2019, 11:27 PM #7
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'Sending good thoughts, Kay.
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Old 06-15-2019, 10:35 AM #8
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Thank you all

I was able to get off the toilet long enough to get to my appointments

I saw my GYN on Thursday. The NP had done my Pap, and the GYN was upset that she had just sent me out a letter with my results and had the colposcopy scheduled in the office without consulting her.
She thinks that atypical glandular cells that turned up are likely related to all the abnormal bleeding I've been having, but everything needs to be investigated, and I am going to have a colposcopy, hysteroscopy, and D&C under light sedation on July 19th... unless the hemotologist/oncologist turns up something that makes having that done a bad idea.

I met with the hematologist/oncologist yesterday. What a nice doctor! It is very depressing (and takes a long time) to have to go through my entire medical history with a new provider. It was very clear that he felt terrible for me. I don't know how many times he said he was sorry.
Of course he doesn't know what's going on yet. He seemed very concerned about my past iron levels tho (I didn't realize that they were that low and don't know why the NP never told me to take some). I may have to have some IV, depending on how they come back this time. They took 5 tubes of blood from me. I'm going to have CAT scans of my neck, chest, abdomen, and pelvis on July 1st to look at my lymph nodes. He thinks that the largest one they find should be removed for further investigation because he thinks that's the only way we'll find out what's going on. I just hope that the largest one is in a superficial area... He'll call me to discuss any hinky findings and to let me know if I need to have the IV iron or not. I have another appointment with him in 6 weeks.

I've definitely been happier...
But I figure I'll just get this s*** over with so I can figure out what's going on. Most times, the answers are better than the unknown.
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Old 06-12-2019, 04:46 PM #9
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I am sorry things keep piling up on you.....
keep hanging in there.

We are rooting for you!
((((HUGS)))))
love,
bizi
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 06-13-2019, 08:03 AM #10
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These stomach issues are really wearing on me. This is no way to live. I really hope that Dr. Chen can do something to help me when I see her on the 28th because things as they are are unsustainable.
I have an appointment at 10:30 this morning, so I woke up at 6am so that my stomach had some time do what it was going to do before I had to leave home. So far, things are better today tho

I made it through the grocery store yesterday. I can't believe how weak I am. I forgot several things, but I will have to improvise, since I have NO plans of going back any time in the near future.

I have the colposcopy and endometrial sampling this morning. I have had it done before. I know I will be really sore and ready for bed afterwards, but I have a couple of errands I have to force myself to do afterwards.
I bought my dear father-in-law a card yesterday (?), but forgot to buy my own father and my husband's stepfather cards. I don't know where my mind is. I will have to get that done today because I have to mail my dad's card, and hop it gets there by Saturday.

I get the impression that my friend does believe me about the emails now, which is a huge relief
She sent me an email last night, but I was too stoned to reply at the time (I've been in a lot of pain). I also want to respond to some of the things in the emails I didn't get before. I will have to do that when I get home, since I have to get in the shower now so I don't miss my appointment.
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