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Old 08-12-2022, 07:25 PM #1
Dmom3005 Dmom3005 is offline
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Default August 12th Derrick's neuro appt.

Yesterday Derrick had a neuro appt. It wasn't the kind of outcome that
his provider that took him and I or Derrick expected. I'm posting this
here instead of the epilpesy page here in neurotalk because I need to
find it somewhere.

Anyway, his vns is has been set off 113 times, if I understand it correctly
this last month. Which is a lot. I knew he had used his magnet once.

And I wouldn't be suprised that it went off two to 10 times more. I've
seen signs of things that would make me wonder. Anyway.
Also the VNS, which for him usually last about 6 years at least.

Is at its 2 year level, and has about 1/2 left. Which its early to be at.
I"m guessing its not going to be long before we are looking to see
a neurosurgeon or whatever surgeon it is this time to put a new
one in. Which is not something I expected for at least 2 to 3 more
years. But that is okay.

He is checking his med level and if its low, he will raise it, but if not
he will probably add a new medication. And he is going to do another
eeg soon.

Donna
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Old 08-15-2022, 10:34 PM #2
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bizi bizi is offline
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You have a good attitude about this Donna, You always look out for your kids.
(((((HUGS))))))
bizi
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150mg of lamictal 2x a day
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I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 08-17-2022, 05:09 PM #3
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Honestly there is no other attitude to have.

Its not happening to me. Its Derrick that its happening to.
I really feel for him. Because this is the first time we have
seen anything like this.
Donna
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Old 08-17-2022, 05:17 PM #4
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you are so brave and loving. i know your deep love of him will help so much.
can the doctors help?
love,
bobby
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Old 08-18-2022, 09:59 AM #5
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Bobby

The doctor always helps. We are just waiting to hear what
new drug or the increase will be added.

Fun things.

Donna
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