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Old 09-28-2007, 12:16 PM #1
Dmom3005 Dmom3005 is offline
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Default My childhood, held many uncertain illnesses

I feel like I'm back in the days of my childhood, and the confusion.

I had everything there was. Never being a child it seemed. My mom did the best she could to let me be a child. But it was doctor this, and doctor that.

And I had diabetes for a year. Strict diet, then not. NO real signs of diabetes.

And I had epilepsy for almost 16 years. But the EEG's didn't show the seizures, or a abnormal EEG. But they treated me for it. BEcause I had
the classic signs. ANd the medicine I was put on took the signs away
most of the time. And all the sudden I was free of the symptoms and
seizures for 5 or so years.

So I got taken off at almost 16 and could drive. And then I wasn't even
having to report it. Gosh I was normal all the sudden. And had no clue
why I wasn't having this anymore.

Then I had a spot in my eye, that could put me blind. And its still there,
its never moved. But if it does. I go blind or they think I will. Gosh I just
watch it. And watch it.

I have a kidney problem, or they think I do. Not any real information ever given on this one. But it could cause the need for dialysis at some time.
I've always had to have the urine test. My primary does this test every
year as ordered. I'm fine, or so they say. I had two biopsies as a child.

I spent 5 years of 1 week in the hospital (Riley) for testing it was always
spring break week. Not anything coming out of the testing. NOt ever
a thing found to be a concern. But they wanted me checked out, its a teaching hospital so lets have her double checked. But this really made
the teen and child in me worry.

I also have a heart murmur, that I have to have meds for if I have any infection, or dental work. So this is really getting to me. Do I need something for what ever is going on right now. Who would have a clue.

I'm getting paranoid, I've been considered a liability by everyone that ever knew me. I couldn't get jobs, or go to college. My parents spent all there money on my health care.

Now Its like deja vu. I'm going through this all over.

I'm now a adult and my husband is reminding me, his mom didn't want
him to marry someone that needed medical help.

SO gosh when is enough enough.

I'm a strong person.

But its getting old. I wanted to be able to leave the past in the past.

I'm ready to start the psychiatric past again, its back and its time.

I spent my junior and senior years with headaches, that were supposedly
all in my head.

Broken bones at many times.

(migraines)

Donna
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Old 09-28-2007, 02:39 PM #2
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Oh Donna, your suffering just has to end soon. They have to look at what is going on and find something some answer that can help them treat these mysterious problems. You have had a hard life it sounds like and you should be able to find answers for this with your PCP. I really feel for you, I do. I hope you have answers soon.
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Old 09-28-2007, 02:52 PM #3
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Donna, I feel for you. It's been a rough road for you, but leave the past in the past. I don't like what your husband said to you, that must of hurt too.

Try and just focus on the now and look forward, live in the moment if you can, I try to. I know it isn't easy though.

Your a very strong person, that's for sure! Maybe it is time for a 2nd opionion as far as Dr's, or a real sit down talk with the Drs you have now.

Thinking of you and hoping this will all get better soon. You are in my prayers always.

Lots of Hugs, Nikko
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Old 09-28-2007, 04:14 PM #4
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Oh Donna,
makes me want to cry for you.
I am so sorry that you are going thru all of this and that your hubby doesn't sound too supportive right now....
I agree about sitting down with your doctors and possibly getting a second opinion
...since you have had kidney problems in the past, i still would ask about your adrenal glands that are right on top of the kidneys and have a lot to do in controlling your blood pressure.
I hope that you have a therapist or are getting one to help you cope with all that is happening to you.
(((((((((((((((((((((((((((((((HUGS))))))))))))))) ))))))))))))))))
bizi
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I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 09-28-2007, 07:40 PM #5
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Donna,

You have more than anyone should have to bear. Keep assurance that things will work out.

befuddled2
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Old 09-28-2007, 10:25 PM #6
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thanks, I haven't talked about my childhood in many years. But its always there somewhere in my thoughts. Its been buried and it was hopefully not
going to retrieve itself.

But its been back with a vengeance lately. So I really appreciate the listening.
Which I knew you ladies would listen and understand. I didn't figure out
till today that I believe its been my biggest fear that its the thing that
is coming. That its not going to be found the reasons.

And when it comes to my primary she honestly hasn't been given a chance
to solve these issues that much.

I went straight to a allergist/asthma doctor that she recommended. HE sent me to a pulmonist. Who sent me to a heart doctor.

I chose my neuro, whom I love. And then he sent me to my Physical therapist.

All the doctor's I am under the care of have done lots of test so far, its a toss up as to what all I've had. I get asked what all and I honestly have
no clue.

I'm guessing that maybe she has to go through the list to figure out what I've had done too.

So I will call my primaries office on Monday and see what she says too.
Or hmm, later in the week.

Donna
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