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Old 03-17-2008, 08:16 PM #1
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Tongue Update on my sleeping patterns and CPAP use

*Sigh* a few months ago I decided to stop using the Cpap, I'd say more like six months ago...At least five, but it could be six, I didn't write it down so I can't recall. Anyway I have been sleeping badly and I know you're all going to ask "Why did you stop?" Thing is I think it was my own fault for not looking into it better, I got a large nasal mask and it was pushing on my teeth something fierce and it made my face ache but as it was my first time getting one I wanted a large like I had used at the sleep study, little did I know I am probably more of a medium, maybe even a small...

So I was put off using it and slowly my sleep got worse and worse and now I am really having a rough time sleeping. So tonight I got everything out, cleaned it and am setting it up again for the first time this year. I called today about a replacement so I can get another but in the RIGHT size...AND I can get replacement masks every three months so I am going to do just that. I was pretty impressed with the medical supplier's attitude and willingness to work with me and get here before my son gets home from school and get this, they can come out day after tomorrow!

As you can see I am pretty desperate to get a good night's sleep again and I need to get my crap together and KEEP using this machine for my own good. I know it sure as I am sitting here that it DOES help with all kinds of things. I was getting depressed and sad again but that changed a month ago when we got a baby turtle. I just love him! And it's done wonders for my spirits, I feel so uplifted just watching the little guy swimming around and doing his thing, it's amazing! I am really okay in spite of the poor sleeping patterns, like today my son got up and I had to get up with him at 5AM. Just awful and no matter how much coffee I drink I am still tired all day. I have to say his doing that this morning is part of what motivated me to call the supplier and to get everything out again. I hate feeling this way!

At least I don't have long to wait eh? I haev been wanting to make that call for weeks and today something triggered it so in a way it was good Jackie got me up at 5AM. It got my motivation up and kicking my backside! Sometimes we all need a kick in the backside and it's always best to do it yourself rather then let someone else do it for you because that is another story...Not motivating for me at least, and I doubt it motivates anyone here to be kicking by someone else. My eyes are closing but I have to wait for an hour more at least before getting to hit the hay, I will post tomorrow and let you all know how it went using the machine. Towards the end of the time I was using it still I began taking it off around three am due to pain in my face and teeth. Hopefully that won't happen tonight.
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Old 03-17-2008, 10:42 PM #2
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Oh pamster,
keeping my fingers crossed fo ryou.
better days of sleep are coming ...maybe in just a day or two?
sending some pixie dust your way....
bizi
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Old 03-17-2008, 11:32 PM #3
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What do you use to clean the mask? I found out mine kept leaking air because I was using hand soap on it (too harsh). Haven't used it for over a year, but now I know to use baby shampoo.

I had a love/hate relationship with mine. Might be time to use it again. Ugh...

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Old 03-18-2008, 08:49 AM #4
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Thanks bizi! I slept great last night, but the mask hurts my face. Hoping the new one I'll be getting tomorrow will help that problem.

I use water and a bar of ivory soap to clean up my mask, I totally understand the love/hate thing though, I hate the facial pain in the morning but I love how much better I feel this morning. If you're feeling run down I would definitely take it out and use it again. I know I feel 100% better this morning.
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Old 03-18-2008, 04:23 PM #5
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Glad you got some sleep. Hope your new mask comes today!


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Old 03-18-2008, 07:52 PM #6
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I have great news! My Mother ran into a guy she knows at work and talked about it to him, because I had emailed her about the facial pain and he said she could have his unopened FULL face mask which will remove this problem for me, it's a shame they only last a few months, but for the few months I'll have it I will be in heaven!
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Old 03-18-2008, 10:07 PM #7
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Sounds good Pam

So then you start looking into how much they would cost to replace it then.

Donna
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Old 03-18-2008, 10:26 PM #8
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They have what they call "nose pillow's" now. I don't like them because I feel like they are blowing my nose off of my face. But, They do not touch your face. They come down over your head and go into your nostril's. You have to see them to really get the right descrition. I love my full face mask. The only problem I have is the calouse I have on the bridge of my nose. Sometimes it even get's infected. BUT DO W?OUT IT...NO WAY!
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Old 03-22-2008, 08:37 PM #9
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Quote:
Originally Posted by kithitter View Post
They have what they call "nose pillow's" now. I don't like them because I feel like they are blowing my nose off of my face. But, They do not touch your face. They come down over your head and go into your nostril's. You have to see them to really get the right descrition. I love my full face mask. The only problem I have is the calouse I have on the bridge of my nose. Sometimes it even get's infected. BUT DO W?OUT IT...NO WAY!
I've seen those and they would make me feel claustrophobic I think. My old mask rubbed my nose raw and I have to lay off using the machine a few days, and boy am I TIRED!

I put triple antibotic ointment on it (it's right UNDER my nostrils on the thumberlin, talk about painful! UGH!) and it's already looking better but I figure a few more days of healing and I should be all set.
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Old 03-24-2008, 05:08 AM #10
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Dear Pam, Keep fighting the good fight. It sounds that using the CPAP is better than not using the CPAP, so I'm glad you pulled it out of the closet and plugged it back in -- so to speak.

When I have a place on my skin that is rubbed raw or needs to heal, I use zinc cream sold in the grocery store. They call it diaper rash cream but its main ingredient is zinc. Alternatively, try cortisone cream or benedryl.

Anyway, good luck.

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