BF, I feel so bad for you feeling alone and not supported. Sometimes it is just better to take it from the hands of those in the family because even if they want to help, they are not educated or trained to help. You really can't tell them how to support you. You say support they think money.

If I were you I would ask SSDI or an agency to step in as your care taker, and also with this much mixed up no one med or simple answer, why not a short stay program for pain and emotional assistance. Get the overhaul and special doctors to control your meds from every stand point.

Family can just be too close to the situation to help. I had to do everything for my daughter, yet she resented it so much. I have so much guilt that I was not able to do more to protect her....Even with the hospitalization though the doc;s out of town did not get, treating her physical pain would reduce the emotional strugle she had.
I will say a prayer, but do some phone calls and find guardianship programs to help advocate for you.
Di

Hi Di. Im in the SSDI waiting period. I got turned down two times,and now I'm going to their court with a lawyer in about 5 months. I've been waiting,and waiting.

Are there any caretaker agencies? I don't know of any except for Social Services. Thanks. BF