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Old 11-17-2006, 06:40 AM #11
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I wish I could put my arms around you. I guess one of your lessons in life is how to go easy on yourself....it might be one of the hardest lessons to learn but it will eventually be rewarding and is easier to do than the other way around. You also have to set yourself up for a role model for your "little one" wow...how tall do you think it will be?
I don't know if your diagnosis is correct....but I guess it isn't the flu...I am so afraid with your pattern it will just make you become harder on yourself. You have to remember as I repeat myself you are a role model and you have to treat yourself with love and tenderness....if not for your sake, for Wes's sake...
Bobby
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Old 11-17-2006, 11:27 AM #12
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(((((Bear)))))

I can certainly relate to the fibromyalgia and chronic fatigue. I have both.

At the beginning when I was first diagnosed I was miserable.... but I then found a new doctor who believes in treating fibro and CFS agressively and I feel a lot better now.

If you ever need to talk, I'm here. The fibromyalgia forum here at Neurotalk has a lot of good people. If you want to read more about fibro there is a great book by Devin Starlanyl called Fibromyalgia and Chronic Myofascial Pain, a Survival Manual (second edition). most people with fibro consider that book to be the "fibro bible" because it is so full of accurate information. The author is a doctor who has fibro herself, so it has medical info as well as personal insights.

Here is the authors website- http://www.sover.net/~devstar/ which also has lots of info.

There is no cure for fibro, but there are treatments.

Something else to think about is the B12 issue. Chronic B12 deficency can mimic all of the symptoms of fibro and CFS. Many people who are low in B12 have had their fibro and CFS symptoms disappear once they start taking sublingual B12 supplements daily.

There is a member of NeuroTalk named Rose (she was active at Braintalk as well). She is very knowledgable about B12 and she has recently created her own website http://roseannster.googlepages.com/home full of info about B12 defiency, symptoms, treatment, etc...

Sorry for the long post, I didn't mean to overload you with information. I just wanted to let you know that I can understand and relate to the fibromyalgia and CFS, and I'm here to talk anytime.

Take care of you,
Liz
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Old 11-18-2006, 12:28 AM #13
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Morgy my dearest love. OMG!! How do you know me so well? You amaze me at how intuitive you are. You are right, you are so right. Wow.

Thank you me BP?. Thank you Nikko *it's still so hard not to type your real name. I am trying so hard! I appreciate your support.

HighHatSize! I haven't heard from you in ages. When my doc started to discuss the possibility of fibro, I looked into it and thought, nah. Now I have researched and research and it is me. Except for the sleep thing. Oh boy I can sleep.

Mari: I will look for answers for us both. I will get us something to work with.

Witty!! Yes! A book. I am going to get it. Thank you thank you thank you.

love you bizi. You are so dear and kind.

B12 is awesome. Blues are gone!!
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Old 11-18-2006, 07:04 AM #14
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Hi Bear

I'm new so I wanted to introduce myself and let you know that I'm glad the visit to the doc helped. Are you getting any help with your fibro pain? My rheumy dx'd me w/fibro (although my pain doc doesn't agree) and there are meds that will at least help take the edge off. I don't like to hear that people are suffering needlessly. There are so many doctors these days who are reluctant to treat pain.

I'm glad the lamictal is helping Wes. I've been on it for a few months and I suppose it has helped a little bit but I'm still not totally convinced.

I think one of those little egg nog and whisky ma-bobbers sounds pretty good right now. I haven't had one for years.

Hugs

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Old 11-18-2006, 10:42 AM #15
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I have been obsessively reading. LOL what's new.

There is a place here in Utah that uses a full body and extremely aggressive approach to treating fibro. I may go to a seminar in January. We shall see.

I use the sub-lingual B12 but I am having trouble finding the right kind anymore. It's not absorbing like it used to and I am resorting to the shots. Which, I find terribly difficult to get my butt into my doc because I put my kiddies needs before mine. And they have both been having a very difficult year.

I am going to a chiropracter Monday to see what they could possibly do. I talked with a massage therapist and we are going to meet around the first week of December and she wants to do a "mapping." I called my local Curves and the little gal that runs it says she's learning from her fibro ladies what kind of exercise really helps. The last thing I need to do is go gluten free with my wee one. He's been gf since he was 10 and it won't be that hard for me since everything I cook or buy is gf any way. I just need to take out a few things and I am there. And I bought that book on Amazon, Whitty. It will be here before Christmas.

I allready avoid sugar so that one's only hard when I have pms.

Fatige and exhaustion. That is my next project. I will have to see if the above works and if it helps. If not, we try something else. (I will find us something Mari. I promise.)

Now....if I could get rid of the Cymbalta night-sweats. Talk about interupted sleep patterns. And it's just plain icky. bletch
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