FAQ/Help |
Calendar |
Search |
Today's Posts |
02-28-2009, 08:24 PM | #31 | |||
|
||||
Legendary
|
Dear Abbie,
I'm sorry to hear about the Reflex Sympathetic Dystrophy... i just googled it to see what i could find medication-wise. Found a NINDS site info sheet on it - they call it CPRS - Complex regional pain syndrome. anyway it sounds just horrible. that and bipolar too. my stomach sank down into my shoes. it does state that no single medication has been found to relieve the condition but says that lots of drugs are used symptomatically... not just opiates or steroids either. Notably i see that AEDs are mentioned and i am aware of some, including new ones, which may help with pain control. I am thinking gabapentin but more specifically its newer cousin - pregabalin. Also tricyclic ADs like amitriptyline or nortriptyline could help. the latter is often used for fibro. Amitriptyline howver is unique in pain treatment, in that it has been found, even in low doses, to help with pain of diverse origin... even psychogenic pain (i am not suggesting that yours is) but it seems to be a particularly interesting drug insofar as pain control. This i was told by my pdoc - i am not in the US. I just thought i'd toss a few non-opiate names at you... of course i don't know what you've already tried... but anyway... There are many meds out there. i hope your new pdoc will find something that works for you. i really hope this new pdoc is the genius kind! let us know how things go. ~ waves ~ |
|||
03-04-2009, 09:59 PM | #33 | |||
|
||||
Elder
|
Hi all...
I'm sorry I'm late checking back in... Met with new Pdoc... I think he had my case file memorized... he even said he researched RSD (Reflex Sympathetic Dystrophy)... It sounded like he did because he was asking me some questions about how I am dealing with it. I was so nervous and scared to death of this guy that I can't tell you what he looked like... I don't think I ever looked up. Tdoc told me that the office staff told her that I didn't look too good that day.... said I was shaking, rocking, and was pale white/greyish He kept all of my meds the same for now...will see me again first week of April. Oh well... nothing has changed...guess I will just have to keep on keeping on with the mixed feelings until I can't take it anymore. Thank you everyone for caring!! Abbie
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
"Thanks for this!" says: | Brokenfriend (04-03-2009), waves (03-07-2009) |
03-04-2009, 10:24 PM | #34 | |||
|
||||
Wisest Elder Ever
|
hi abby, thanks for checking in.
what do you think he should have changed? Maybe you can ask to see him sooner or talk with his nurse since you were flustered about being there. Unless you had questions written down I am not sure how you could remember the visit. beth
__________________
. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, Last edited by bizi; 03-04-2009 at 10:46 PM. |
|||
03-04-2009, 10:31 PM | #36 | |||
|
||||
Elder
|
It's the fear of being around people I don't know... and the fact that the new Pdoc is male... long story. Plus the waiting room was a bit crowded and I don't do crowds... me plus one is a crowd.
I meet with Tdoc again soon..can't remember date but I have the card somewhere. I will ask her what he said in his notes. I was hoping he would maybe change things around a bit to help with this mixed state. Abbie
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
"Thanks for this!" says: |
03-04-2009, 10:48 PM | #37 | |||
|
||||
Wisest Elder Ever
|
I recently heard that abilify might be helpful in mixed states. Have you ever tried this med before?
beth
__________________
. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, |
|||
03-05-2009, 12:11 AM | #38 | |||
|
||||
Legendary
|
Dear Abbie,
Call that stupid pdoc's office and tell them you need SOMETHING changed because you are in a mixed state. What is he? A moron? OK. Deep breath. I promise to be calm. Seriously. Call somebody (tdoc or pdoc). Or get someone to make the call for you. Or print out what you wrote here describing your mood and fax it to him. Sorry that I am a bit moody tonight. You have a pdoc. That is wonderful. Now you have to kind of teach him to do his job. I know that that is a lot to ask of a patient, but that is what we do. We help them understand us and we help them realize the difference between our normal bad situation and our very bad situation. This guy does not know you yet and does not know the difference for you. You are going to just have to let him know what exactly is going on. Or let the tdoc tell him. Either way you need a med change now or later and now is better. Here's the problem that I see. Mixed states are not stable. They don't usually stay mixed states. They can deteriorate and patients can end up in the hospital. Abbie, I'm sorry that you are dealing with this now. Mari |
|||
03-07-2009, 10:21 AM | #39 | |||
|
||||
Legendary
|
Quote:
And yes, "end up in..." is right... i.e. the last resort becomes the only resort... and not a deluxe resort either. Something must be done NOW, or at least tried. Pdoc sounds conscientious... thoughtful. Maybe he focused so much on taking on the case he missed the main point?? i.e. to stabilize you asap! However, i dislike his waiting room situation. Usually, and preferably - partly for confidentiality and partly to maintain "safe" therapeutic boundaries, the office/appointments are set up so as to provide for minimal or NO contact between patients. (i dunno - maybe it's a clinic and they're not all his though... ) He also does not match your gender preference. i do not discount this; it is part of your comfort zone. i am usually reluctant to "throw out" something before it has been fully tried but with the above 2 isues, i wonder if a different pdoc/situation might suit you better. However, it may be best to try to work with this for now, than to try another new person ... stressful, and seems unlikely to get you help sooner. I like the suggestions of printing this or parts of it out... and faxing it... documents things... you don't have to deal with ppl etc. Also.... Quote:
Well, Abbie, somehow, i do hope you can find a way to get meds adjusted, asap. Good luck. ~ waves ~ ... back to formerly scheduled 'break' now... |
|||
"Thanks for this!" says: | Abbie (03-07-2009) |
03-09-2009, 09:20 PM | #40 | |||
|
||||
Legendary
|
Other mondays i recall you have had appointments so i thought you might have got to see your tdoc today... did you?
If so, was she helpful? Can she help mediate things with the new pdoc for you? I hope so. Looking forward to an update. When you can. Take care of yourself, first. ~ waves ~ |
|||
|
|
Similar Threads | ||||
Thread | Forum | |||
Felt like sharing some hugs! | The Stumble Inn | |||
How long until you felt better? | Gluten Sensitivity / Celiac Disease | |||
How I felt: At the hospital... | Creative Corner |