My name is David and am caregiver for my 81 yr old mother, 24/7, for about 8 months now starting to feel the burn, no where to go no escape in sight. In March of this year she was diagnosed with Bulbar ALS. Presently she can barely walk with my help, no talking only on whiteboard, and all nutrition thru peg tube. I quit my job and moved in with her to avoid her being in a nursing home.
One alcoholic sister who has minimal involvement but is mom,s favorite,and can do no wrong. Talk about sharing the disease with Mom, at least emotionally.Heavy feeling of isolation and helplessness. Tired and worn out