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Caregivers Support A place for people who are a caregiver to another to find help and support. |
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06-24-2014, 06:57 PM | #1 | ||
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New Member
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I have felt the same way since my husbands Severe TBI 2 years ago...my youngest daughter still asks when her "real daddy" is coming home..My heart is with you and I have just joined this group as well. The first step to a new tomorrow, at least that's my hope.
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07-07-2014, 10:17 AM | #2 | ||
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Do we breathe through the hard times? Pray for that light at the end of the tunnel? I cant help but ask sometimes, "God, why am i in this?" I am with a man that has a severe brain injury. Three years ago it happened...and was not expected to live. Too much damage, swelling, etc. He did and he is an amazing person. What an inspiration. But every day is a struggle for him- b/c he doesnt recognize who he is. He is not whatsoever the same person he was prior accident. But everyday he gets up and finds someone to help in this community we live in. He is so loved by so many. BUT!!!!! There are mood swings, inability to discuss "certain" topics b/c it will stress him out and he says, "if we talk about it i could have a seizure." And the anxiety ensues. There is also lying....the lying seems second nature. And NEVER even if caught will admit to the lie. So ya, the good with the bad. Ive signed up to see a counselor for both of us. It can take its tole - when u are the person who helps the most, does most everything and then are treated disrespectfully. Not easy. My heart goes out to you women with tbi husbands/boyfriends. Stay strong.
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"Thanks for this!" says: | Hockey (07-07-2014), Tina Demes (07-11-2014) |
07-10-2014, 08:34 PM | #3 | ||
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New Member
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I am also a spouse of a person who`s had a severe TBI.He is 59 and I am 31.He is AND WILL BE the love of my life.I loved him since I was 17.He is so angry,ignorant,sometimes even violent.Always unpredictable.Dr Jekyll,Mr Hide.I have been at his side since he was in a medically induced coma for 35 days last April etc.He is also epileptic but I don`t mind about that.He just doesn`t seem to love me.I do not want to be his nurse but his partner,his wife,his lover.He doesn`t feel about me this way anymore.
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07-11-2014, 08:07 PM | #4 | ||
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n/a
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wow. after reading all the posts I now know what my girlfriend goes through.. it is just as hard if not harder o the oter side
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12-22-2014, 08:41 AM | #5 | ||
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Junior Member
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Husb impatient, grouchy, no compassion or empathy. Told new Neuro he finds no joy in anything. TRUE. I am lonely, unloved and happy to find a place to speak w others in same boat. He's on antidepressant, just put him on a mood stabilizer. Many prayers to you. Hope this site will be helpful for the both of us. I am married to a stranger. |
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12-22-2014, 10:15 AM | #6 | ||
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Grand Magnate
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Welcome Wife of TBI hubby.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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12-23-2014, 11:29 PM | #7 | ||
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Junior Member
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This all will take getting used to, but thanks for your welcoming me!!!!
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"Thanks for this!" says: | Kitt (12-24-2014) |
12-29-2014, 02:21 PM | #8 | ||
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Legendary
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Quote:
Welcome to the NeuroTalk Support Groups. I just wanted to let you know in case you weren't aware that there is a very busy Traumatic Brain Injury and Post Concussion Syndrome Forum here at NeuroTalk. At the top of the TBI/PCS page you'll also find what we call the Sticky threads. They're mostly information threads and posts and also contain useful websites and ideas for various therapies, TBI/PCS articles and research. It's worth a look. There may be ways of helping your husband recover that haven't been tried yet. all the best. See you there. |
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02-11-2015, 11:43 PM | #9 | ||
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New Member
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Sadly new to this site resulting from a collosion my husband had late October resulting in a TBI. After three months of being hospitalized and rehab 1500km away from our home we are finally home. For three months I was on an adrenaline high to stay strong. His survival was the first hurdle, then waking up, then the major hurdles once he woke. Now that we are home and he is physically well I am a puddle. I am a puddle in private. I feel guilty about this. How can I be depressed or embarrassed about my husbands cognitive skills when I am so happy he is alive? I put me at the very bottom to ensure my husband and kids are number one. That's okay and is necessary right now, another form of strength. I know it cannot last long. I feel guilty complaining that I have not slept through the night since October 28th, or that I have gained weight since I am an emotional eater (apparently) or that I have done nothing for myself besides daily personal hygiene. How can I complain after all he has been through and continues to face? I am angry and bitter and so scared. Walking on eggshells depending my husbands mood, referring between husband and kids so they are not misunderstood and an argument surfaces. I love him. I just don't know him. Time. Time and patience....right? Thanks for the vent, trying not to feel sorry for myself.
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02-12-2015, 02:04 PM | #10 | ||
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Grand Magnate
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Welcome Danika.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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