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Caregivers Support A place for people who are a caregiver to another to find help and support. |
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03-24-2013, 09:18 PM | #1 | ||
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Junior Member
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Hi I am new to this site. I am looking for other people whose husbands or wives have had a TBI. My husband suffered a Severe TBI 9 months ago during a dirt bike accident. I'm not quite sure where to begin just knowing I'm not alone would be a nice change.
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"Thanks for this!" says: | anon1028 (07-11-2014), eva5667faliure (04-13-2013), Hockey (07-07-2014), Malia (02-16-2015), Pikku Myy (05-09-2016), tamiloo (04-17-2013), Tina Demes (07-10-2014), tito's girl (07-30-2014) |
04-06-2013, 07:24 PM | #2 | ||
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New Member
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You are not alone. My husband suffered a TBI over 2 years ago after being hit by a bus. He is like totally different person now. We have been married for 20 years and it seems like I don't even recognize him anymore. It is very depressing and stressful.
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"Thanks for this!" says: | eva5667faliure (04-13-2013), Hockey (07-07-2014) |
04-13-2013, 12:18 PM | #3 | |||
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Grand Magnate
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may i extend my felling
of hope and care for the both of you my father an amputee when i was born my eldest deemed epileptic is 32 years old at the prime time venturing into the world cut short suffered her first seizure april 30th 2003 while at the mall with her now husband had part of the occipital lobe took away permanent loss of vision a true inspiration in the end not a success story as she has now a VNS implanted in her she now suffers seizures all the time including in her sleep so this is where i relate she too has changed forever as she is not the same MAY GOD AND OUR LORD JESUS CARRY YOU WHEN NEEDED MOST someone who cares i hope and wish you both the very best finding each other
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someone who cares eva |
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"Thanks for this!" says: |
05-02-2013, 06:40 PM | #4 | ||
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New Member
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I am struggling as well. I have been married to my husband for 5 years and have a 1 year old. Everyday is unpredictable. It is hard because looking at him he looks "normal" and can blend in and be very charismatic with others. But everyday he reverts into a child at some point. Tantrums, self absorbed, manipulative, impulsive and the list goes on. I am at my breaking point, but I love him and is the father of our daughter. I am concerned however about our daughter because he can be cruel and children don't understand that Daddy doesn't really mean it. It can warp a child and their self worth. It has effected mine to say the least. When is enough enough? They don't mean to be this way but you can only take so much right?
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05-21-2013, 06:38 PM | #5 | ||
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Junior Member
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Oh so sad reading through this. I have an illness with neuro aspects which has changed me somewhat though not to that extent. I feel for you, all of you and what you're going through.
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06-20-2013, 03:11 PM | #6 | ||
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Junior Member
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Everyday is unpredictable. It is hard because looking at him he looks "normal" and can blend in and be very charismatic with others.
I know what you mean about looking normal. My husband is a master at mimicking and acting normal. After years of knowing him I know he isn't authentic and it's like living with an unpredictable hodge-podge personality. |
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04-11-2014, 11:39 PM | #7 | ||
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New Member
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When I married him 15 years ago, I didn't know my husband suffered a serious frontal lobe injury at age 5. I just thought he was misunderstood. He was, of course, because he was hurt at a time when no one considered the long-term effects of such a severe impact. He seemed fine when he recovered from the two week coma, so that was that. Thus began a life of stealing, drug and alcohol addictions, compulsive financial behavior, and unhappiness for his ex wife and kids. I met him in AA, and we have shared a journey of sobriety which has brought us close. But the lying, the verbal abuse, the insanity and all the other hallmarks of TBI have begun to take their toll on me. I came to realize his behavior was caused by the TBI, but I don't know how to get help for him or me. No one can understand, and no one believes it could be real.
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"Thanks for this!" says: | eva5667faliure (04-29-2014), Hockey (05-24-2014) |
12-23-2014, 11:36 PM | #8 | ||
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Junior Member
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I can relate to every post and comment here!!!! So happy to be at what feels like "a family reunion" where your meeting your new cousins for the first time. I've lived without support, as the caregiver for nearly a year now. It is very lonely.
Can anyone tell me how long it takes moderator to approve posts?? I posted on this site yesterday. Thanks in advance. |
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"Thanks for this!" says: | Zayne (06-09-2019) |
12-27-2014, 07:14 PM | #9 | |||
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Magnate
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I feel for you having been trapped once chemically on the other side, where side effects stole my personality and cost me my family, and now a brain lesion has robbed me of my small amount of freedom in the ability to drive and has taken away my only hobby.
BUT… our outward inabilities to express ourselves as the loving people we once were does not diminish the love we feel in our hearts. We have had a huge part of 'I' taken away and can feel trapped, lost and alone. Do not take this as a sign that Love has died. Draw on the strength of those around you. Come here for support. Know that your husband really hasn't changed inside. Dave. |
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"Thanks for this!" says: | ger715 (02-15-2015) |
10-15-2015, 07:38 PM | #10 | |||
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Junior Member
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Hi,
I am sorry about your husband and his injury. I am going through TBI with my husband as well. It has been a year, things are better than they were a year ago. I am hoping he is generating more brain cells. We have good and bad days. I am learning when to walk away instead of trying to reason with him when he is too tired or "off" |
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"Thanks for this!" says: | DejaVu (11-17-2015) |
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