Caregivers Support A place for people who are a caregiver to another to find help and support.

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Old 07-22-2013, 07:11 AM #1
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Hello cljm

Welcome to Neuro Talk. I will talk any time you need to. I am sorry for your husbands accident, and the trauma that you are going through. I too live in Fla. Have you tried the hospital nearest you for a patients advocasy group. There may be help with that route. There are organizations that can help with medical expenses through teaching hospitals. I received help from Manatee memorial hospital in Bradenton. They paid for many of my medical expenses while I was going in for surgery and care etc....
Maybe seek a care givers support group too in your community. A womens resource center may have some direction for you too. Council is a good idea when going through so many issues. It is based on income in many cases. My own is free as I am on medicare/medicaid. I know what it is like to care take for someone in recovery. I sure will be here to talk to. ginnie
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Old 07-24-2013, 01:01 PM #2
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Quote:
Originally Posted by ginnie View Post
Welcome to Neuro Talk. I will talk any time you need to. I am sorry for your husbands accident, and the trauma that you are going through. I too live in Fla. Have you tried the hospital nearest you for a patients advocasy group. There may be help with that route. There are organizations that can help with medical expenses through teaching hospitals. I received help from Manatee memorial hospital in Bradenton. They paid for many of my medical expenses while I was going in for surgery and care etc....
Maybe seek a care givers support group too in your community. A womens resource center may have some direction for you too. Council is a good idea when going through so many issues. It is based on income in many cases. My own is free as I am on medicare/medicaid. I know what it is like to care take for someone in recovery. I sure will be here to talk to. ginnie
Dear ginnie

As my shoulder be there for the
both of you
keeps me out of my own crap

GOD IS GOOD
HEAR OUR PRAYERS
AMEN!
__________________
someone who cares
eva
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Old 07-24-2013, 07:01 PM #3
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Hi Eva

You are my rock. I listen to all your prayers. I agree with you. When we put ourselves in a position to try to help others, our own problems seem less. Life is tough Eva, no question about it. Glad we have each other here, and all of our buddies to lend an ear. God bless and keep all of us. ginnie
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Old 07-25-2013, 06:37 PM #4
cljm06@aol.com cljm06@aol.com is offline
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Default still desperate/even worse

Hi Ginnie, thanks for the reply, I really can't tell you how great it was to actually have communication with someonw. I have been so isolated for so long and things are only getting so much worse. I have tried to find any help everywhere, unfortunately, I am always told that I rediculously fall into this "cut off" category where I don't qualify for anything and with my husbands medical its impossible for me to find any extra money. I took him in for an emergency appt with his psychiatrist (3rd dr he has had in 2 years) so he could see the "mental state" he has been in and I begged him to do something or at least give me something to give him when he is uncontrolled - actualy got same rediculous excuse of office policy, don't issue anything addictive etc, he didn't even try and get him out of this ccomplete psychotic break he clearly has been in and how extremely "unsafe" this is for both of us. I feel sick. Will write lter, thanks again.
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Old 07-25-2013, 07:20 PM #5
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not a caregiver, my girlfriend is. it's so hard on her I don't know how she does it. I wish I could get better but I don't know how. I am here if you want to talk. I am sorry you are ni such a tough spot
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Old 07-25-2013, 07:53 PM #6
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Originally Posted by markneil1212 View Post
not a caregiver, my girlfriend is. it's so hard on her I don't know how she does it. I wish I could get better but I don't know how. I am here if you want to talk. I am sorry you are ni such a tough spot
Thank you very much for responding. I truly know how hard this must be on both of you. The fact that you are aware of how much she cares for and about you, you have no idea how very helpful that alone is. I have no help and never have no matter how I have tried and never find any. I just can't keep up with everything there is to be done. His care has always been #1 priority, than trying to work from home and keep my job for our sole income and there is just so very much more to do that has been put aside and I desperately need help getting to and trying to fix all of the complete disasters going on. With the state of mind my husband has been in, that I just can't snap him out of, and can't get any of his irresponsible drs to do something about, I get no sleep, when I finally do, I am woke up being screamed at and it lasts for hours and hours, he weighs almost 200 lbs more than me, I can't protect myself, I've tried everything and everywhere and there just isn't anywhere or anyhing I can do. This is just a terrible nightmare. I have no idea how or will end, just sure it won't be good. I truly understand he is and has been going through a terrible nightmare himself and I know its not his fault, I just don't know how to help him and am getting so very frustrated and angry that his drs have such rediculous excuses and lno concern for anyones well being. Sorry for rambling, I'm sure you have enough of your own issues and thank you for listening. Very best wishes to both of you.
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Old 07-25-2013, 08:27 PM #7
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Quote:
Originally Posted by cljm06@aol.com View Post
Thank you very much for responding. I truly know how hard this must be on both of you. The fact that you are aware of how much she cares for and about you, you have no idea how very helpful that alone is. I have no help and never have no matter how I have tried and never find any. I just can't keep up with everything there is to be done. His care has always been #1 priority, than trying to work from home and keep my job for our sole income and there is just so very much more to do that has been put aside and I desperately need help getting to and trying to fix all of the complete disasters going on. With the state of mind my husband has been in, that I just can't snap him out of, and can't get any of his irresponsible drs to do something about, I get no sleep, when I finally do, I am woke up being screamed at and it lasts for hours and hours, he weighs almost 200 lbs more than me, I can't protect myself, I've tried everything and everywhere and there just isn't anywhere or anyhing I can do. This is just a terrible nightmare. I have no idea how or will end, just sure it won't be good. I truly understand he is and has been going through a terrible nightmare himself and I know its not his fault, I just don't know how to help him and am getting so very frustrated and angry that his drs have such rediculous excuses and lno concern for anyones well being. Sorry for rambling, I'm sure you have enough of your own issues and thank you for listening. Very best wishes to both of you.
don[t ever think you're bothering me. I need to stop thinking about myself a few minutes a day. I am so so sorry for your situation. it does sound scary. you need to find a doctor that will listen to you and help your husbands situation. I know it seems like none of them is listening, but you need to find another one. I am concerned about your situation. let us know what happens and feel free to email me any time or send me a personal message, as I am still disabled and home I check my mail often.
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Old 08-27-2013, 10:34 AM #8
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Hi Cljm

Where in Florida are you? I am still here to talk to. I am also willing to call you and talk. PM me for #. You are not alone. I still am thinking about you. I do want to try to help you. If you are in an unsafe place with your husbands moods, call 211 on the phone. There are professional there that will respond to you and offer some help. Any time that moods become scary you should do something to get him some help. There is also the Baker Act, where he can be seen in a hospital and evaluated. This does sound like it is more than what you can handle at this time. Keep in touch. Let me know where you are. ginnie
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