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Old 09-19-2006, 04:41 PM #1
Mom2heathandkynzer Mom2heathandkynzer is offline
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Join Date: Sep 2006
Posts: 9
15 yr Member
Mom2heathandkynzer Mom2heathandkynzer is offline
Junior Member
 
Join Date: Sep 2006
Posts: 9
15 yr Member
Question whats going on with Kynzer???

Here is a little background info....Kynzer is 4 yrs. old that has a shunt because of being a preemie he had a grade III IVH...well actually he now has 2 shunts since his hydro isn't communicating...and he has spastic diplegic CP. He has had a really rough yr. with 8 shunt revisions....4 of which he didn't need....he just needed a second shunt. He did fine through all of his surgeries but about 2 months ago his right eye started turning in bad and his right arm/hand was really shaky...like an old person...you know how they jerk when they reach for something? His NS said it's not a shunt issue...we've done a couple of ct scans to make sure and 2 hospital stays....and we are waiting for his neurologist to get back in the country from Africa. He does have an appointment with his on Oct. 3. Also Kynzer has been vomiting in the mornings until his NS put him on zofran to the tune of one thousand dollars a month!!! Thank God for insurance!!! Now that has stopped...but he will still do it without the meds.
She also did a EEG and it said it was inconclusive to seizure activity...but something about spikes?
All of this just so I can hopefully get an answer to this question....could this be seizure related? If not what else would cause it??
Thanks!!
Anita
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