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Old 05-12-2007, 08:39 AM #11
mama z mama z is offline
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mama z mama z is offline
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Ok, I'll check in, even though it's been awhile. Things get to be such a routine. Guess that's a good thing.

We had Andrew's Transitional IEP a couple of weeks ago for his move up to Kindergarten. I am so happy b/c they agreed to put him ESY at his new elementary so we can transition him this summer. I had visions of him entering his first day of school screaming bloody murder. Since Andrew is a screamer when he is upset, and a new school, teacher, etc, will do that. He's been fully included thru pre-school and I'd like to see the majority of elementary the same way. Good thing his annual is in Sept b/c we can discuss this. Right now they have him at only about 20% included which I'm not happy with. Fortunately the Dir of Sp Ed is awesome and knew this as soon as the teacher said something. She jumped right in and said we would re-evaluate the inclusion in Sept since she knows I'm a strong advocate of it. I'm fine with that as it does give Andrew more time to adjust to the new routine.

We are planning our first vacation in over 6 years for Memorial Day weekend. Nothing to exciting, just running down to St Louis for the weekend. I'm still in my first year at work so it's impossible to get any time off. So we'll take advantage of the 3 day weekend. I'm so excited. My mom is meeting us there so I'll get some help w/ Andrew if I need it. We want to do the zoo and it'll be interesting to see how he does.

That's about it. Aaron's face met concrete on Weds. Concrete won. Poor kid. He's adding to his battle scars.

Hope all is well.

Laura
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Mommy to Aaron (11-3-98) and to Andrew (10-13-00) w/ HIE, spastic-quad CP and seizures.
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Old 05-13-2007, 12:42 PM #12
langansmom langansmom is offline
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langansmom langansmom is offline
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Hello all. It has been a while since I posted here but I am excited to see things picking up on this board.

All is well with us. Langan is on a lifetime seizure free streak- 69 days today. Still not sure if it is the vns or the med changes or just random luck but we haven't changed anything since the nasty things went on hiatus. We were in the middle of coming off of lamictal and onto topomax, so now she's on a dose of each that's so small the docs say it shouldn't be doing anything. Go figure.

Langan's walking continues to improve, as do her other skills. Amazing what a child can do when there's not a constant storm in her sweet little brain. We opened the pool this month and she is in it almost every day. She LOVES the water!

We had our annual IEP and Langan will stay in preschool for another year. I was thrilled with that result and even more thrilled that it didn't require the battle I expected. She also has full summer services at her wonderful school. So we're happy on that end. Next year will be the battle- she is fully included now and we'll want that in K but the school system here is all about segregating SN kids so we'll gear up for that when the time comes.

Langan is getting all 4 of her 6 year permanent molars- a year and a half early. Poor thing. She's only fussy at night but the dentist said it is super painful.

That's news here. We are happy that we have no crisis to report and hoping that things stay peaceful for a while.

(((hugs))) to all!!
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Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!!
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