Ri has been having major sleep issues for months. We took her nap away, and had even started not letting her sleep all day with post icital sleep (unless the seizure was super bad) We have gotten suggestions from her neuro, we have used melatonin so long that it is like a sugar pill to her, does nothing. Only quiet activities before bed, no sugary drinks, nothing with any caffiene, no TV when it is bed time, quiet dark room, you get the point.

Today was her 8 year old check up so we talked to her ped about it She gave me some samples of Rozerem to try.

Ri has hit 51 inches tall and 55 lbs- No wonder my back kills me when I have to carry her around.

WE also found the cause of the seizure increase and high fever this morning, she had a really bad ear infection. Did this kid complain once about her ear hurting? NOPE, not once...

Before I give Ri the Rozerem I wanted to know if anyone elses kids have taken it? I am alsy afraid to give her anything that might increase seizures...

Denae

I haven't heard of this drug even. And I can't read the thread because of its width. But I'm going to see if I can find anyone that knows anything about it.

My eyes aren't liking the wide post. And my therapist says I have to watch
this it will make my therapy a mess, and not work.

donna

I know nothing about this drug either Denae. {{{sending lots of hugs and prayers}}}}

rozerem is the sleep med that has the commercials on TV all the time, the beaver and abe lincoln.

I was only able to pull up pretty limited info about it online. I did get the package insert. It didn't have any info about children taking it which did make me uncomfortable.

I didn't give it to her last night, she did ok and went to sleep since her fever spiked again she was feeling icky and went to sleep around 9.

We will see how tonight goes, we are definitely going to be watching the the seizure count for any increase...hmm, or a decrease would be ok too.

Denae

From what I've been able to learn so far its only been approved for adults so far.

I'm still looking though.

Donna

I've found same as Donna. Not approved for children. If I find anything I will psot it.....

Yep, thats pretty much all I found too. Just approved in adults.

Her ped checked for drug interactions so I know there isn't an issue there. I almost want to check with her neuro about it, but I am so desperate for her to get some sleep (and me too) that we are going ahead with it tonight.

denea,

the melatonin that i finaly found that works for me is a bit different. the plain type..well...it just didn't seem to work on me like people would post about.

the brand i am using now is made by Schiff. i got it at sam's.

Melatonin Plus

3mg Melatonin
25 mg L-theanine
10 mg Vit B6 ( pyridoxine hydrochloride)

i have horrible insomnia. mostly due to chronic pain. but 30 minutes after taking 1 of these, i can fall asleep. never had the medicine from it either. and that...i get very easy. i can't tolorate many rx's.

sorry i am replying late. boy do i know y'all need some sleep. i hope tonight the sandman parks himself on your couch.

Thanks. I haven't seen that braind of melatonin before, I will look and see. I would rather give something over the counter that a script.

We have used the melatonin for months and now it is like nothing to her. We bought the Twinlab brand at Whole foods.

From what I read (which isn't a lot) Rozerem has something to do with Melatonin too... I didn't fully grasp what it was saying- maybe after some sleep I would be able to understand it.

here is a link about the L-Theanine...i'm going to read it more and copy some of it here.

http://www.pdrhealth.com/drug_info/n...lth_0296.shtml


These findings led to recent studies investigating the possibility that L-theanine might enhance learning ability, induce relaxation and relieve emotional stress. Memory and learning ability were said to be improved in young male Wistar rats given 180 mg of L-theanine daily for four months. Performance was assessed using a test for learning ability and passive and active avoidance tests for memory.

B6

Vitamin B6 helps the immune system produce antibodies. Antibodies are needed to fight many diseases. Vitamin B6 helps maintain normal nerve function and form red blood cells. The body uses it to help break down proteins. The more protein you eat, the more vitamin B6 you need.
Food Sources Return to top
Vitamin B6 is found in beans, nuts, legumes, eggs, meats, fish, whole grains, and fortified breads and cereals.
Side Effects Return to top
Large doses of vitamin B6 can cause neurological disorders and numbness. Deficiency of this vitamin can cause mouth and tongue sores, irritability, confusion, and depression. (Vitamin B6 deficiency is not common in the United States.)

i thought this might help. (help me too) to see the difference between the products.

i'll look up the rozerem too.