Hi guys! Figured it was time to change my name. Betcha can't guess who I "was"! Hard one huh?

Hope everyone is well. A little update on us. Jake is doing well. He had stopped eating again so we weaned the Felbatol. We're just gonna have to accept his seizure level as it is. He still has more than 100 jerks a day, but they aren't "that" bad as far as seizures go.... (see the section on Katie!) and it's just not worth keeping on putting him on things that make him starve.

He has started back to school and is in the 4th grade. He stills likes school, thank goodness.

Katie is doing ok. Her delays are becoming more obvious and the doc is sending us to be eval-ed for a special needs stroller and high chair. She said the Panda highlow but eh, I don't like the look.

She got her immunizations Monday 2 weeks ago (MMR, Hib, Varicella) and that night she had a seizure. It lasted about 3 minutes and she wasn't breathing for 2 minutes. She turned dark blue and scared the crap out of us. Then last Monday, she got a cold and had another seizure that lasted 5 minutes and she stopped breathing for about 1 minute. The neuro had called in diastat after that first Monday but when she started seizing again, I freaked out and couldn't get the flippin diastat tube thingy open and by the time I got the directions out and figured it out, she had stopped. This makes a total of 3 seizures. She had an EEG last week, but we don't have the results yet.

Regardless, I'm not willing to start meds yet if it's just febrile. She's still on her shots and her MMA levels have come down, but it's not a cure, she's not catching up on her delays. I had hoped she would show more improvements if her levels came down. But it's all good as my brother says. :

I started a blog too. http://theashleykids.blogspot.com/