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Children's Health For health and neurological concerns in children. |
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09-10-2006, 05:34 PM | #1 | ||
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Junior Member
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Just realized we haven't done roll call this month, so I thought I'd start the thread- sorry it's a little late!
Things are going well in our world. Langan is WALKING. Like really- independently with no hands or walker or anything (although she still much prefers to hold a hand). She is still really awkward about it but it is coming along nicely. She is up to 30 steps at a time and is so darn cute doing it! I need to get some video of it. This is something we thought we'd never see so we couldn't be more thrilled. Seizures are up and down- still no rhyme or reason. We recently lowered her lamictal b/c they got worse with the last increase (neuro recommended the reduction, which thrilled me). We go days without seizures and then have two in a night. Ugh. I hate them! We took down Langan's crib and got her a big girl bed. It's actually a mattress on her floor for now. I know we had a thread on Child Neuro about low bed options but I can't remember the ideas. Anyone have any they want to throw out? Langan is back in bed with me for now- she slept with me on vacation and then I had a big trial and couldn't afford the sleep loss to get her back in her bed so now we're working on when to make the change again. She's in no hurry- she loves to snuggle! I guess that's news here. Please jump in and give us all an update. It's so nice to have so many of our crew back together!! (((hugs)))
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Wendy, mom to Langan, the love of my life, born 7/19/02. Global delays, intractable seizures, mystery girl. VNS implanted 2/10/06, now on small dose of lamictal and fighting for seizure control, and wife to Jon, the other love of my life!! |
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