Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 03-18-2007, 01:13 PM #21
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Default topamax

weight comes on quickly . If you dont want to gain weight I suggest you get off of it.
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Old 03-18-2007, 02:18 PM #22
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Default this reply is for Joe K.

Did your urinating problem resolve? I noticed that when I was taking neurontin, recently switched to Lycria that I too have little urine output. I am not too concerned yet. I hope that with time my body will adjust to the side effects. I just don't want to build up a tolerance and have the full pain back again. Are you still taking the Lycria?
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Old 06-03-2007, 08:09 PM #23
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Hi - I'm new to this site....and have been a TN victim for the past 6 years. I am now taking Lyrica, 300 mg a day. I believe it has helped ease the pain. My side effects: perhaps some memory lapse and slow short-term memory recall. When I try to get down to 200 mg a day, the pain comes at me hard. I am also doing acpuncture, once a month, and it has truly given me back my life. I pray that it continues to work. Acpuncture is an amazing alternative to surgery.
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Old 06-09-2007, 05:09 AM #24
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Hi there; I'm new here, but just had to comment. I just went off Lyrica after being on it for 5-6 months. I also had trouble with putting the wrong words in the wrong place while speaking. I recently started swelling in my feet, ankles, and legs so bad, I decided to go off of it; I also gained 15 lbs within a week. Within a few days, the swelling was gone & the weight also dropped off. This was about my only route to take, as I'm already somewhat overweight & can't exercise due to all my chronic pains. I've also read, although rarely, about people who tolerate Lyrica well. I just couldn't stand having my normally small ankles look so huge, and was very uncomfortable with the extra weight. Hope this helps! Chlobert
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Old 06-25-2007, 07:19 AM #25
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Just wanted to bump this up. In case anyone didnt catch it. The FDA this past week approved it for on label use for FM. Not sure if I really care. Does anyone else have the same reaction?
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Old 06-28-2007, 06:26 PM #26
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Default Lyrica

I am a diabetic (T2) and have extreme pain from neuropathy in my feet and legs. I was previously on Elevil but the pain soon returned. My primary care doctor started me on 150mg of Lyrica daily (50mg at dinner time, 100mg at bed). Results were excellent with only slight dizzyness that subsided after a couple of weeks. The Lyrica has been increased to 300 mg per day (50mg around noon, 100mg at dinner, 150mg at bedtime) so I could have an all-day low pain level from the neuropathy. I have been taking this for over six months now with no foreseen side-effects.

BUT....I have started an abnormal blood test showing a lower than normal platelet count. (Spleen is not enlarged.) Has anyone run into any blood effects since starting on Lyrica??

Ray
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Old 06-29-2007, 01:14 PM #27
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Default Lyrica - do you need blood work?

OK - I am pretty frustrated with this lyrica. This is my 2nd try at it. On it for over 2 months 400 mg. a day. I must say that my back pain is improved. However, that could or could not be related to lyrica as it seems to have brief periods of remission. It has done nothing for my TMj pain or facial muscle pain thus I suspect the lesser back pain is just a coincidence.
I just lost 30 pounds and now put back on at least 10 of it thanks to the lyrica. Dr. wants me to continue it anyway. ZI am unable to walk or exercise so this is a double whammy.
I know people on 700 - 900 . I have never found a drug for pain relief - tried 40 at highest doses.
Do you need blood work for lyrica? When should you get it?
I have terrible veins and the BW triggers of FM pain in arm.
Sydney
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Old 07-02-2007, 12:27 AM #28
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Quote:
Originally Posted by Idealist View Post
I took neurontin for about a year and a half, and then switched to lyrica. There were some differences, but most were bad. End the end I elected to quit taking both of them. For me, the side-effects were far more noticeable than the benefits were. Good luck!

Idealist
My son has bulged discs in both his neck & back.He gets injections in his back every 4 months or so.He has nerve pain mostly in the back of his neck and it goes up the side of his face making it numb and immovable at times.Sometimes it affects his arm.Tramadol made him have a seizure,neurontin made him foggy and sleepy.And Topamax is out of the question because he's 25-30 lbs.UNDERweight.He was hoping to talk to his Pain Management Dr. on Monday to try him on Lyrica.He is a student taking Surgical Tech and drives himself to class.A friend told him that Lyrica has helped his nerve pain and he should try it.I've been viewing the side effects and he can't afford any of them except the weight gain,30 lbs. would be welcomed!!!.He'll be 20yrs. old this month.Do you think he's a candidate for Lyrica?He needs all of his faculties-being tired won't cut it for classes.

Last edited by justmom; 07-02-2007 at 12:34 AM. Reason: additional thought
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Old 07-09-2007, 01:02 AM #29
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Red face

Im from Australia and have been on Lyrica for well over 12 months and prior to that Neurontin, with a combination of either Lovan or now weaning off Paroxetine, whats up with about 20kgs weight gain cant seem to stop eating once it starts a hold of me, can be okay all day and when night comes after some 300mgs of lyrica dont feel full and pain still there I have been suffering from chronic regional pain syndrome for over 10 years now after many work related acute injuries and continuing to work, but now over 18months have given up because of my declining health, everything seems to be suffering. Even on top of this, Ive recently fallen over quite badly and affected my sacrum and spent a little time in hospital meds upped and pain elevated. Life seems fruitless dont worry im not suicidal but all this intervention feels stupid and time wasting i know we are all at different places in our health lines and I know mine is not all consuming but my family are concerned and Im sick and tired of being all consumed with my health my pain my worries please someone does this get any better and please no more medications to add to mix Ive had enough of those. I want to enjoy life again and deal with pain on a day to day basis. Ive reread pacing yourself so you dont overdo jobs or things around the house and it makes me want to do things even more. R4P
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Old 07-26-2007, 12:50 PM #30
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Chat hello

Hi there..

Welcome relief4pain from Australia.. I too have CRPS and I do so hear the pain in your post I sure hope you are feeling better, have you been to the RSD forum yeat?

I was on 150mg twic a day and after a month of feeling drunk and disoriented had the Lyrica changed to.. (my choice of these 2) either 75mg three times a day or 75mg in the Am and 150mg before bed I am gonna go for the 75 X 3 doses to try loose the ucky feeling it gives me... pain relief is pretty good.. not looking forward to weight gain again either.. and I am hopeing that my experience controlling munchies may help me here
I like the pain control from lyrica and it is for me far better than the gabipentin was but still not enouph.

Be well folks,

Sandra
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