Chronic Pain Whatever the cause, support for managing long term or intractable pain.


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Old 03-17-2015, 03:28 PM #1
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
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Default when i was seeing a neurologist

to those who are having difficulties
oh how i feel for you
it was prescribed to me
for fibromyalgia
forgot the mg but do
remember 4 tablets was
the magic number
until
the extreme side effects
palpitations
blisters in my mouth
hands and feet skin changes
including nail beds both hands and feet
as a matter of fact
when i stopped lyrica all of my nails
had a indentation in it
my ten figures and toes

here is the thing
it is around the time
i became a member of this awesome forum
lyrica was not yet labeled
still fresh on the market
point
on one of my visits
i told him there was a indescribable high sensation
he did not take me seriously
and insinuated i not follow my pain specialist
so to make myself clear
to date
i am on pain meds as a result of a
botched second surgery as i did not fuse
the first time around
so back to my meds
pain meds for the mechanical pain
unable to takezero meds for nerve related pains
lyrica is a drug my daughter is still on it to date
for her epilepsy
and i must tell all people this
if my daughter should miss her one of her doses
she is in immediately thrown into withdrawal
as much as it is a devil drug it helps her
and other than skin changes around her nails
it is a must for her
as we have independent reasons
and i gave my doctor a good piece of my mind
make no mistakes
i feel for you
anything
such as a beautiful scent in your home
cold and warm packs
use frozen peas
or put dried lentils in freezer as a cold pack bagged
dim lights
cold water at side of your bed

i feel for anyone going through withdrawal and not to
help the patient lesson the pain
love me
__________________
someone who cares
eva
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Old 03-18-2015, 09:04 PM #2
Danjia Danjia is offline
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Posts: 4
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Danjia Danjia is offline
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Default Lyrica withdrawal

Hi everyone,

I signed up especially after finding this thread a couple of weeks ago.

I have taken 25mg Baclofen (AM & PM) and 25mg Endep/amitryptaline (PM) since 2000 for supraorbital neuralgia and migraines after a boating accident 20 years ago (apart from 2008-2011 when I went off to have kids).

I was getting increasing neuralgia pain and migraines about 18 months ago so neurologist prescribed 75mg of Lyrica AM and PM. The Lyrica worked for the migraine. I felt achy and a bit fuzzy when I went on the Lyrica, but figured that was mostly because I was tired had three little kids. The muscle ache and fog have gotten worse. The migraines are at a frequency and intensity level the same as before I started taking Lyrica. Feeling very incapacitated and my brain is mush, to the extent that I can't work and I'm finding it hard to do very much of anything. Apathetic and unmotivated. I've had every test under the sun done by my GP and all they could suggest was depression or chronic fatigue Then from somewhere in my sludge of a brain I remembered reading about these side effects before I took Lyrica.

A lot of reading has found me here. Hooray! Kinda.

Big thanks to everyone who has posted before - and Doc Smith **

I can't see my neuro for another month and I am desperate to start tapering before then. I've read the disclaimers... but I'm going ahead.

I'm 12 days in and my plan is to decrease by 12.5% every 10 days. So at the moment, I'm taking 37.5mg AM and 75mg PM. I'm doing this by emptying the capsule into 40g of water and taking half of this AM (was taking 3/4 in the first 10 days). I'm going to do this for the PM doses next, to keep it evenly dosed up in my system. So after 30 days I'll be on 37.5mg AM and PM. Then I'll step it down again from there.

So far not too bad. Yesterday when I went from 3/4 of the 75mg to 1/2 it did feel like a painful day, but not too bad in comparison today. Certainly none of the more drastic withdrawal symptoms that I've read about on here (which definitely makes me want to err on the side of caution, as desperately as I want to get rid of this stuff).

I'll let you know how I go.

Danjia

Last edited by Chemar; 03-19-2015 at 06:37 AM. Reason: ** Dr Smith is not a moderator here, nor a doctor. His user name is from a TV show "Lost in Space"
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eva5667faliure (03-19-2015), Kitty (03-19-2015)
Old 03-18-2015, 09:15 PM #3
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Diandra Diandra is offline
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Default

Quote:
Originally Posted by eva5667faliure View Post
to those who are having difficulties
oh how i feel for you
it was prescribed to me
for fibromyalgia
forgot the mg but do
remember 4 tablets was
the magic number
until
the extreme side effects
palpitations
blisters in my mouth
hands and feet skin changes
including nail beds both hands and feet
as a matter of fact
when i stopped lyrica all of my nails
had a indentation in it
my ten figures and toes

here is the thing
it is around the time
i became a member of this awesome forum
lyrica was not yet labeled
still fresh on the market
point
on one of my visits
i told him there was a indescribable high sensation
he did not take me seriously
and insinuated i not follow my pain specialist
so to make myself clear
to date
i am on pain meds as a result of a
botched second surgery as i did not fuse
the first time around
so back to my meds
pain meds for the mechanical pain
unable to takezero meds for nerve related pains
lyrica is a drug my daughter is still on it to date
for her epilepsy
and i must tell all people this
if my daughter should miss her one of her doses
she is in immediately thrown into withdrawal
as much as it is a devil drug it helps her
and other than skin changes around her nails
it is a must for her
as we have independent reasons
and i gave my doctor a good piece of my mind
make no mistakes
i feel for you
anything
such as a beautiful scent in your home
cold and warm packs
use frozen peas
or put dried lentils in freezer as a cold pack bagged
dim lights
cold water at side of your bed

i feel for anyone going through withdrawal and not to
help the patient lesson the pain
love me
Eva,
Thanks for the reminder about aromatherapy at home. I had forgotten about that and it does help to calm/soothe your brain. What works for me is putting cinnamon in boiling water or lavender or peppermint oil.
My best to you,
Diandra
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eva5667faliure (03-19-2015)
Old 03-19-2015, 01:57 PM #4
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EnglishDave EnglishDave is offline
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Cool Smirk

Quote:
Originally Posted by Diandra View Post
Eva,
Thanks for the reminder about aromatherapy at home. I had forgotten about that and it does help to calm/soothe your brain. What works for me is putting cinnamon in boiling water or lavender or peppermint oil.
My best to you,
Diandra
Diandra,
I miss the days when I could burn Incense Sticks in the house, for Meditation, Health and pleasure. Hopefully, they will return soon.

Dave.
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eva5667faliure (03-19-2015), PamelaJune (03-25-2015)
Old 03-19-2015, 02:07 PM #5
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
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Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
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eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by Diandra View Post
Eva,
Thanks for the reminder about aromatherapy at home. I had forgotten about that and it does help to calm/soothe your brain. What works for me is putting cinnamon in boiling water or lavender or peppermint oil.
My best to you,
Diandra
i am so happy you gave it a try
awesome
if by any chance you eat fresh oranges and or lemon lime
use the skin that has the oils squeeze in a lite simmering
pot with your cinnamon
even drier sheets between your what i have quilted fitted barrier
and it be a soft smell while sleeping
wishing you better than your best day lately
love
me
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eva
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