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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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06-15-2012, 06:51 PM | #41 | |||
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Grand Magnate
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Those of us who suffer from chronic pain are prone to be deficient in vitamin D. Great suggestion to get tested to find out what ones needs are. I was so very deficient with Vit D a few years back that it was almost not found. With help from the doc it raised to normal. I still take D3 daily to maintain. It also is helpful with pain and depression among a few. To find out more just Google vitamin D...
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My best friends live in my computer.... . Suffered with back problems since birth...7 back surgeries to date, the last one being on 5/13/2015. Fibromyalgia, PTSD, Chronic Pain “Being my sweethearts full-time care partner, I have to remind myself, when some well-meaning friend or relative questions my methods or motives, that I know more than they do because I Live this life 24/7, and they only come for short visits.” Tamiloo . Gotta love my Olhipie! Dx'd RRMS 1986, SPMS 2004 . Watch my Olhipie Skiing.... . |
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"Thanks for this!" says: | ginnie (07-03-2012) |
07-03-2012, 06:00 PM | #42 | |||
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Junior Member
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My name is Meggie and your post caught my eye. I am not a neurologist by any means but have a very basic medical background I am more than happy to share what I know. Many of your symptoms coincide with parasthesia type symptoms which are many times caused by peripheral neuropathy (or nerve dysfunction) or neurological disease among others. Your worsening symptoms (especially headache) with strain can indicate many things, one being Chiari 1 malformation and/or syringomyelia (the latter is my diagnosis). Chiari 1 malformation is where the cerebellar tonsils descend at-least, but not limited to 5mm below the foramen magnum (basically part of your brain is getting squished out of the bottom of your skull causing a block in proper fluid movement). There is also a Chiari 0 diagnosis now but I have yet to find the parameters other than a 4 mm or less descent. Syringomyelia is a rare spinal cord disorder most commonly caused by Chiari 1 malformation where a cavitation of the spinal cord is formed by an interruption in CSF flow forcing it into the spinal cord creating a "syrinx" (similar to a cyst and shown well in my profile picture as a large white oval inside my spinal cord). I highly recommend informational searches from the National Institutes of Health (NIH) and The Mayo Clinic (Wikipedia is not a reliably accurate source) for further reading. I know first hand how debilitating these types of symptoms can be and understand how rare and misunderstood these disorders still are. I would highly recommend a consult with a different neurologist if not a neurosurgeon. I hope some of this information might help and hope for you the best. Meggie |
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08-03-2012, 03:12 PM | #43 | |||
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Junior Member
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Hi,
I can relate to your story. A couple years back I had shooting pains throughout my body. They conducted many tests that came out negative. After 6 months I discovered that my mind was sabotaging myself. I had pain in my back, forearms, ankles, knees, and neck. In other words it was fear and anger that was causing my pain. I had been in therapy all my life and used certain techniques to ease the pain. After a lot of hard, hard, hard work the pain subsided. I didn't know what was happening because those mental messages that cause the pain are very elusive. Its like they are ghosts and come during a time that our minds are most busy and uncentered. So I hope that gives you some insight. But I don't know the whole story of what is happening with you. So hopefully more people can give you some input as well. Last edited by 2000mind; 08-03-2012 at 05:33 PM. Reason: inaccuracy in story |
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"Thanks for this!" says: | ginnie (08-03-2012) |
09-04-2012, 05:49 PM | #44 | ||
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09-18-2012, 11:14 AM | #45 | |||
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Junior Member
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Have you had any motion x-rays taken of your cervical spine to see what is wrong. Just a suggestion.
Hope all is well. |
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09-18-2012, 12:38 PM | #46 | ||
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11-14-2012, 09:51 PM | #47 | ||
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Junior Member
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i have had the same pains, sensations. I've been to multiple neurologists, rhemotologists etc. I was told I did not have neuropathy. I have every symtpom of neuropathy. burning, numbness, tingling etc. Worse in the evening. Been diagnosed with maybe Lupus, maybe not, radiculapthy, and my favorite, "nothing wrong". I'm on Cymbalta and gabapetin and it helps alot with the burning, stabbing pains. My skin all over my body is extremely sensitive. I believe I have a Small fiber neuropathy, however, two biopsies said no. My pain management doctor who I really like says that those tests are extremely inconclusive. I do have herniated discs all over the place, but EVERY doctor said wouldnt account for my burning, shooting, stabbing pains all over. I do believe them. This is some form of SFN...Also, I happen to be an anxiety specialist. I've been a LCSW in the field of anxiety, panic disorder and phobias. I would bet my license your symptoms are NOT anxiety related. I do believe the symptoms can CAUSE anxiety. Get yourself to a good pain management doctor.
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"Thanks for this!" says: | ginnie (11-15-2012) |
11-15-2012, 10:27 AM | #48 | ||
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Elder
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Nice to know there are folks out there that don't think these symptoms are in your head. Yes it is the condition itself that can and does cause anxiety. More so when you are told it is in your head. ginnie
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12-29-2012, 03:05 PM | #49 | ||
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12-29-2012, 03:06 PM | #50 | ||
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Junior Member
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http://neurotalk.psychcentral.com/thread171220.html my tinnitus is ringing. I have been having tinnitus since 98 |
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