seeking more information about Central Pain Syndrome.
anyone else been diagnosed with this after traumatic injury.

I've read the general info at several medical sites, and more details at websites for CPS.
would like to know more, esp. from others who experience this type of pain & manifestations. what treatments have helped?

You probably have seen these already, but I thought I'd post them since I hadn't read about CPS before and maybe others might want to read.

NINDS Central Pain Syndrome Information Page
http://www.ninds.nih.gov/disorders/c...ntral_pain.htm

Central Pain Syndrome clinical trials link-
http://clinicaltrials.gov/search/ter...ain%20Syndrome

Dear Jo;
I am very sorry for your recent dx. I too have recently been dx'd w/ this condition but the exact cause hasn't been determined yet. I pray your case isn't as severe as mine, as I suffer almost all the symptoms system wide. I suspect mine was caused by several surgeries, procedures & meds involved w/ my spine or neurotoxicity. Of course several other causes could be the reason & I have an appt at the Mayo Clinic in January. I have suffered from RSD in both legs since 2001 but this pain has engulfed that pain that has disabled me since that time. My narcotic pain meds do nothing to relieve the dysthetic burning or other pains. Good luck to you.
Gramps

Hi Gramps,

I have the burning of CP too. Evoked burning dysesthesia from a cord injury. In addition to being roasted in acid every few days I get the great sensations of laser beams / lightning bolts / crushing of vertebrae / knife stabs / muscle tearing / electric shocks...not to mention the incredible cramping, etc.

Been dealing with it since Jan 1978. Living day to day. Have taken the meds for ever, not much relief.

Just received another denial for disability, this time due to lack of medical evidence of all things. Not giving up the fight.

Don't give up man. Some websites below:
http://www.painonline.com
http://www.centralpain.org
http://www.painmed.org
http://www.theacpa.org
http://www.paincare.org
http://www.painfoundation.org
http://www.aapainmanage.org
http://www.neuropathy.org
http://www.ampainsoc.org
http://www.yinyanghouse.com
http://www.painreliefnetwork.org

Peace & Health,
Kevin

I also get those as well as the paresthesia, numbness, spasms, etc. Thanks for the sites but I was familiar w/ most of them already. I got relief from the dysesthesia from several antibitoics, at least for the first 5 days or so. Docs told me I was crazy. I said I would have to be crazy to be begging you for antibiotics when you're offering me opiates if they didn't work. I finally found proof by two Yale professors that found antibiotics, especially minocycline relieved central pain in rats. I'm sorry you were denied disability because it's impossible to work under these conditions. I wish I could get back to the level 6-7 pain of my RSD. I don't know how severe your symptoms are but I can barely do more than sit or lay down & I'm usually not comfortable in either position. My heart goes out to you for surviving this disease for so long. I suffered w/ RSD in both legs since 2001 but when this hit, it was a whole new game. It humbled me very quickly. Take care & good luck w/ your fight. Gramps

I was just diagnosed with this too. Actually, about 3 months ago. But I suspect mine is also from spinal disorders (fusions). My Neurologist originally diagnosed me about 3 years ago with small fiber PN which she said almost didn't show up. Sooo...because of the ongoing burning, etc., etc., etc. and a hypersensitive CNS she said she was changing it to Central Pain Syndrome. And Gramps I think you are right. I take Vicodin for other kinds of pain; I call it mechanical pain. But for the neuropathic pain I do wonder sometimes if some of this isn't hyperalgesia. And forget meds like Neurontin and Lyrica...I can't tolerate the SE's and Neurontin actually increased the burning. So, I take Klonopin which helps a great deal.

Gramps, I saw that you have had CPS since 2001 in both legs, same as I, except it isn't in my feet. I am now totaly disabled, I live in my bed for second to second, the pain even on all the meds I am on, still hurts terribly. I was thinking about the mayo clinic, please let me know if they helped you? I am tired of what I call, give her, her bandaid or pain meds and go home, there is nothing else we can do for you. I just believe that there is something more, if I thought for one minute that I will be this way for the rest of my life.....oh well, let's not go there, but I believe someone knows of a great doctor and treatment to at least get my pain level to a 5. If anyone knows of any good clinics, doctors in WA State, please let me know?

hi iam becky, and have been diagose with CentralPain too and the only place it has not hit on myself is my abs and butt. is this nerve pain or like? and i would also like more information about this too if you do not mind. ammtriplene works with me but iam on 6 other meds too. my hand and feet are always numb. thankyou for your time. packey

thankyou for the warm welcome back, life just got busy nothing to do with this we did alot to are home and summer is over no more garden, but my pain is still bad it has been in my back alot that is the worse place to have pain for me. this sight has changed more stuff i like it, i hope my freinds have been ok glad to be back

Welcome prepackey.