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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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08-17-2016, 04:59 AM | #1 | |||
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No mesh insertion at this stage. Have to try and control the controllable things in hernia management until I can no longer. I'm banking on for a good long time, I have not heard many good or positive reviews about mesh hernia repairs and I have enough going on already without adding to it. Those I know of who have had the mesh surgery have all ended up in a pickle again further down the track, quite a few say they wish they knew more at the time and chosen not to have it done.
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I can still remember what life was like before pain became my life long companion |
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08-28-2016, 06:08 PM | #2 | |||
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Feeling the results of the procedure already. Pain is minimised considerably for the first time in years and tomorrow I'm attending my first Pilates class. It is run by the guru physiotherapist and only 3 of us in class. The plan is to build and develop my muscle strength in my back to provide better support for when the procedure wears off, which we all know can happen anytime within the next 6 to 18 months. Make hay while the sun shines
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I can still remember what life was like before pain became my life long companion |
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"Thanks for this!" says: | St George 2013 (09-03-2016) |
08-31-2016, 12:31 PM | #3 | ||
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Magnate
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Pam,
Not sure what you mean by control the controllable things in hernia management? When I had my three (3);( one of which was an epigastric hernia) Ventral (abdominal) incisional hernias repaired this past November, it was done with mesh... (surgeon advised to help retain closure). So a little over a couple of months later; I am now dealing with Diastasis Recti (separation of the abdominal muscle from navel; side to side and up to breastbone and down to pelvic area). I am in constant abdominal turmoil, discomfort and pain. It is almost impossible not to do straining because of my opioid pain meds causing constipation for which I take three doses daily of Miralax to try to keep things a bit runny. Also, ventral hernia repairs are at risk for recurrence. When I told my surgeon, after the Diastasis Recti diagnosis, I was concerned about hernia recurrence; he said I have "a good reason to be concerned". It appears the mesh, which was done at the time of the Ventral surgery, has not made any difference and possibly caused more problems. The mesh can disintegrate, infection, etc., etc. I had read up about mesh prior to surgery. My surgeon felt using the mesh would give a better chance for closure than using sutures alone. That was also confirmed by many of the articles I read. Gerry |
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"Thanks for this!" says: | PamelaJune (09-02-2016), St George 2013 (09-03-2016) |
09-02-2016, 10:08 PM | #4 | |||
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Gerry, controllables are
1. what you eat - no more processed foods including biscuits, breads, sugars & honey etc, cut out snacking, increase fibre in meals - I'm only allowed 12grams fibre a day so I'm closely watching & recording what I have so eventually I can slowly increase intake and avoid obstructions 2. how often you eat - Instead of larger portion 3 meals a day, I have 6 smaller portioned meals 3. increase water intake - I have a water plan that begins with 200ml cold water on rising, 400ml before each meal, 200ml with every movicol sachet followed immediately with 200ml cold water, 200ml after every cup of tea & reduced number of cups of tea throughout the day, 200ml cold water again before bed 4. reduce medicines that can contribute to blockages, hard to do as I've already minimised considerably so I've introduced the distraction method, at a time I would normally take meds I deliberately do something that takes me away from the medicine cabinet so I can stretch out the time between meds. It can be go for a walk, make a phone call, look something up on line, play a game, anything really that ultimately helps in the long run reduce the number of meds taken a day, even if it just 1 less it helps. 5. Increase exercise - I'm walking further every day and I've begun Pilates classes ps, I've lost 2.8kg & can already notice less pressure on my abdomen wall. We got told back in 2007 to avoid any further stomach surgery at all costs, I've had so many ops on my stomach over the years and the next stomach surgery likely to be fatal. Hence in 2013 when I was due to have spine surgery again they couldn't go through my stomach to do a cage & instead I had to have the metal rods fusion again.
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I can still remember what life was like before pain became my life long companion Last edited by PamelaJune; 09-02-2016 at 10:35 PM. Reason: Add comment |
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"Thanks for this!" says: | ger715 (09-03-2016), St George 2013 (09-03-2016) |
02-02-2017, 08:37 PM | #5 | |||
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Home from a very big round of nerve root sleeve injections. Went in Weds am and home late (very) that night. They wanted to keep me in but I insisted I come home. I had injected T3,4,5 & 6. L3,4 & 5 & S1. Yesterday passed in a haze, today I'm with it more, lower back seems to be responding. Upper back not so much, lots of pain on the left upper side still. Saw my Nevro specialist in theatre & agreed to meet with her within the fortnight. PM face blanched when I said I don't think the unit is working, I got the feeling he agreed with me. Will see him within the month. Now if I can get this depression under control I might feel half human.
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I can still remember what life was like before pain became my life long companion |
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"Thanks for this!" says: | ger715 (02-04-2017) |
02-07-2017, 09:53 PM | #6 | |||
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Struggling to get this severe upper muscle spasm under control, took 5mg Oxy at 4am, 1 temgesic & Valium at 7am and same again at 8am. Nothing is working. I've managed to get an appt to see my PM at 3.30 tomorrow. Hope he can help. Called in sick today including not working from home. its 11am, I'm clock watching until 12noon where I can take temgesic & Valium again. Beside myself with pain. Have even tried rolling against the wall with a tennis ball in between the shoulder blade (scapula) and spine tying to relieve the pain. I can't recall having a spasm like this since the time they put me in the mount hospital back in 2013 after I had the Nevro implant. I know my PM gave me an epidural last week along with the nerve root injections but maybe he was unable to inject the upper spine where needed because it's where the SCS leads are?? This combined with my spiralling depression & anxiety is tippping me over the edge. At 8.30am I thought the drugs were starting to work but they didn't last long at all, maybe 30 minutes. Think I will have to revert to 2 temegesic every 4 hrs along with 1 Valium every 6 hours until I see the PM tomorrow.
Edit Did everything I could to distract myself until 12noon & at 12.03 took just the 1 temgesic & Valium & in another 10 minutes will take the 2nd temgesic, so far its 20 minutes in and no relief. Pain score is about 8. Can't put myself anywhere to relieve it. Getting quite worried but at least it's taken my mind off of the depression....
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I can still remember what life was like before pain became my life long companion Last edited by PamelaJune; 02-07-2017 at 11:25 PM. |
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"Thanks for this!" says: | ger715 (02-08-2017) |
02-08-2017, 06:26 PM | #7 | |||
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Senior Member
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Got everything ready for DB so when he got home he wouldn't disrupt me, (dinner & instructions) cats done, retired dogs done and also inreadiness for the 2 working dogs coming home with him. Send him an email to say I'm going to bed & all is done, he sends back, how will I know if the animals have been fed... duh because I've told you and you will see DD3 & DD4 food in their regular spots and DD1&2 will have their bowls in the same spot as always in readiness for tomorrow morning....
Went to bed at 6.30 just as he got home fully hoping to get in 12 hours sleep with the medication I've taken. I woke up at 10, in pain, came out and he says what's wrong with your leg? Nothing why? You are holding it - I'm bent over double with pain from my back and my hand happens to be resting on my knee. Sigh, I go back to bed, wake again at midnight with pain, back to sleep & again at 2, I'm lying there thinking this is just relentless but I can't take anymore drugs. I drop off and into a deep sleep. Guess what! Numnuts DB forgot to turn his 4am alarm off, I wake up, the dogs wake up and by 4.15 I know no chance of me going back to sleep so up I get to do the dogs - again! DB has the ability as you all know to sleep at will. I know he's tired and I don't mean to whinge about him, but gees how hard is it to turn off the alarm when you know you are not getting up. I'm saying this because it's a regular occurrence unless I remind him to turn it off. So because I was abed, no reminder. Life is just not being fair to me at present. We are in for big storms apparently with 80ml expected in very short period so I've been and cleaned / done the kennels and runs (nothing worse than wet Doo doos that pooches then race through if excited). Maybe I should have been the DDO. If my health / spine had been good I think I will have been a good one. DB is excellent don't get me wrong, he's very good, but something needs to change here at home, I can't go on like this.
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I can still remember what life was like before pain became my life long companion |
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"Thanks for this!" says: | ger715 (02-08-2017) |
02-08-2017, 08:45 PM | #8 | ||
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Magnate
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You have been on "overload" for quit some time. In addition to dealing with very possible side effects of the Sleeve Nerve Root Injections; the painful back spasms are causing you to double over. I'm sure the inability to get some badly needed sleep has you just about at your "wits end"....
I just don't get it; so many men just don't seem to be able to either show or have the compassion needed to console us. I think my husband just turns the compassion dial on "off" and does not seem to realize the level of pain that is going on before his eyes. He's really a good man too. Somehow, we just seem to see they are taken care of first. How was your appointment with your PM? Hopefully he was able to calm down some of the spasms. Gerry |
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"Thanks for this!" says: | PamelaJune (02-09-2017) |
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