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Chronic Pain Whatever the cause, support for managing long term or intractable pain. |
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07-04-2008, 01:49 PM | #1 | |||
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I did not recover, am sure I never will....I stay in pain 24/7, but it seems very little is posted and I Need support in the worst way, just can't seem to fit in anywhere, I live in constant pain, have very little support system IRL, am as depressed as anyone can be, must share the same problems as at least 50% or more here but have never felt wanted or welcome...it seems when I post to a thread, that thread fades away and I don't know why?? I hung on for the first year and then gave up and closed out the browser, checking back every few months, saw no change, never felt missed, so I feel like the invisible person, online and IRL! Am I the only one that feels this way? I need people to share with the daily struggles of life, not games, and I don't know where to post, the depression threads are mainly in bipolar section so I don't know if its ok to post there, I don't know where I fit in and many times over the long months I have been at the edge of the cliff but am even afraid to come here since I can't take anymore rejections! I can't put on a fake happy face because then it would be a lie.
I have so many problems that I fit in everywhere and nowhere if that makes any sense! It is not just this forum, many is worse, too many politics, fighting, I just don't know where to go from here and yes, I have a Pro. counsular I see when at that cliff! Maybe I just don't belong anywhere! Just had to get that off of my chest.
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day! Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled! |
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07-04-2008, 02:12 PM | #2 | ||
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Yappiest Elder Member
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junie, i'm sorry the chronic pain forum here just isn't that busy. it takes time to build a forum. if each person keeps closing their browser to the chronic pain forum..it will never build.
you are very welcome to post anywhere. you will find that all the forums here are very welcoming, some just busier than others.
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07-04-2008, 02:19 PM | #3 | ||
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Hi Junie,
I have also felt that way on many occassions in fact a great person of wisdom was I quess scared away by a forum. But those of us who live with chronic pain most people don't understand. I have found luck with my family because I was just so opposite than after my accident. So I do get support but life is very, very, boring. You can alway's PRivate Message me and I will always answer as long as I get the post. Keep the faith. AnnBon |
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"Thanks for this!" says: | Curious (07-05-2008) |
07-04-2008, 02:28 PM | #4 | ||
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Yappiest Elder Member
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hi ann
i am also a chronic pain sufferer. i just don't post much about myself or my health issues. i guess i get to busy around here doing other things. but see? we already have 3 of us here today. i bet if we keep posting the next few weeks, more will follow.
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07-04-2008, 02:39 PM | #5 | |||
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Thanks for the replies and concern but in my defense I waited a year before closing my browser
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day! Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled! |
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"Thanks for this!" says: | Curious (07-05-2008) |
07-04-2008, 03:17 PM | #6 | ||
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Yappiest Elder Member
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i know for me junie, my pain is always there and i don't like talking about it. blech..makes more it real. no excape. does that make sense?
my family doesn't understand. i don't really expect them to. they aren't in my body, so they cant feel what i feel. i did misunderstand about closing your browser. i'm sorry.
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07-04-2008, 08:08 PM | #7 | |||
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Well it is great that people here have others to talk about it with, and maybe I would feel the same if I had a support system at home...but I have no one! I have one son that tells me I look like the letter C and the rest just say I fake...guess thats why Dr gives me 300mg of long acting ms and 30mg of fast acting daily, and the valium is so I can pee, otherwise it is self cathing. Maybe one day I will find a place with people like me that has no one.
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day! Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled! |
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"Thanks for this!" says: | Curious (07-05-2008) |
07-04-2008, 09:06 PM | #8 | |||
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Community Support Team
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Quote:
We have a Depression forum here - http://neurotalk.psychcentral.com/forum37.html and General Mental Health & Emotional Support For all general mental health or emotional support issues. http://neurotalk.psychcentral.com/forum85.html Or even some of the other forums - Sanctuary -This "Sanctuary" is a place for people of all spiritual beliefs and faiths to offer support and compassion to each other in the form of prayers, meditation, and expressions of spirituality. This forum is for support, not religious debate. http://neurotalk.psychcentral.com/forum27.html
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Search NT - . |
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"Thanks for this!" says: | Curious (07-05-2008) |
07-04-2008, 09:31 PM | #9 | |||
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Senior Member
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Well HELLO there Junie!!!! I am very pleased to meet you!!
I may not suffer from chronic pain but I see that we do have something in common!!!! We are both diabetic!!! The diabetic forum here at Neurotalk was so slow a while back and I felt very alone...I was also on the alcoholism forum and it was really quiet as well. They have both picked up now and I LOVE it!!! Please drop into the diabetic forum Junie!! There are several members that are WONDERFUL !! I know they would be pleased to have you around!!! Hope to see you soon!!!!!
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"Thanks for this!" says: | Curious (07-05-2008) |
07-04-2008, 09:41 PM | #10 | |||
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Member
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Thanks everyone, but I no longer have tle with diabetes, my labs last month (and last 2 years) have been normal because I never want to eat...and as far as anti depression meds, tried them all am now I am super sensitive to just about all meds so I take as little as possible. I know I mainly need just pure and simple human contact but I don't know where I would fit in anymore??
Maybe if there was a forum for misfits??
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Back injury 1999, PN,DDD, Spinal Stenosis, Arthritis, Chronic pain, Lumbar Fusion 6-06, Pain Worse then Ever Since!10-10-06 Arachnoiditis! CES! now numbness from waist to thighs, bowel, bladder paralysis, self caths, chronic constipation. Left sided weakness! No appetite depression! Bed 22 hrs day! Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled! |
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"Thanks for this!" says: | Curious (07-05-2008) |
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