Hello everyone,

I want to thank you for your support!!! It means so much to me to be able to have people listen. Not too mention being able to relate what I am going through.


I have to report that one of my recent appointments was a complete and total waste of my time and I just can do it anymore. I no longer have the energy or the ambition to keep this up. According to these doctors (Supposed to be the best? Ha, that's a good one) there is nothing wrong with me.

Well then if that is the case why the He** does my neck, lower back, right hip, right leg & both feet writhe with pain? This doctor looked at my medical records and excepted them as gospel would not take into account my new symptoms or order any new testing. They told me this is not peripheral neuropathy because it does not present the way I am describing it and they said they would not have been able to touch my feet due to pain. UMM? GUYS, HELLO? YOU COULDN'T TOUCH MY FEET DUE TO THE PAIN !!!! REMEMBER ?

I am so upset no one is of any help including my girlfriend. she says she is but everytime I try and talk to her she does not want to say anything. The only person who is helping is my pain doctor and for that I am ever thankful but how long will he continue to Rx pain meds when all the other doctors tell me that there is nothing wrong?

I am to have a bone scan done which was ordered by a Rheumatologist but why bother it will only help prove that there is nothing wrong. How can I hurt this bad, Why can't I feel my feet, How can they not find what is causing this? Personally I am really starting to think that this might be diabetes related. Everytime I eat something high in carbs or sugar, I become hot sweaty, nauseous, my vision goes phunky, and my pain and numbness goes through the roof.

the only problem with all that is my latest blood tests have been normal after I stupidly eat such foods. Of course no one wants to hear what I have to say, because I am a foolish person who is making all this up. SIGH, WHAT ON EARTH CAN I DO THAT I HAVEN'T ALREADY DONE?

Again I say thank you for listening to my rant. I've had the day from He** and the 8 hour drive on top of it not to mention the raging sinus infection has not helped.

i am sorry you are in such pain quahog. and it really is the pits when those the closest don't understand. i live that too.

have you thought of hypoglycemic? ( ok..i'm the worst speller...) did you have the fasting diabetes test done?

don't give up on trying to find the answer or the righ dr who will listen. me....i got rid of the nay sayer dr's that only give me doom and dispare for a dx. nope....not going to give up and give in to it.

just remember quahog, you are not alone here. i may not always have the right thing to say....but i'm a good listener...and i always have treats.

YES!!! There are times when I am totally gung-ho about going to doctors appts and working on my pain issues. Then there are times when I say I have had enough and I need a vacation from these same doctors. I know they are trying to help me but sometimes what they call help, hurts more. Like all of you have been through tests up the waazoo, doctors coming out my backside, specialists the same way. It seems my full-time job is going to appointments right now. Eventually I will get sick of it and taper it off, but right now it seems my body needs the attention from PT and TPIs. Lovely huh?
Well, the best advice I can give you is to keep fighting when you feel you are being talked down to or shrugged off. You have to be your own advocate, unfortunately no one else will.
Good luck!

Oh Quahog,

I am so sorry that you are having such a tough time right now! It can be very discouraging when you have one test after the other and they can't find the answers. Please don't give up! There is a reason you are having problems and if you need to keep asking for test after test until they can find the answers.

I wish I could help you more but know that I'm here if you ever need to talk.

Take care!
Linda

Quahog,

One of the spinal docs I saw insisted that I have a fasting glucose tolerance test. You might want to insist that your pcp send you for one...I did test high, but not high enough for medications...I think the high doses of steroids I was on for sinus infections threw my sugar off...I seem to always be on some sort of steroid whether it be a shot or a pill....Steroids can cause sugar to escalate.

Quahog, that is one of the worst and most frustrating places to be in!!! I have gone through years and years of getting docs who have told me that the problems in my back are not enough for pain. I have others who said, "Yes, Indeed! Lots of pain!" I've had a few that blamed fibromyalgia, and had a couple that do not believe in that. I prematurely turned very gray at about 40, and it does not run in the family. It is obvious that I am in severe pain, and STILL there are some that say it cannot exist. To h*** with them. Move on. Find docs who are genuinly compassionate, and believe you. Some do not advocate shopping docs. But, I do. I just started with a Rheumatologist who has changed my meds and is trying to find the right combo for me. What I have is not fixable. Right now, the meds are not working, but it has only been 8 days, and I am sure that she will either up it, or change it next visit. Don't give up hope. That is the worst thing we can do to ourselves...or, that we can allow imcompetent docs to do to us!!!

sally