Hi there to all who read here! I am a newbie to these forums. It will be good to be around others who understand! Chronic neuropathic myofascial pain is one of my main problems, which I have been managing for 20 years now. Whew! Good to meet you all! TC Call me JD, ok?

Welcome! Wait until the whole gang gets here!

Mama

Hi all ~

I just wanted to say Hi and I am glad to see so many found this place. I have posted the link to this board on Spine and beyond (See my signature here). I know I have a few who are looking for BT members so I am sure they will check the board out.

Shirl

Thank God for DocJohn for creating this. Hi (((ponyboy))) good to see you again. It'd been a while since I posted on BT, so I was so disappointed to see it had went down. I'll be so glad when John get's it up and running again. Hello to all and I'm glad to see that people are starting to find this forum.
God bless you all
mariah

Not having BT all summer was like being grounded as a kid or having your bike taken away!

I have had so much pain lately, I do not know what's wrong. Could it be that I live in Nevada in 115 degree temps? I started Mirapex for Restless Legs, could that cause a breakdown of my pain meds? Anyway, later for these questions, today is a good day and a cause to celebrate!

nancy-h

Hi Nancy, good to finally "see" you on here. It has been a hot one this summer! Have you kept in touch with the rest of the gang. I have been very worried about Billie? I am hanging in there, trying different meds to try and get pain under control. I am taking Topamax now but so far nothing positive to report. Well hop on that bike and go for a ride ...Sue

Oh man......if I could do cartwheels I would be doing them all over my house with some leaping backflips, too.....
Blessings...
hummer

Hi Nance,

I went off my Mirapex and take it only when my legs get really bad as I was like you falling asleep at the drop of a hat. I was feeling so weak and having a lack of energy and just thought it was be going through a bad spell. Now that you mention it Nance I've noticed an terrible increase in my pain since I started Mirapex maybe it increase PN pain. I need to look at the side effects and see what it says.

You have a good weekend.

Love Lynners

It's so nice to see some friendly faces. I have thought of many of you with sincere sadness that those I've missed so much don't even know it.
I hope when the boards come back that the bickering will stop and all will enjoy the positive they have missed so much.

The lonliness I've felt is real and the fact that "this too shall pass" is truly a relief to my spirit.

Peace and Hugs to all!!!

Hey Liz. Don't know if you or anybody else remembers me...been a while. Might be known as sakky.

Ma-ma...know what you are going through...even though my pain is different. Hold up the faith. It took over a year for my proper diagnosis, and much longer to find the proper pain relief. It also took a lotr of time before I agreed to take pain meds. You will see.

Nancy-h...Yep! 115 degrees can have everything to do with it. High temperatures aggravates EVERYTHING!!! Although it has not been called RS, I have always called it muscle spasms. Haven't found anything that cures it. Bur, I am going to a Rheumatologist for the first time in my life, and am hoping. Good luck!