Originally Posted by ladyrock

hi my husband has lver disease, 1 year ago he seemed fine. he went for a check up and found he had cirrosis stage 4 and hepc .he was started on pegitron and rivabirin, it didnt work, he was lost over 100lbs he was been coughing up alot of blood ,he is very weak has temp of 101 to 102 he can barely walk at times blood presure has gone very low. we have been trying to get him on disabiliy nothing yet ,im tryin to take care of my husband and work every day for the past week im afraid i ll come home and he will of died,we have no insurance because i cant afford to pay it and the bills,he work in construction up till 5 months ago.i dont know where to turn ,for help he wants to die at home and has given up, we have only been married 1 1/2 years my heart goes out to anyone else that is going threw this .....

Originally Posted by gambles

i'm sorry to ask such a difficult question, but i don't know where else to turn. I used to sign on here all the time way back when for my pain issues.

Now i desperately need to know what to expect. My husband has been fighting liver cancer for four years. They have run out of things for him to try. He seems to be going downhill very rapidly.

I'm going to be very specific about his condition so that if it sounds familiar to anyone or if anyone just know someone/someplace else i can ask, please let me know that too.

In sept. He was working and doing everything normally. He actually had a coworker who commented that he couldn't really be sick because he looked so healthy! Then after four years of nearly continual chemos and surgeries, he had a chemo embulization which make him very sick. He has been running a fever since sept! He also started coughing at that time.

In the past 2 weeks he has had three blood transfusion since his hemoglobin is in the toilet. They dont' seem to take.

In the past week, massive pain, exhaustion (he sleeps almost 20 hours a day and can barely walk from one room to another) he can't eat or drink. All he is getting in is force fed ensure which will obviously just make him weaker.

Today, he face got all yellow. I know that means the healthy liver cells that had been keeping him so healthy for all this time are failing.

I need to know what to expect. I can't ask the doctor with him in the room. He hasn't given up and i don't want him to know that my hope has run out in the past few days.

I need to know if there is a common time period it takes for a liver to fail completely and what happens after that??

Somebody please help me if you can. I'm desperate. I know this is the wrong board for this post, but it used to be my board of comfort and i know nothing and can't find any cancer boards that are active.

Any little glimmer of information on the actual process of dying will be greatly appreciated. I don't even know if and when i'm supposed to take him to the hospital or if there is nothing they can do, do we just stay here.

My spinal injury makes this difficult because i can't physical stay at the hospital, and even be able to move the next day.

Thanks for letting me post. Even writing this helped a little

suzanne