Thanks everyone! I am feeling much better today emotionally. Physically...eh. Same.
When Todd came home from work last night, I was up because of the steroids. Todd looked at the package and said you realize that this is prednisone right? I was floored! I thought it was depo-medrol in a pill!!! Stupid me! The last time I took prednisone, I was up all night and agitated. So I immediately decided to not take day 2 or any more of the steroids! I tossed them down the toilet! I was up part of the night but eventually I settled down enough to get some sleep.
Luckily, I have appointments today with my therapist and my psych nurse practitioner and I will be talking about these issues with them. My poor therapist is about to get her ears talked off today that is for sure! I will be asking them for some help for a new doc today and see what I can do about that. I am still waiting from a call from my pcp for recommendations for an orthopedist and I will also ask him about an neurologist as well.
Boopers, I have been diagnosed with Fibromyalgia, Sciatica, Piriformis sydrome, L4-L5 disc bulge and tenative diagnoses of SI joint disfunction of some sort and a pinched nerve.
Sims you are right, I live about 40 minutes, depending on traffic outside of Boston.
Liz, Todd does not want me to take any pain meds and bezos because according to him I abused them and he doesn't want me going through that again. I don't think he has put together yet that it was part of my undiagnosed BiPolar issues (manic period) that caused that along with the need for better pain control. Of course I can't convince him of that.
Well....here is another long post I have written. The ironic thing about this is I am such a advocate for proper pain control for those who are not gettng the help they need and here I am falling into that hole now.

Wendy,
how did it go today?
I pray you had good luck.
You know, people assume that because we are desperate that we are addicts. What we are is desperate for some relief from this hell.

I get like that with steroids, plus i get a lil whacked around 7-10 later (for a few hours).

No more of those for you.

Hope you feel better soon.
hugs,
sims

Wendy,

I know it stinks but I think it is time to try and find another pain doctor.

It's too bad you don't live closer to Lewiston Maine because there is a wonderful doctor there that I see. I also know of some good doctors in New Hampshire but unfortunately I can't help with any in Boston or Mass for that matter. The only experience I have is with Brigham & Women's hospital and they weren't that helpful.

Sorry you are in so much pain and oh I agree with you for saying no to the neurontin, that stuff is evil incarnate.

Glenn

Thanks everyone. My therapist was in total agreement that what the doctor did was wrong. Seeing that a patient was hurting should illicit some sympathy but unfortunately some docs don't do well with that. She also agrees that it is time to move on to another doc. Unfortunately they are so hard to find around here for pain issues. I wish I lived the areas that docs would help me.
I guess I have to start my search yet again. More disappointments, denials and heismans (the block).

Hi Wendy
I am sorry that i missed your post.
I can soo relate to what your going through!!!
It's a real shame that these doctors wont listen to us...
Cant they see the misery in our eyes??
I can surely tell when someone is putting me on and when they are in true
misery!!!
I hope that you are able to find a better doctor somewhere in the near future.
Here's to brighter days my friend!!
{{{{{{{{HUGS}}}}}}}}}
~Kell

Wendy,

In the area where I live, there are no pain management doctors or clinics in a 30 mile radius. The closest pain doctor would be a 45 minute drive - and that pain doc only does shots/injections.

So when I started trying to find a pain doctor I thought I was going to end up with nothing.... but my psychaitrist helped me find a good family medicine doctor and she became my primary care physician and my pain management doc.

I also remembering seeing a member of this forum a few years ago who found a DO (osteopath) as a pain doc, and someone else had a physiatrist (physical medicine) as a pain management doc.


Do you have a cancer center near you? Oncologists tend to know a lot about pain management, and I remember someone from the forums once had to move to a new city, and they called the local cancer center and asked who the oncologist refers patients to for post-cancer pain management -- and they got the name of a great internal medicine doctor who was a good pain management doc.

Sometimes you find a pain doc in an unlikely place, so hopefully you can find someone in your area.

Also - maybe printing out the "report card" and "evaluation guide" from the pain policy link I put in this following post would help to give one of your current doctors (and maybe your husband) a wake up call??

http://neurotalk.psychcentral.com/showthread.php?t=5911


Take care,
Liz

Thanks Kell and Liz. Liz, I was thinking on the same lines as you about calling an Oncologist's office. I feel kinda funny doing that though.
Today was a painful day. I needed to fill my new depakote script and go grocery shopping. Luckily they are in the same plaza. But when I got home my hip was in agony and barely had enough oomph to get things put away. Then once Todd left for work, I have been asleep for most of the day.
I knew that this topic would resonate with everyone. I just didn't realize so much.