[justjane37]

Hi,

Neurological issues in general are invisible, difficult to diagnose and to treat.

I have Type 2 Trigeminal Neuralgia. Like so many others my journey started off in the dental chair.

There is a huge lack of knowledge by dentists and doctors in regards to any neuropathy in the face, whether it is neuralgia or neuropathy from injury. Because of this many people have unnecessary root canals and extractions only to be left in chronic pain. I am on a mission to raise awareness about this.

I see so many posts in your dental section that could be cases of neuropathy. The possibility seems to be ignored.

The problem with this is that neuropathy can mimic a toothache, TMJ, jaw pain and ear pain very well. Neuropathy can also mimic infections, ear infections and sinus problems.

Considering this is a website about neurological issues I feel that this is great injustice.

Thanks,
Justjane37

[DocJohn]

This is a support forum run and maintained by its members. If you want to have more posts on a particular subject in a particular forum, feel free to respond and add your opinion.

You should phrase your opinions as just that. We don't want or expect our members to be in 100% agreement with one another, so please don't insist that another person's opinion is wrong just because it doesn't coincide with your own.

Thanks,
DocJohn

[justjane37]

I do chime in whenever I see the issue being ignored.

I am not saying that another person's opinion is wrong. Just as I wouldn't expect everyone to agree with me.

You are clearly missing my point here. Like I said I sent two private messages to the Admin with no response.

Have a look through the section and maybe you will see what I mean. It is one thing to post your opinion and offer from your own experience. It is another thing to offer a medical opinion and possible diagnosis--to the point that people are posting their xrays for this one person to review--especially when you aren't a dentist or a doctor.

It's a fine line is all I am saying. People in dire, chronic pain are very vulnerable. I have been there.

And to take your own advice--this person disagrees with possible neurological causes over and over again. Enough that I have stopped trying to interject and give my own opinion.

Originally Posted by DocJohn

This is a support forum run and maintained by its members. If you want to have more posts on a particular subject in a particular forum, feel free to respond and add your opinion.

You should phrase your opinions as just that. We don't want or expect our members to be in 100% agreement with one another, so please don't insist that another person's opinion is wrong just because it doesn't coincide with your own.

Thanks,
DocJohn

[DocJohn]

Report posts that you believe are crossing the line with our community guidelines. Nobody here should ever be giving definitive answers or dismissing other people's opinions. People share their health data with other members here all the time -- that's a part of what people feel comfortable doing here sometimes. There's nothing wrong with that, as long as people know the risks of doing so, and remember that nobody here is giving medical advice that you shouldn't first check with your own doctor about before taking.

I'm sorry to say that none of the admins have received any PM from you regarding this issue. If you could go into your Sent PMs folder and forward the PMs you sent to me directly, I can look into that matter further. Thanks.

[justjane37]

Thank you for your advice and for listening.

I didn't send a PM. I sent two messages to the "Contact Us" for the forum administrator.

Also a good reminder for me to keep chiming in when a situation catches my eye.

Trigeminal Neuralgia is often misdiagnosed as a dental issue and it is very important for people to be aware of it.

Originally Posted by DocJohn

Report posts that you believe are crossing the line with our community guidelines. Nobody here should ever be giving definitive answers or dismissing other people's opinions. People share their health data with other members here all the time -- that's a part of what people feel comfortable doing here sometimes. There's nothing wrong with that, as long as people know the risks of doing so, and remember that nobody here is giving medical advice that you shouldn't first check with your own doctor about before taking.

I'm sorry to say that none of the admins have received any PM from you regarding this issue. If you could go into your Sent PMs folder and forward the PMs you sent to me directly, I can look into that matter further. Thanks.

[Chemar]

Hi
there was only one Contact Us message from you that we received (no PMs) and it was responded to on the day you sent it (August 8th) with pretty much the same response that DocJohn gave you here.
If you do not see it in your inbox for that day, it may have gone to your junkmail box. I can forward the response to you again from our Contact Us mail sent box if required

[justjane37]

I sent one recently and one about two month ago.

I did not receive a response as far as I can see.

You are all listening now so it is a moo point. You do not need to forward it to me. I was frustrated that I didn't receive a response for, what I feel, is a valid problem.

Originally Posted by Chemar

Hi
there was only one Contact Us message from you that we received (no PMs) and it was responded to on the day you sent it (August 8th) with pretty much the same response that DocJohn gave you here.
If you do not see it in your inbox for that day, it may have gone to your junkmail box. I can forward the response to you again from our Contact Us mail sent box if required

[Bryanna]

Hi justjane,

I wholeheartedly agree with your statement..
"Neurological issues in general are invisible, difficult to diagnose and to treat."

I also know of many hundreds of people who have TM from suspected dental procedures, long standing oral infections, anatomical deformities, trauma to the head or face.... the list goes on.

I also agree about the lack of knowledge of TM with many dentists and doctors. I also agree there are times that root canals and extractions have been done needlessly as I have witnessed this injustice countless times.

I am aware of the most commonly mentioned symptoms of neurological issues. I believe that there are many other symptoms that may be common also but they are often missed.

I am sure you are well versed on TM as who would know better about that other than someone who has it? The point that you may not be able to comprehend regarding root canals and other jaw bone infections is that there is a biological component to these which is by far not just tooth related. The pattern of bacterial infection in the mouth can be microscopic and very widespread affecting branches of nerves in a very broad sense. The severity and length of time the bacterial infection and inflammation is present the more likely it is to lead to neurological problems.

Sometimes once the neurological problem has occurred, there is little hope of reversing the damage. But that does not mean that the likely culprit of that problem should remain to only cause further damage. An example of that would be.... a root canaled tooth which is a brewing infection, is eventually extracted.... however the damage may have already done. The patient may not have had neuro type symptoms prior to the removal but ends up with them afterwards. Was it the chronic infection, inflammation, and irritation that caused the neuro issue or was it the extraction? Not all infected teeth have symptoms, therefore, it is very possible (and common) for someone to have an infected tooth (root canaled or not) and not even know it until it shows itself either with physical symptoms or radio-graphically.

In my opinion, the depth of oral and jaw bone infections and as they relate to infected and root canaled teeth, should never be dismissed as a possible culprit to a neurological problem like TM. In my opinion, other than trauma, it should be the first area to thoroughly look at and be properly diagnose.

I value your opinion and understand that you are seeing this problem from your personal perspective as the knowledge regarding the association to root canaled and infected teeth is kept under the covers more often than not by the dental and medical professions. This is actually a hot topic when dentists get together in their little pow pows because various neurological conditions are being seen almost daily in their practices. However the last thing they want to admit is that these issues could be dental related. Especially when it comes to endodontics as this is an extremely lucrative procedure to perform and that is why more often than not extractions are not even offered as a first line of defense when a patient has an infected tooth.

There is much more dental related neuralgia than most people (dentists and doctors) realize. My purpose for being here is to offer information that is often neglected to be mentioned to the patient by their dentist or their doctor.

Please understand that I am not dismissing the significance of TM or other neurological issues..... I am just knowledgeable about the anatomy of teeth and how infection and inflammation can progress to cause or contribute to systemic problems.

Bryanna

Originally Posted by justjane37

Hi,

Neurological issues in general are invisible, difficult to diagnose and to treat.

I have Type 2 Trigeminal Neuralgia. Like so many others my journey started off in the dental chair.

There is a huge lack of knowledge by dentists and doctors in regards to any neuropathy in the face, whether it is neuralgia or neuropathy from injury. Because of this many people have unnecessary root canals and extractions only to be left in chronic pain. I am on a mission to raise awareness about this.

I see so many posts in your dental section that could be cases of neuropathy. The possibility seems to be ignored.

The problem with this is that neuropathy can mimic a toothache, TMJ, jaw pain and ear pain very well. Neuropathy can also mimic infections, ear infections and sinus problems.

Considering this is a website about neurological issues I feel that this is great injustice.

Thanks,
Justjane37

[Vowel Lady]

I too wish there was more information available on the dental forum to help those of us who have either been injured or are in a confusing state indicating neurological damage. However, these forums are open to people who are simply donating their time and sharing their experiences or knowledge and I suppose that might not fully include neurological information/ implications.

I had dental work that resulted in permanent pain and two neurologists, a pain management physician, my GP, an oral surgeon who is also a Medical Doctor diagnosed me with ATN caused by dental work, so I am CONFIDENT of what happened.

But, I do have dental concerns and I like and appreciate the dental information brought up for CONSIDERATION.

But I also see where neurological damage should be brought up for consideration when nerve related symptoms are present!!!!!!!!!! This is vital.

Jane, I think we might consider referring people to the TRigeminal Neuralgia site here and also to the varying Associations that might be able to help those who have been hurt in the dental chair and might now need the care of a neurologist. Or variations...people with some sort of confusing (what seems like) dental-related pain that should consult a neurologist before they agree to dental procedures such as a rc or an extraction!!!! I am forever grateful to the Oral Surgeon/M.D. who flat out apologized to me for the dental profession, told me I had been injured, to stop seeing dentists and to see a neurologist as soon as possible.

Sadly, I think it's hard for people to cope with seeming dental pain and then have to see a second doctor. I lost one tooth from this madness and if that oral surgeon/MD hadn't helped me like he did, I probably would have lost many more needlessly (extractions). So, I think it would likely be a service to suggest to anyone on the dental forum that before they rc a tooth or pull a tooth if they have what looks like nerve damage, to speak with a highly trained OS (at the very least) or a neurologist (better). Geez, I am sure, just like myself, you have heard from MANY sad people who have had needless dental procedures due to nerve pain. The authors of the book Striking Back talk about it a lot.

Wishing you MANY low pain days in 2015 and success in your mission. Blessings.

[justjane37]

I actually left this website for a few months after I started this thread. I was very upset and angry that what I had to say about the dental forums was not taken seriously.

Bryanna and I have discussed this topic many times, in public and in private. The views I have expressed about Trigeminal Neuralgia, Neuropathy and nerve damage are more than just my "personal opinion" just as the info she distributes is more than hers. Neither of us are specialists.

Not all neurological problems in the face are due to an infection. This possibility is not being addressed properly. So I guess that is where Vowel Lady and I come in.

There is so much that misunderstood, unknown and down right confusing about this. It is a "hot" topic for sure. I search the dental section looking for possible cases of neuropathy and will continue to do so. Awareness needs to be raised. And I think a site with the name "Neuro Talk" would be a good place to start.

Originally Posted by Vowel Lady

I too wish there was more information available on the dental forum to help those of us who have either been injured or are in a confusing state indicating neurological damage. However, these forums are open to people who are simply donating their time and sharing their experiences or knowledge and I suppose that might not fully include neurological information/ implications.

I had dental work that resulted in permanent pain and two neurologists, a pain management physician, my GP, an oral surgeon who is also a Medical Doctor diagnosed me with ATN caused by dental work, so I am CONFIDENT of what happened.

But, I do have dental concerns and I like and appreciate the dental information brought up for CONSIDERATION.

But I also see where neurological damage should be brought up for consideration when nerve related symptoms are present!!!!!!!!!! This is vital.

Jane, I think we might consider referring people to the TRigeminal Neuralgia site here and also to the varying Associations that might be able to help those who have been hurt in the dental chair and might now need the care of a neurologist. Or variations...people with some sort of confusing (what seems like) dental-related pain that should consult a neurologist before they agree to dental procedures such as a rc or an extraction!!!! I am forever grateful to the Oral Surgeon/M.D. who flat out apologized to me for the dental profession, told me I had been injured, to stop seeing dentists and to see a neurologist as soon as possible.

Sadly, I think it's hard for people to cope with seeming dental pain and then have to see a second doctor. I lost one tooth from this madness and if that oral surgeon/MD hadn't helped me like he did, I probably would have lost many more needlessly (extractions). So, I think it would likely be a service to suggest to anyone on the dental forum that before they rc a tooth or pull a tooth if they have what looks like nerve damage, to speak with a highly trained OS (at the very least) or a neurologist (better). Geez, I am sure, just like myself, you have heard from MANY sad people who have had needless dental procedures due to nerve pain. The authors of the book Striking Back talk about it a lot.

Wishing you MANY low pain days in 2015 and success in your mission. Blessings.