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Hello DocJohn,
I am a new member here on neurotalk, but not new to the health field or health related cyberspace forums. Your site is a great way for people to connect with others all over the world who may have similar concerns. I am requesting your consideration for a "dental" forum. I am not a dentist, nor do I want to advertise or solicit any aspect of dentistry. Very simply, I have 30 years <and counting> of vast clinical experience in the dental profession and I know that everyone has dental issues that they would like to discuss with others. The Mayo Clinic put out a great article on how dental health affects ones overall health. If you care to read it, here is the link: http://www.mayoclinic.com/health/dental/DE00001 Your consideration would be most appreciated! Thank you ! Bryanna |
new forums?
Members who have no DX ought to have a place to post, I think. And I second the brain trauma request. If there were members overflowing here, I'd like to see a leukodystrophy forum - it's mainly a children's disease but some of us also have an adult onset form. I do not think their are other leuko adults here besides me, but you might be able to attract some.
I note that NIH and another site, a children's hospital in Wash D.C., have both started soliciting patients with undiagnosed leukos for their respective projects- they both want to determine the genetic links for this group of people since unknown leukos are the 2nd largest grouping of people with myelin or white matter disorders after, of course, MS,.So something is up with the research guys. Albee Messing at U. Wisc. got a large NIH grant for Alexander's Disease, the rarest of the known leukos. The defective Alexander gene play a critical role in nerve repair which probably explains the interest. I also suspect that MS has proved too complex, and easier solutions could be found through studying the leukos, but what do I know. I only have half a brain left. |
forum for POTS
any possibility of including a forum for "POTS" or dysautonomia? thanks,
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Olsen, have you posted your request on the sticky for new forum requests? http://neurotalk.psychcentral.com/showthread.php?t=2849
Maybe one of the mods could just move your request into that thread. I've heard of POTS, but have no real idea what it is. I'll have to google it, and will watch with interest to see if you get your forum. Hugs, |
moved to new forum requests :)
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Doc John,
Can we please have a Cauda Equina Forum here? I have Cauda Equinathat was missed post op for a lumbar fusion and would like to have the forums to discuss issues specifically related to the problems with Cauda Equina i.e. neurogenic bladder, bowel issues, nerve issues, etc. Thank you in advance, Sandi M. |
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Pcos
I didn't see this when searching this thread. PCOS - Poly-cystic Ovarian Syndrome.
I would love to see a forum for this one. Two of my daughters have this. One has it fairly badly and the other just a bit. It's come down to them from their late father's side of the family. Even after all the research I've done I still don't know much about it. It causes all kinds of secondary problems such as insulin resistance...or is that glucose resistance? I get confused. The common treatments include the Pill and Glucophage. One of my daughters was on the Pill for this and she ended up with a blood clot in her lung at age 17. The one that has it the worst is now scared to take the pill and currently is not on any treatment for it. There has to be more and granted, I've not done any *recent* research on this condition. Maybe a forum here for this might help centralize the information. Thanks! |
I was diagnosed with it when I was a teenager also. Back then they didn't give any treatments or at least none were offered. I had Very painful breasts most of my life due to this and also I have cysts under my skin. Not many just some. One in a prominent place on my body once. When I asked a doc to open it and clean it out he just said put heat on it, I did that for months with no results. Eventually I opened it up myself and squeezed all the stuff OUT of it. THAT took me months, a little at a time. I haven't had much luck with doctors anyway and don't put much stock in what they say.
I'm sorry about your daughter. But I have a suspicion that it's not a disease but a condition that has been Labelled a disease. We can live with it. I have. My periods have stopped now fo 5 years and many of the lumps and bumps have gone away. I think our female hormones feed them during our child bearing years. And once we get past menopause, well, the lumps and bumps go away. This is just My experience. Since I had my period since I was 9 and I am now almost 59 I'd say I have had a lenghty experience with this condition, FIRST HAND. |
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