Karen,
Doc John does look at this thread.

It is hard for me to understand what you are asking for?
Do you want a forum to discuss legal issues? Advocacy?

The other thread you mention was more of a general commentary it seemed rather than a forum request, whereas yours seemed to be a request and so seemed more appropriate here.

If you feel this is a matter of high priority, you can also PM DocJohn with the request

OH, I see what you are saying.

I got a few more hours sleep last night and it's as if I'm a whole new person.

I get confused at the best of times, but when I don't sleep things get muddled in my mind much more rapidly... :confused:

Because Cloudz posted that link, it may not be so ... but of course I can't think of the word... "dire" is not the right word...

What I think is that in the next year or so a lot of people are going to be sick that might not have been if this whole mortgage mess hadn't happened. And some of those people are going to come here.

I know the lawyers took advantage of my disability.

Not all lawyers may be that dishonest, but some... well, could be.

So maybe what I discovered could be of use to others in a similar position.

Though of course I'm not remotely interested in doing legal handholding.

It's just that it's so stressful... and when I was in bankruptcy before I know that a good portion of my creditors violated the stay, and the damages they had to pay were what I used to pay my honest creditors...

I think it's relatively easy to do court things if you have an honest court and stay on track...

Okay... I better go do my court things...

:)

Thank you for your concern, I appreciate it a lot.

:)

new forum requests/con
 

You hear, you read, you see on TV about all the folks who have gone thru ever extensive doc visits and testings only to be mis-diagnosed. On another board recently, I read of a GPwho had a wife diagnosed with GBS/CIDP...he'd only heard of it in his early training and of only one case. Here HE was on line to a group of 'patients' asking for help and support? Where were the PROFESSIONALS? In a closet?
I guess this is a two fold request? I would not want an 'ask the doc' kind of exchange, rather one about HOW we both could communicate with each other in either a better vocabulary or descriptive way, or how we as patients should have an idea about what we say, how we say it could be more effective [thus effecient] and lead us BOTH to a shorter diagnostic time/test effort. We do need to communicate, but I am sure that docs have 'horror tales' WE could truly learn from?
The other aspect is that some of us are what could be considered in the medical realm 'complicated' patients....That can be an 'interesting' aspect for docs [doing run of the mill stuff] or it can be viewed as TROUBLE, by others. Yet such patients need help...When one docs ego for example contradicts his initial diagnoses with a statement that 'you don't send me gifts or nice notes any more', then contadicts all his prior diagnoses on a disability form...well, one begins to wonder IS it the Patient or the DOC? thus what resources are there to find out and Could this doc 'blacklist' a patient as being difficult, when they are merely medically complicated. This latter aspect I have been trying to search about on the web for the last two days...I find so much is not above board that IT TRULY SCARES ME? In light of all these prior disasters I am beginning to think that I should NOT be as honest with my docs as I should/have been in the past. There is no venue that I am aware of that could facilitate the whys/hows of better patient doctor communication than that here.
Honestly, without an honest communication we all cannot progress from step a to step b....IF there is a step b. If we cannot get to step a, or are prevented by a prior doc's biases, we all need to know?
Thanks Doc John, for even reading this rant, I feel it has a bit of validity...but how to open communications between doctors and patients in this remote sense could be both a tricky and neat thing to pull off. Somehow I have the feeling that you might be the magician? Thank you in advance. - j

Lyme forum request-
 

I strongly request, BEG that Lyme be made into

Lyme & TB Coinfections

or

Lyme & Other TBDs

and that

Shingles, Herpes & other Microbial Conditions

be a separate forum because Lyme is a gram-negative tickborne bacteria and there are MANY other TBDs and viruses that ARE associated with it and shingles & herpes are not and it may give a discordant idea of reality to lump them together. And it is ultimetly, not useful or helpful to have it that way!!!

Other TBDs that have neurological sequelae that are tick borne include:

the TBD viruses- TBE, Powassan, DTV, Colorado Tick Fever

HGE & HME Anaplasmosis/ Ehrlichiosis
and the piroplasms- Babesiosis in all its strains-

All have gross neurological sequelae-

***************

Pleeeeeeeeease?????

It makes, as someone who is new here (but mistakenly thought this was the old MGH forum), me not even want to stay to see that except you guys are lucky enough that I'm a very contrary creature- but most Lymies who came here would go, "WHAT!!!" it is like lumping in "Cat scratches, chicken pox and strokes" and if you are in the stroke section you go, "These people know nothing about strokes, I'm outta here!" It is appalling, frankly, but this is a GREAT place otherwise- a smashing accompplishment- reminds me of the old MGH forums- but it is way BETTER- except the Lyme Forum weirdness!!!

Sincerely,
Sarah

Just putting in a request for a sticky on Complex PSTD under the PSTD forum.

Maybe also stickies or threads for PD's.

Thanks in Advance

I stickied that thread for you Gladys and also made a useful sites and resources sticky there. :)

hi ...

this would be great if I would be able to do this:

currently - I'm taking a 'statistics' course for my master's in Non-Profit Organizations ...

for my final paper - we need to do a 'survey' of at least 30 people - now, I was going to write up a simple questionnaire .. and then have them send it back to me ... and then to do the paper! :eek:

Would you be able to help me? I need to come up with some easy questions (and I don't need to know who they are - just that I could get a survey) ... and if I could have it stickied ONLY for a week from 'sunday to sunday' this next week ... in the MS Social Chat forum? because I too- have MS and can take the survey ... :Tip-Hat:

thanks!! I'll watch for the post or PM me with what is needed to set up a survey! thanks!! (I was dx'd last April ... and I've met most in the forum via having MS) .. thanks!

:Writting:

Hi Von

this is something you need to put a personal message request to DocJohn on as that is the rule with anything related to research/surveys etc

so just PM him and he will let you know if it is doable
:)

Could we have a book thread?
 

Something called The Book Club? or something similar? The Library? whatever...

I just love to read, and now that I am retiring I am reading so much MORE.
(I have to confess I can't stand TV anymore, sigh!)

Many of the great things I have read have come from other readers' suggestions.

Please?

There could be subthreads...Reference, Fun, Mystery etc. It could be very therapeutic.