[michael178]

Members who have no DX ought to have a place to post, I think. And I second the brain trauma request. If there were members overflowing here, I'd like to see a leukodystrophy forum - it's mainly a children's disease but some of us also have an adult onset form. I do not think their are other leuko adults here besides me, but you might be able to attract some.
I note that NIH and another site, a children's hospital in Wash D.C., have both started soliciting patients with undiagnosed leukos for their respective projects- they both want to determine the genetic links for this group of people since unknown leukos are the 2nd largest grouping of people with myelin or white matter disorders after, of course, MS,.So something is up with the research guys. Albee Messing at U. Wisc. got a large NIH grant for Alexander's Disease, the rarest of the known leukos. The defective Alexander gene play a critical role in nerve repair which probably explains the interest. I also suspect that MS has proved too complex, and easier solutions could be found through studying the leukos, but what do I know. I only have half a brain left.