NeuroTalk Support Groups - Any thoughts about renaming this forum?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Community & Forum Feedback (https://www.neurotalk.org/community-and-forum-feedback/)

- - Any thoughts about renaming this forum? (https://www.neurotalk.org/community-and-forum-feedback/2997-renaming-forum.html)

one word or two at most

It should be easy to remember so that if you pass it on to someone they don't have to write it down.

I still like "NeuroTalk" but also like"

BrainStorm (with a very cool logo)
Central (short for central nervous system)
NerveTonic
WeGotNerve

As for the color scheme, let's shift the whole thing into the green.

Rick

How about "You Name it, We got it!"

or "Everything You thought You Knew"

or "Everything from Soup to Nuts" no, people would think we cooked. :D

But remember this place was developed at the beginning as a temporary forum to fill in til hastypastry was repaired- but now that we are permanent - we can go in any direction we decide to.

That's how we can make our own identity- we won't have to stick with neuro, we can branch out.

Quote:

Originally Posted by Lara (Post 22893)

Does anyone know of a more up-to-date medical dictionary for use as a link on the forums?
I take great exception to that one. It's totally out-of-date and gives total misinformation about one condition in particular.

Wow, Lara - do I ever see what you are talking about. Heavens, even the Merck Manual for patients is a vastly better resource than that. They sell their books yearly, so they have to keep on top of things.

I'm with you, in other words. This forum can have whatever links it wants.

Quote:

Originally Posted by reverett123 (Post 22915)

It should be easy to remember so that if you pass it on to someone they don't have to write it down.

Hey Rick! YES, you are completely right. It must be short, hopefully catchy (for easy remembering), easy to spell.

Maybe it would also be possible to add a "bookmark this page" button so they don't have to remember twice?? ;)

Quote:

I still like "NeuroTalk" -

Even earlier today, I was with MrsD on this one. To me, Neuro reminded me of a doctor or medical clinic, a hospital floor or wing. Didn't feel right to me -- but I've softened on it a bit. The MAJOR part of my turn-around is my conviction that there should be no confusion whatsoever that this forum is for Neurology patients and Neurological conditions. But both those words are too long and difficult to spell.
so .. NEXT :p

Quote:

(I) but also like -
BrainStorm (with a very cool logo)
Central (short for central nervous system)
NerveTonic
WeGotNerve

I LOVE BRAINSTORM!! So fine. SO FINE!!!

And NerveTonic is too cute for words. I'm old enough to remember the nerve tonics for "nervous conditions" on the pharmacy shelves!!

And, most certainly, us uppity people over here at BT2 can certainly tell the world, "WeGotNerve"!!! :D

We guys do have creative minds. I commend us all!

Theresa

LOL. Somebody was fast on the draw with that one.

http://www.brainstorm.org

Oh dear...sorry, Beth...:o .....I missed that you had suggested DisorderCentral right before me....

2 votes for DisorderCentral!! ;)

Quote:

Originally Posted by Doody (Post 22940)

LOL. Somebody was fast on the draw with that one.

http://www.brainstorm.org

Brainstorm is very big with Epilepsy...
Books written with this name and I like it but would not suggest for the forum name

Keep them coming...you all have great ideas:D

NerveTalk sounds good 2 me.:)

Quote:

Originally Posted by OneMoreTime (Post 22914)

And Gluten Sensitivity/Celiac Disease - what's that all about? Are there neuro complications? What are they? Or is this mainly an intestinal absorbtion/dietary advice forum? Or is there a vitamin deficiency that causes neurological symptoms -- I'm not bashing disorders, just trying to figure it all out people. Trying to learn.

Theresa

Hi Theresa,

Thanks for asking :). YES, Gluten Sensitivity/ Celiac Disease causes wide ranging neurological disease. I asked for the forum to be set up on BrainTalk because the neurological manifestations are widely unrecognized (because our doctors think of it as primarily a gastrointestinal disease, but it can present soley as neurological disease).

Celiac Disease can be asymptomatic, and neurological disease can occur with or without gastrointestinal symptoms. The neurological problems are caused by both immunological factors (Celiac Disease is an autoimmune disease) and nutritional factors (particularly deficiencies of folate, B1, B6, B12, E).

Because a gluten free diet is the only treatment, our forum does focus a lot on dietary advice and information on nutritional deficiency.

Quote:

From: Neurologic Manifestations of Gastrointestinal Disease by Mark B. Skeen, MD, Neurologic Clinics, Volume 20, Number 1, February 2002

"Neurologic disease associated with gluten sensitivity or celiac disease includes a wide range of manifestations:

Central nervous system (CNS) manifestations include dementia, cerebellar ataxia, myelopathy, encephalopathy, brain stem encephalitis, progressive multifocal leukoencephalopathy,chronic, progressive leukoencephalopathy, progressive myoclonic ataxia, seizures, isolated CNS vasculitis, and a syndrome of celiac disease with encephalopathy and bilateral occipital calcifications.”

“Several reports document the existence of peripheral neuropathy in association with celiac disease.”

I would like the new forum name to keep a focus on neurology. I like NeuroTalk and BrainStorm. Back to regular scheduled discussion on naming of the forum~ just couldn't pass on an opportunity to answer your question :D.

Cara

Anyone interested in more can check out The Gluten File or visit our GS/CD forum!