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-   -   Are we being carefull enough? (https://www.neurotalk.org/community-and-forum-feedback/5670-carefull.html)

Curious 11-07-2006 12:08 PM

when i offer brownies does everyone take one? ;)

advice is offered. no one has said do this, take this, eat this or else. :eek:

lots of valid points. this is a forum. a message board to share information and offer support. this is not an ask the doctor or call a nurse site.

thelma or any and all members, if you see any posts where you suspect somebody is trying to practice medicine...report it asap!

so if this thread was started with any particular thread in mind...i hope it is reported.

dahlek 11-07-2006 01:05 PM

Curious, well said....
 
No one is forced to eat a brownie!

One has to use the brain power left in us to try and decide for ourselves. Seems as if many in this world have been conditioned otherwise...Tis scary! -j

Thelma 11-07-2006 02:02 PM

My reason for posting this in the first place is this. Do I have to have a reason? Not really. It is sufficient that the words I have put out have been read and thought about and now have evolved to there having to have been a reason.

Why is this so?

It has been illustrated in the messages of response that all nutrients and supplements are not totally safe for all and that is important to understand. Others have sworn by the ones they have had experience with and while that information is good they are not saying do as I do.

One has come on board in her support for B12 and while it is interesting the remarks of her personal opinion on uninformed doctors is not one I share. The years of training can not be broken down to one or two doctors and one persons experience with them. Third hand information of said uninteresting of doctors towards patients is not revealing to me that it is a problem.

Another has commented on the quantity of education of members here and the 'professionalism' of some who have 'outed' themselves and others who have yet to reveal themselves. This is not a reliable area to find out the variances of what the level of competency is in anyone including myself.

There are people here and on the other site that are highly placed with their educational levels and yet I would never consult them on any incidence that would affect me personally. I would be a fool to stand in one room and talk to another in another room and in particular without face to face contact and knowledge of who I was talking to.

I have no reason to have put this in here save to garner the talk about how we interact with the one in the other room.

I had no intention of finding out who or what anyone believes or who they believe in or exactly what they even think about my subject matter.

My only intention is that we never lose the fact that as we can't see anyone in this box in front of me neither can they see me.

The ones answering here are not the ones who need us to remember this.

We are the ones who need to never forget them.

So don't put this into another case scenario of someone having started me on this subject as no one did. If I were to see a post I would in all probability handle it myself unless it required being removed.

Now that is because I don't know the moderators here so I don't know where they would stand on the issue and while I personally don't like the concept of moderation I can't see my using them as an alternative.

Now don't get me wrong it is the concept I don't like not the human being.

I am not into small talk and never have been so when I post it is not always like some would like it to be but it is true to my inner core and that is fine with me.

So I need to know the person before I can say much to them and that is why I have posted this as there are some people out there who really don't need medical advice or even concern but use this and other forums merely to communicate with people, to talk with another human being.

So maybe we should think twice before we get into the medical aspects of talking and just reach out and find the hand being proffered and say hi my name is Thelma.

Idealist is one name I would like to mention as having posted here. That person got it right on

Hi Idealist my name is Thelma Glad to meet you.

Corny or what? Stupid or what?

That is for the face in the black box to decide. At least just think about it.

Idealist 11-07-2006 02:09 PM

Wow. I think this is one of the best and most interesting threads I've seen on these forums in a while.

I too would like to step forward and thank Mrsd for the several times she has helped me, one of them quite recently. Thanks Mrsd! :)

I really like the line she used that "one does not need a degree or license anymore to become knowledgeable." Not having a diagnosis for my chronic pain, I have spent several years researching pain itself. The mechanics of pain, the dynamic emotional and psychological responses to it, and how chronic pain leads to actual physiological changes in the brain and body. I haven't met a single doctor in quite a while who knows as much about this as I do, simply because they haven't the time to dedicate four years of study to any one area of medicine.

I would also like to say that I have learned more "coping techniques" on these forums than I could have obtained in a lifetime of professional medical assistance. For that I thank everyone.

Lara 11-07-2006 02:12 PM

EDITED TO ADD:
I see more posts before mine now that have been added since I started typing away. lol I need to re-read them as it's highly likely now that my post is totally out of context.


I'm a great believer in people having the choice to research and look for ideas, take onboard what we feel is ok and discard what doesn't apply. When you think about it, that's what the internet is all about. It's different from a library where you go to look up something specific but don't get to see all the different sides to a subject or the tangents it can lead on.

If I'd not found the internet and read what others suggested and researched it over and over myself, my son would still have the Sydenham's Chorea/RF diagnosis he got when he was 4 and he'd probably still be taking prophylactic penicillin until he's 21 years of age as suggested by specialists here. He's almost 20 now and since early teens he's finally been able to get on with his life with correct diagnoses.

I don't recall ever seeing anyone say that people should do something in particular. They're suggestions. If someone here wrote that they were taking Zoloft as well as large amounts of 5-htp, then I'm sure we'd all be jumping all over the post to say why not to do that and telling them to talk to their doctor. I know I would. If someone told me to take copious amounts of Vitamin B6 to cure myself of something, I wouldn't. I would research why they might suggest that particular vitamin and go from there.

It might be more helpful if Thelma could elaborate more about her concerns then I would know more about what she means, because at the moment I'm not really sure. (plus it's only 5am so that doesn't help)

I know I skip all over the forums and if I see a post from someone looking for information, then I usually will try to help them even if it's links to information pages on the net. Not everyone holds the same views and I try to remember that. e.g. I don't necessarily believe everything that people say about certain treatments or conditions, but it's not my right to stop them from saying it if it's helped them or their children. What I'm more likely to do is to research it really well myself and then decide what I will do personally. As I said, I have great faith in people to research information after it's been posted and as someone else said ... if we go up the road to the health food store, we can load up on anything imaginable. Are we doing that? I don't think so. In this day and age I think people know enough about vitamins and minerals to realize that mostly they're medicine and to be cautious and to ask advice from relevant medical professionals whether that is the local GP, some type of Specialist or a complementary medical professional.

What exactly is the post about, Thelma? I'm not really sure, yet I've waffled on and on here pre-morning coffee. ;)

Lara 11-07-2006 02:14 PM

I'm also very grateful to mrsd and to Chemar and to Bonnie Gr and jamie and FJ and dkw and many others for all the helpful information they've shared over the past 10 years that have been of benefit to myself and others.

Lara 11-07-2006 02:20 PM

Quote:

Originally Posted by Thelma (Post 35625)
My reason for posting this in the first place is this. Do I have to have a reason?

Quote:

Not really. It is sufficient that the words I have put out have been read and thought about and now have evolved to there having to have been a reason.
Well, firstly... yes, and secondly no, I don't think so. :)
Thelma, you know we're a very sensitive lot of souls out here. If we don't know exactly what you mean then we can sometimes take it really personally. I've done a lot of that in recent months unfortunately even when it's not been personal, so sometimes just saying something without a reason or directive doesn't cut it. I mean that with all due respect.

Thelma 11-07-2006 02:26 PM

I understand what you mean Lara but isn't it better to have some topics that can be talked about that leave some confusion for discussion.

Lara 11-07-2006 02:46 PM

Quote:

Originally Posted by Thelma (Post 35639)
I understand what you mean Lara but isn't it better to have some topics that can be talked about that leave some confusion for discussion.


lol Thelma. I just love a good discussion but confusion is doing me in.
[Esp. at 5am in the morning.] I shall return caffeinated.

take care there. We are listening!

Lara 11-07-2006 03:02 PM

Something else that I was just thinking about is that what is important for me to remember is that we all have different posting styles. Many of us have seen each other online for a very long time so we get used to certain posting styles or 'way of speaking' online. Some people will appear very business-like and other people less so. Some people are givers and some people are takers of information. Some people are sharers. Some people don't know who any of us are yet some of us seem to know who everyone is. Those are the things I try really hard to remember and part of that is being cautious or careful, although I've noticed lately is that caution can really cramp my style.


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