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spontaneous CSF leak

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Old 02-16-2009, 07:01 PM #1
dsu1993 dsu1993 is offline
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dsu1993 dsu1993 is offline
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I have just recently been diagnosised with spontaneous csf leak. I was in the hospital for 1 month. Currently I am at home on bed rest. Doctors are hoping the tear in the dura will seal on it's on. I have also had 3 spinal taps, but were unsuccessful at finding exactly where the tear is or get any spinal fluid at all. I do know that the tear is in my neck, but unsure how big a tear or if it is in the front or the back. I am willing to go anywhere for some answers.
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Old 02-19-2009, 02:43 PM #2
Bostic Bostic is offline
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Default CSF leak - good doctor
I stumbled upon this site yesterday 2/18/09 while looking for more information on a great dr. I just saw at Cedars-Sinai in Los Angeles. Dr. Schievink is wonderful as I just got back from LA 1 1/2 wks ago after he attempted to repair a CSF leak on me. It sounds like you would be a great candidate for him. He is very easy to get in to see as he seems to work his patients in very quickly. He is extremely busy but his whole goal seems to be getting those with a CSF leak repaired.
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"Thanks for this!" says:
Traci1 (01-03-2010)
Old 03-21-2012, 07:39 PM #3
pmary pmary is offline
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Originally Posted by Bostic View Post
I stumbled upon this site yesterday 2/18/09 while looking for more information on a great dr. I just saw at Cedars-Sinai in Los Angeles. Dr. Schievink is wonderful as I just got back from LA 1 1/2 wks ago after he attempted to repair a CSF leak on me. It sounds like you would be a great candidate for him. He is very easy to get in to see as he seems to work his patients in very quickly. He is extremely busy but his whole goal seems to be getting those with a CSF leak repaired.
How long did it take for your symptoms to go away? I had a seond BP with Dr. S a month ago. I do not have headaches now but still cannot walk far without feeling aggravation in my head and still have numbness, nausea, chills with lowered temperature and some draining feeling by my left ear. My symptoms are worse in the morning as I believe I may leak a little at night but then build fluid during the day. Any answers you can give me would be appreciated.

Thanks,

Mary
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