On the 5th, I am having a tilt table test. I had a more 'informal' one before, but nothing was hooked up to me. For this one, my Cardiologist and my Neurologist will both be present, and I will be having an EKG, EEG and something else hooked up to me (memory issues, hehe).

She said, if she cannot get my heart to do what it did during my VEEG they may give me an injection to force this eratic behavior on my heart.

I personally think it sounds fascinating, in some ways - I like being a lab rat as long as drugs aren't involved. I really enjoy when they let me ask about the tests and really participate.

They'd both said not to worry about the injection which from what people told me, the slang for it is 'heart attack shot'. Sounds like a hoot, huh?!

Background to save you reading, during my VEEG they picked up 'weird behavior'. There were well over 50 episodes like such:

My BP would drop to ~ 70/40
My temp would rise to around 99-100
My heartrate would rise to ~150
After all of that happens, my brain would go bonkers and start to fire off random epileptiform discharges, spikes and waves.

My Epileptologist said she believes it is Dysautonomic Syncope with (associated) Chronic Peripheral Neuropathy.

(Pardon spelling errors, my computer broke down and I didn't update firefox on this one to check my spelling).

I'm at the point where I just grin and nod. My Cardiologist is a good one, she will not name drop anything unless she's sure. She said she has ideas, but prefers to not share ideas and worry people. Hah!

Anyway, I hear the test is very boring and I'll be strapped to a table standing upright for around 45 minutes. I will be there from noon until 4:00pm (giving time to hook everything up).

and i bet no burger king during this test.

i'll have to ask my aunt if this was one of her tests. she has e...heart problems and an anuerysm. i know she mentioned them doing wacky things to the table..but she was pretty out of it..and wasn't sure if it was her feeling dizzy.

i hope they find the answers for you ellie. so you can get some relief.

Let us know how it goes and give us all the details.

My prayers are with you.


Darlene

hmmmmmm heart attack shot ? I'm wishing you the very best luck.
I sure hope you come back well, happy and ready to tell us how things went in great detail.

ellie, my aunt had a test like you described. since she had other issues...they didn't allow tv..radio or her talking unless she had to call for a nurse. oh..she said..go potty first. they won't want to start the test over.

take care sweety...we are here for you.

added...my aunt also has a heart condition. mitro valve...not prolapse..shoot..the word escapes me...i'll edit again...when i think of it.

Thanks everyone!

I'm sure it will be a breeze, the only bad part is 'kind of' fasting. They basically say the same for surgery, don't eat incase they have to do something, they don't want me to aspirate or whatever.

I was supposed to have an ultrasound on my heart earlier, but that was scheduled the day after I got sick so I had to reschedule it which I couldn't get in until the 15th of January. Hopefully it's the last of my tests, I'm kind of growing sick of them. My savings account is, too!

*Hugs*

(((((((((((((((((( Elllie )))))))))))))))))))))

You're in my thoughts during this time to come.

You're so cared for!

KD

Thanks everyone! Getting ready to head out to take SO to his colonoscopy (it's been a rough night, ugh) and then go to my testing. I'm a bit more nervous for him, due to the way his father passed.

Anyway, I'll probably be back tomorrow assuming I come home and go back to bed. I'm tired already.

*Hugs* and thanks again for all of the kind words and wishes.

Ellie.....you are in my thoughts and prayers