Hi, i had my first seizure ~1 year ago (i'm 23) and a 2nd seizure just a few weeks ago. I noticed that after my first seizure i've had much more 'muscle twitching' than before the seizure. before my first seizure i never even noticed my muscles twitching but now they do much more often and sometimes for long periods of time. is this common for most people? it is strange.. i know i should just ask a doctor but that's a little difficult (schedule an appt. just to ask this?) so i'm asking here. For 1 year i wasn't on any medication and it was the same (but now i'm taking medication since i'm officially epileptic) Just curious to know if anyone's had the same problem .. thanks!

Hi Alesia,
I have had absence and complex partial seizures for over 37 yrs. and many times before I have a complex partial seizure I will have muscle spasms around my mouth but witht the muscles twitching this could possibly lead to a myoclonic seizure which happen when a person first gets up or when they go to sleep at night,or you might be having just muscle spasms with your seizures. Take note if this happens when there's a low pressure in the weather, you've been using a cell phone, nutra sweet, or if you have been under a lot of stress or are very tired these are things that can cause seizures for many people also hormones changing can have a lot to do with it. Here's wishing you the best of luck and May God Bless You!

Sue

I also have muscle twitching! I just got dignosed with complex partial seizures in may and since then I have had seizures non stop. But the more I have been having them the more I have been able to pick up things that my body will do befor I have one. Like yesterday I had a big one and befor I go into a full siezure I cant talk or move and it prevents me from being able to tell some body for help, but I noticed yesterday once I was in that state of not being able to talk or move I had twitching of my left side of the face and I had strong spasms andtwitching of my left hand. On a regular basis I also have regular twitching and that has only been since I started with seizures.

Muscle Twitching should be mentioned to your
Neurologist / Epileptologist or your Physician.
It can range from Absence to Simple or Complex
Partial to even Myoclonics ---> hence the need to
bring it to the Doctor's attention.

It is recommended that you keep a log of
when these events occur and WHERE.

I must also add an emphasis that some people
get confused between twitch, jerks, and even
spasms (contraction and relaxing of muscles,
which can be a seizure or something else).

You are not "officially epileptic", you are just a
person with a medical condition, epilepsy. No
different than a person who has diabetics, high
blood pressure, hyper/hypo-thyroid, etc. Epilepsy
is not going to make you any less of a person that
who you are ---> you are who you are!



I have Epilepsy but Epilepsy doesn't have me!

Hi Alesia,

I have that issue. I've looked seriously at Sues list and have ruled out each cause on it.

I don't use aspartame it's poison, I don't use a cell phone, the twitching is constant and non-stop.

My upper body will pull to one side, then my legs will go, then my foot or feet will. at other times, my upper body pulls to the opposite side then my limbs will follow in turn. Often my arms just raise up in the air on their own; so weather pressure is not an issue.

I had a hysterectomy at 34 and got the hormone thing over with and under control years ago. I do have panic & genearlised anxiety disorder, but that doesn't seem to make a difference, and wouldn't be the only cause anyway.

So I am really interested in what others think and if they have had this issue and spoken to their Dr about it, and if so what the results were

This seems similar to what happened to me, I am 16 and I had my first seizure in july, then another in august, and a third in december. They were all tonic clonics that occured while i was sleeping - confirmed because one was in a car, plane and on a train. I think i have had others while sleeping at night in my room but cant be 100% sure since I am asleep and in my own room. After my second (confirmed) seizure I started getting these weird twitches in my left index finger - at first i would get one once a week or so, but then i started getting a couple a week until it progressed to a couple a day.

After my third seizure i started taking medication and they went away for a little while but recently they came back. Now i get them in other areas of my body, like my legs, and back. I also notice i have these weird jumps where my leg will randomly kick forward (as if it was hit with a hammer that triggers a reflex) but these happen maybe once every 1-2 weeks. I had an MRI, sleep EEG, and 23hr EEG all of which came back normal, any ideas on what could be wrong with me?
Anything would be appreciated and I really hope that you get better, I wish you the best!

purplepaisley,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sorry to hear what you are going through at this time. Then you to go on with these signs check with an Epileptologist (Dr. specializing in epilepsy) at an Epilepsy Center which are usually at University or large hospitals.

Your need to cut out the carbs and starch foods because they will trigger seizures. Start keeping track of your seizures by writing them down on a calendar, by doing this the Dr. may see a pattern in your seizures. Get yourself on vitamin B12 500 mcg. once a day. Also avoid very bright light, like at a theater, the flashing can bring on a seizure. Just close you eyes and turn your head at that time.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.