I've been seizure free since tumor was removed 7 months ago but I have to go back to hospital every 3 months for "check-up" MRIs. That will last for 1 year then the check-ups will drop to once every 6 months. Then it will be MRIs once a year for the rest of my life.
I'm currently on Trileptal and Topamax and the neuro said that in Oct. I'll start dropping some of the meds but I will be on AEDs for the rest of my life.

I had an Astrocytoma removed 27 yrs ago. Didn't need AED's for the longest time. I was on Depakote for a couple of years but I have achieved better control with Keppra and have been sz free for over 2 years now. Wish you the best of luck gaining more control.

Hi Stefie,
It's good to see you back! I know that when my Dr. put me on Topamax it increased my sz. making me have 23 sz. in 1 month the AED just made things worse for me and just like you I got headaches also. I hope things get better for you and the sz. stop. Here's wishing you well and May God Bless You!

Sue

Hello again..
Thanks for the response everyone. I really have missed this site. I imagine everyone has.
Originally I was told I would have to do MRI's every year for the rest of my life but after a couple of them came back clean I would only have to do them if I had problems or symptoms (which for me seems to be whenever I have headaches,which is frequently).
I stopped taking AED's 9 months post op (I think anyways) and did fine (except for the headaches) until the vision thing started in. What was your vision distubance like? How did it progress? I'm a bit wierded out about the possibility of these small seizures "growing" into larger ones (exactly what happened last time over the course of several years).

I'm going to schedule another MRI soon. Just waiting for the hospital to call.

Jingle- You had a DNET removed didn't you? That's what mine was. I seem to recall talking with you about that before. I'm glad to hear you're doing well.

Stefie, I hope everything turns out great for you! Be safe for now, and keep following up until you have all the answers you were looking for.

Ah, Stefie..... I'm so very glad to hear you're having another MRI soon. ( I hate having those miserable things done - noise terrifies me - and I have to make a 1 1/2 - 2 hour drive to have mine but I wouldn't miss one for anything ) I think those check-up MRIs are SO important.

My tumor was a grade 2 oligodendroglioma and it's rare but not impossible for those things to return.

Like I said - seizures haven't returned but some headaches have. Certainly not like they used to be but.........

Hi: I was reading the posts and thought I would like to respond,but I haven't had surgery, I have no right to put my nose in this. BUt if your lives can be made easier I thought why not. This is not to offend anyone or to be pushy.

Would any of you consider acupuncture to control your pain from the headaches. You would still be getting your checkups and taking your meds.
But your pain would be controlled and you would have quality of life.

Wishing all of you the best of health!!!!
Sz free life without headaches and side effects!!!

Riva