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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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Senior Member
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Hi Stefie,
It's good to see you back! I know that when my Dr. put me on Topamax it increased my sz. making me have 23 sz. in 1 month the AED just made things worse for me and just like you I got headaches also. I hope things get better for you and the sz. stop. Here's wishing you well and May God Bless You! Sue |
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#2 | |||
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Member
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Hello again..
Thanks for the response everyone. I really have missed this site. I imagine everyone has. Originally I was told I would have to do MRI's every year for the rest of my life but after a couple of them came back clean I would only have to do them if I had problems or symptoms (which for me seems to be whenever I have headaches,which is frequently). I stopped taking AED's 9 months post op (I think anyways) and did fine (except for the headaches) until the vision thing started in. What was your vision distubance like? How did it progress? I'm a bit wierded out about the possibility of these small seizures "growing" into larger ones (exactly what happened last time over the course of several years). I'm going to schedule another MRI soon. Just waiting for the hospital to call. Jingle- You had a DNET removed didn't you? That's what mine was. I seem to recall talking with you about that before. I'm glad to hear you're doing well.
__________________
Stef "Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand and melting like a snowflake." -Marie Beyon Ray |
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#3 | |||
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Senior Member
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#4 | |||
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Member
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Ah, Stefie..... I'm so very glad to hear you're having another MRI soon. ( I hate having those miserable things done - noise terrifies me - and I have to make a 1 1/2 - 2 hour drive to have mine but I wouldn't miss one for anything
![]() My tumor was a grade 2 oligodendroglioma and it's rare but not impossible for those things to return. Like I said - seizures haven't returned but some headaches have. Certainly not like they used to be but......... |
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#5 | ||
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In Remembrance
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Hi: I was reading the posts and thought I would like to respond,but I haven't had surgery, I have no right to put my nose in this. BUt if your lives can be made easier I thought why not. This is not to offend anyone or to be pushy.
Would any of you consider acupuncture to control your pain from the headaches. You would still be getting your checkups and taking your meds. But your pain would be controlled and you would have quality of life. Wishing all of you the best of health!!!! Sz free life without headaches and side effects!!! Riva |
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#6 | |||
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Member
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Still pluggin' away!
I got my copy of the doc's report to my normal doc and have a couple of questions (like what is "temporal lobe dysfunction")... I posted another question here on the board for someone to offer some wisdom. Dodi- Of course I remember you! I see lots of familiar names on here, good to see so many have found their way here. Glad I made it. Jingle- Oligo looks a lot like DNET, lets hope neither of them returns. and Riva- it's not pushy- I've considered acupuncture, I actually wore a temporary short needle for three days as therapy for my TMJ and it really did help. That's the only experience I have with 'acupuncture' of sorts (it was a bit different) but it did help. Now I have a cold and can't tell if it's the topamax,the cold medicine or the cold itself but I feel totally stoned and that's not a lot of fun. Hopefully it's not the topamax cause my headache actually feels better. I'm really sensitive to cold medicine so I usually only take half a dose or even take childrens (I took half a dose of childrens this morning when I left for work at 7 am) and felt totally buzzed all day. Matter of fact I didn't feel 'better' until I came home and took half a dose of night time cold medicine at 5 pm. Funny huh?
__________________
Stef "Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand and melting like a snowflake." -Marie Beyon Ray |
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