I have left temp lobe with complex partials. Basically I have smell auras along with flashing patterns in front of me, then i wind up somewhere else. Could be outside,at neighbors, someones mailbox or just another room. My interictal are weird hallucinations. Two men talking loudly in another room - I think its the ghosts of the 2 men who commited suicide here. I also see shadows - I saw a monster dog coming up my front walk and trees bending down to eat cars. Weird! After a couple drugs, seems like lyrica has stopped the majority. Yesterday, I got extremely cold - teeth chattering, I bit my cheeks - toes numb and fingers burning they were so cold - I have never felt so frozen in my life. I put on 2 pr pjs, 2 robes, 3 sox, and wrapped myself in blankets but it never went away. Found myself in bed, came out and immediately neede to throw up. I found that I had wet myself on 2 places on the bed. I am extremely bothered with memory loss. Can hardly remember detail of our beach vacation. Please help - anybody out there with this symptom? Or is this not a seizure? I should say I also walk around the house singing songs from 25 years ago. Anything anybody says I turn it into a song. Am I alone with these unusual symptoms?

Hi mel,
I've had complex partial seizures for 35 yrs. and just last yr. I started to have myoclonic and clonic sz. (seizures) Just like you I see colors in my eyes, get a nervous feeling in my stomach and then I sometimes will hear one word repeated over and over again during a complex partial sz. None of this in uncommon. I also wander around during a complex partial sz. but I don't remember going to the room. From now one the moment you start to see colors in your eyes tighten up all the muscles in your body and make your hands into tight fists for a few seconds or minutes by doing this it will stop the seizure. I learned about this back in the 1970's. As far as being cold I'm always freezing it could be from the AED's (seizure meds) you're taking or it could be that the hypothalomus in your brain is causing this, The hypothalomus controls a persons body temperature. As far as wetting the bed you might have had a sz. in your sleep. Take note of what the weather is like when you have any sz. it's been proven that many times a person will have sz. when there's a low pressure in the weather. I wish you the best of luck and May God Bless You!

Sue

Did you have many seizures during that vacation that could explain why you don't remember parts of it, or did you remember it before, and only after recent seizures/medication had difficulty remembering it?

Assuming the latter - that you remembered it until recently - have you tried stimulated recall with family members that were there? ask them to recount things and see if being "fed" some detail will bring up the memories.

Are you taking any benzodiazepines? eg Lorazepam, Xanax, Klonopin, Valium, or simil-benzos (like Ambien)? These can cause a condition called anterograde amnesia... forgetting something that happened at a time antecedent to taking the med, and which you had recall of before. sometimes it preciptates in combination with other meds.

In the case of anterograde amnesia, memories can often be stimulated. In any event, if the memories "went away" AFTER the vacation, and were not due to gaps in awareness due to CPs DURIng the vacation, I would talk to your doc about this.

Many meds can interfere with memory/concentration in general. This affects your quality of life and is important to address. Also best to have the causes investigated professionally.

Hope that helps a little.

I hope you and your doc can find a way to make things better for you.



~ waves ~