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Single parent of a child with Intracable epilepsy

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Old 09-20-2006, 03:31 PM #1
BECKY BECKY is offline
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Question Single parent of a child with Intracable epilepsy
Was hoping that there might be someone out there with a similar situation as ours. Need info on options/help for single parents trying to STAY gainfully employed and be there for her My daughter is 8 years old and has struggled with seizures all of her life . She recently had th VNS implanted and we have seen some progress, however she still breaksthrough episodes that prevent me from working. I do not have any outside help from family or anyone else, any advice is much appreciated. thanks
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Old 09-20-2006, 04:52 PM #2
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Hugs to you and your little girl, Becky

You might try re-posting this on the child neurology forum, there are many parents there who have children with seizure disorders.
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Old 09-20-2006, 05:03 PM #3
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Hi Becky! Welcome!

I'm very sorry to hear about your daughter. What area are you from? If you'd like, I can do some searching for support groups in your area.

Best wishes to you.
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Old 09-20-2006, 07:24 PM #4
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Hi Becky
Welcome to the forum. I am glad you found us for support.
I am sorry your daughter is going thru this.

How long has she had the VNS?
What meds is she still on?
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Old 09-20-2006, 08:23 PM #5
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I would like to invite you to http://www.vnsmessageboard.com

We have over 600 members and a seperate parents forum.
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"If you are going through h e l l, keep going."
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Work like you don't need money, Love like you've never been hurt,
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Old 09-21-2006, 01:30 PM #6
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Hi,

I am a single parent and my daughter has intractible E as well. I would love to talk sometime.

Have you gotten FMLA? I would have lost my job a long time ago with out that protection.

You can follow the link to my daughters site, my email is to the right hand side of that page, I would love to hear from you.
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Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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