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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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06-12-2010, 02:50 PM | #1 | |||
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Hi again. I take Topamax (200 mg am & 100 mg pm) for migraines and cp's & sp's. I rarely have cp's at all anymore unless in certain environments (concerts, loud noises (generally certain types of music etc.) or flashing or bright lights. Also, fast motions- movies and such). Sp's have been more frequent the last few months with my new job (stress), long hours and lack of sleep.
My neuro (havent seen an epi since my surgery back in 02) wants to add 500 mg. of Keppra to my daily dose of Topamax to get rid of the sp's. I've been seeing flashing lights and squiggly lines and getting my deja vu feeling back and just feeling woozy in general. Not a feeling I want to have since I've been doing so good. I've been reading up on Keppra and am a little concerned about some of the side effects, particularly the fatigue (I'm already tired and work 8-12hours a day). Headaches (I'm trying to prevent daily migraines with the topamax), and mood swings (moody enough as a side effect of surgery). And to hear that some people actually have an increase in seizures with this med is a little disconcerting... hhmmmmm...
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Stef "Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand and melting like a snowflake." -Marie Beyon Ray |
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06-12-2010, 03:00 PM | #2 | ||
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Quote:
Hi Stef, I'm sorry to hear that you are getting moody,feeling tired, etc. along with the deja vu feeling coming back. I started to feel exhausted, and began having many more sp and absence sz. I started taking 2000 mg. of keppra but as I mentioned I cut myself back to 500 mg. a day. It's your final decision but I would get off the keppra just like I'm trying to slowly go off the drug it has caused a lot of problems for me and I can see you are having some of the same problems as I did before all the sz. started up. I wish you the best of luck and May God Bless You! Sue |
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07-19-2010, 09:04 PM | #3 | |||
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I started reading this section because my husband has a long history of tonic seizures and thought I might be able to add something. Instead, I have learned quite a bit about Keppra. I have to take it for trigeminal neuralgia. I have the extreme fatigue and some of the other issues mentioned. My problem is I have tried to stop taking it but my trigeminal neuralgia immediately returns. I also take Lamictal.
I used to take topamax but it caused so many side effects. I was sick as a dog, I was losing all of my hair, it makes you dopey etc. Neurontin caused me a lot of problems also. My husband has been on brand name Dilantin for years and years and as long as he takes it, he is fine. The neuro adjusts the dosage from time to time. You have to take Dilantin not the generic if you use it as it can cause seizures. Don't believe anyone who says that generic is as good as brand names, it has been proven otherwise for several medications. His neuro has to write a series of letters to our insurance company to get them to cover the brand name, because when they made him take the generic he had a really bad seizure and lost all signs of life. It took him over a year to get over that seizure. |
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"Thanks for this!" says: | waves (07-19-2010) |
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