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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | |||
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Senior Member
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Hello!
I believe Doc John was going to provide something more formal regarding moderators, however, I'd like to put up something more casual here for us. I would like to know what everyone here would like to see that is specific to this particular forum. Additionally, I'd like to know if there is anything you do not want to see. I can give you some fun daily posts, if you like. I get a lot of 'seizure related' news emailed daily, I try to keep up-to-date on all new researches and obtain transcripts, and I can even give you some horoscopes and quotes for the day, if you'd like something fun! Be as honest as you like, Rockin4Epilepsy and I are here to make sure your stay is as pleasant as possible and to make this a place you really enjoy visiting. You can also be as creative as you like, too - If you'd like to do something crafty - that's great! For example, I like to make my own bands of various colors to change my medical id bracelet to match my outfits. We can share as much as you'd like to or feel comfortable with. (Also, if you want some bands I can make as many as I have supplies for [free of course]) Anyway, I'm very curious to hear more about what everyone would like, so please share with us! I will also 'Tell my story' once I get more time. Warning: it will be long! ![]() |
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#2 | |||
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Member
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Great idea Ellie!
I think it would be nice to put a link to each states epilepsy foundation website if they have one. I would love to see EFI represented (that's Epilepsy Foundation of Idaho). Perhaps a Resources page?
__________________
Stef "Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand and melting like a snowflake." -Marie Beyon Ray |
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#3 | |||
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Junior Member
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Howdy Stefie!
If you are looking for a resources page, take a look at my Epilepsy page: http://www.howdydave.com/epilepsy1.html
__________________
Dave ©¿©¬ . VNS SP / CP Secondary Epileptogenesis Ego sum quis ego sum quod ut est quicumque ego sum - Popeye |
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#4 | |||
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Member
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Right On Dave! Love Your Site!!!
![]() ![]() stef
__________________
Stef "Begin doing what you want to do now. We are not living in eternity. We have only this moment, sparkling like a star in our hand and melting like a snowflake." -Marie Beyon Ray |
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