It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

My advice to you is have your family Dr. refer you to see a Epileptologist (Dr. specializing in Epilepsy) and go to a Epilepsy Center. These places are found at large hospitals or university hospitals. These Drs. will do a series of tests on you and this will help the them fine exactly what's going on with your situtation. One other thing to do is taking vitamin B12 1000 mcg. once a day for adult. Afford being around strong flashing lights like at theater, you could wear sunglasses. Also at the theater just make sure you turn your head and shut your eyes during flashing back grounds.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Thanks for your post. Yes, I have noise-triggered seizures too. Only from a specific combination of traffic noise. It is a buzzing sound like an airplane engine noise. It lasts for 3 to 10 seconds. I'm aware and can talk etc. I do get irritated when it gets too noisy on the street. They are mostly controlled by Lamictal and Vimpat. I used to get a one or two a month since I was 18 (and didn't know they were seizures until I had two grand mals), but now I have about 4 a year. All in the winter months. I learned I have gluten intolerance and going gluten free has helped.

How is he doing now? All the best.

Presently I am unable to sleep due to the noise from the fridge's motor. Ticking clocks, rave music /repetitive, heavy bass as well as people talking loudly (esp in confined area such as elevator) or with a high pitch affect me negatively. The sound of the road whilst driving annoys me. I find listening to classical music helps. I have had epilepsy since I was 12. I have had less seizures as an adult. I was also advised by an ENT(ear, nose and throat specialist) to have a septoplasty/ surgery to correct my deviated septum as this causes severe sinusitis which in turn causes uncomfortable pressure build -up in my ears.
I have bought several pairs of blue tinted polarised glasses without fully knowing why I found this colour to be so calming. I always switch the fluorescent lights off in my office, and allow natural light in through the windows. I try not to look at pc monitor for too long - for this nauseates me due to subtle flicker. I grin and bear arduous meetings held in venues with such lighting.Shopping malls are a veritable nightmare in terms of sound and lighting. This is exacerbated by poor dietary habits causing my blood sugar levels to plummet. Also have hypotension.
I have motion sickness - I cannot look at google earth without feeling dizzy.
I believe that understanding is as crucial as sharing experience/advice.

Hi Ash,

Welcome to the forum! It sounds like you may be photosensitive to some light just like I am. A study was done and they found blue lights and the scent of lavender to help some people reduce their sz. A few yrs. ago I had a special e.e.g. done where the tech was flashing different color lights one at a time and when they flashed florescent green, amber, and bright white each time it triggered a sz for me. Later on I had brain surgery to help reduce my sz. and since that time I know longer have problems with looking at certain color lights or strobe lights. I wish you the best of luck and May God Bless You!
Sue

Ash,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

I thought I would share my experience and what seems so far to be helpful for me.

After a motorcycle accident (first time out on the road....but I was covered head to toe in gear...ripped up my left arm (6 surgeries) and a slight mark on my helmet), I noticed that there were times when a quick sound or a fast movement on the TV caused very short duration convulsions for me. The video seemed to lessen over time as well as audio causing issues.

A year later after being prescribed Zoloft (200mgs/day) I suffered my first Grand Mal. I did not notice any major outside sources (audio/video) prior to the seizure....just woke up to having my back broken in 3 places.

The seizure was finally attributed to Serotonin Syndrome and my Zoloft was changed to Lexapro at 10mgs/day with success.

About 7 months later, while at a drum and bugle corps competition I had another Grand Mal.

Since that time I've noticed that as the day goes on and sound starts to build, I become more sensitive.

I decided to experiment with .5mgs of Xanax and all of my symptoms disappeared. 1mg of Xanax prior to attending a concert or movie, and I have no myoclonic activity at all and have been seizure free for two years.

I know that my case is my own....and am certainly aware we are all different.

I just figure if I could calm my CNS down just a tad that perhaps the volume might not be as much of an issue.

Just my two cents from my experience.

Bob

Bob,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

You might want to ask your family Dr. to refer you to see a Epileptologist (Dr. specializing in epilepsy.) You can usually find an Epileptologist at a big hospital or a University hospital. These Drs. know how to treat both epilepsy and other neurology disorders. These Drs. will do tests on a person and find the cause of the epilepsy, keep them on the least amount of sz. medicine, they are updated on any new treatments for epilepsy.

Try taking vitamin B12 once a day, also if you go to a theater to see a movie afford looking at bright flashing lights during the show, just turn your head during that time.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Google "Exploding head Syndrome" my sister recently diagnosed with this. Came as a real surprise to us all but explains so much, in particular her reluctance to sleep at night and strangely, the giggling!!