Senior Member
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Join Date: Aug 2006
Location: NY
Posts: 1,200
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Senior Member
Join Date: Aug 2006
Location: NY
Posts: 1,200
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Not Looking Good
Hi Folks,
As many of you know I've had 2 brain surgeries to help reduce my absence and complex partial sz. I was doing really good but now I've started to have tonic clonic sz. where I will fall and hit the floor and begin shaking. My epi confimed this with me. What's hard is that I'm drug resistant, I've been on 13 different AED's and not a single one has controled my sz. I've also tried the ketogenic diet. Since the tonic clonic sz. have begun my parents and my brother will have nothing to do with me anymore and my employers (public school vice principal) told me that she was going to keep her eye on me since I had 3 absence sz. in one day. I don't know where to go from here. I wanted to have gamma knife surgery done but my Dr. told me I would have to have it done 20 times or more and my brain would be fried. I'm sorry to dump all my problems on all of you but I feel that you would understand. What really scares me is that I have an Uncle and a cousin who both had tonic clonic sz. and they passed away from the sz. Thanks for your time and please forgive me. Take care and May God Bless You!
Sue
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