New Member
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Join Date: Aug 2011
Location: Idaho
Posts: 1
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New Member
Join Date: Aug 2011
Location: Idaho
Posts: 1
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Running out of options
Ok this is kind of a long story but we are running out of options and I am not quiet sure what else to do. My daughter is 2 and a half almost 3 she was diagnosed with epilepsy at the age of 8 and a half months. She has been on all of the drugs for children imaginable. She was recently just taken of the ketogenic diet cause it was not working. Her neurologist says that her condition is most likely idipathic yet they have only done the neccessary test. Blood and urine, eeg/ video eegs, cat scan and mri, and that is it. We have asked lots of times what test are out there to see if we cant find any problems that could cause that and he just replies 90% of epilepsy patients are idiopathic. Well frankly i am getting tired of it. My question to whom ever can answer is there a possibility that allergies or heart problems could make her have seizures. Her seizures range from drop to grand mall there are times when she loses her bowels and then there are time when she doesn't. There are also time that she really doesnt have a postictal phase and there are times where it rediculus how postictal she is. we spoke with her Doctor today and he said that there is no possible way that a heart condition would be doing this to her. Which doesnt make sense to me. I have a feeling that something is going on with her heart but am not quiet sure. She was born pre maturly and so I thought it was just because of that. let me explain what I have observed. Even when she is not seizing she has a somewhat irregular heart beat. It beats hard and odd. My one year old has been a confirmation of my suspitions. Also when she was born she had a very hard time keeping her food down. Is there any possible way that she could have an immunity disorder and that could cause seizures? We are sure what to do anymore and this is really begining to take a toll on my husband. If anyone has any insite please reply. We need help.
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