Southie- Thanks for the information, I'll be sure and check out that website. My neuro seemed interested when I told her that I thought the problem was due more to the pitch in the sound than the reverberation after all and now I have some research to do. That's going to be a great help. Thanks!

Dave- It's comforting to know I'm not the only one who experiences these 'things' afterall. At first I think we're all hesitant to call them seizures but there's no doubt in my mind that's what they are. I only hesitate to call them that because I don't want to lose my driving privileges, which thankfully hasn't happened. Like you, I've noticed that I can be in many different environments with really loud music and be ok and then there are other times when little things really bother me (not actually triggering a seizure but at the same time driving me crazy, painful even). My husband says I'm abnormally sensitive to noise now. There's no doubt though that what happened at that concert house was a complex partial, that's too familiar to me to mistake. Like you, that's what I was blessed with. It could be worse though. I'm glad you have a sense of humor about this, it helps, and no it doesn't offend me, I joke about it too.
Have your headaches gotten any better since your surgery or have they gotten worse? I went on Topamax finally this last year and it made a really big difference with my headaches, wish I would have done it sooner. It's helped with the aura's etc too. Think I'll be spending a bit of time on it, which is fine with me, better than the alternative, nothing worked before.
Take care & God bless you too!
Stef

You're welcomed. It's been around for a long time, but if you ARE deemed one, please be very careful! Because it can trigger into Grand Mal / Tonic Clonic!

That's what it typically did with me, I would lapse into CP, be almost like hypnotized state or trance-like stance and most of the time my family or friends would pull me away if they caught it, and if not, then I would lapse into a TC and end up being in the ER at a hospital.

I had this type of seizures before the car accident made me deaf overnight, certain frequencies and hertz will provoke seizures. Now I'm vibration sensitive. I have to be very careful with those Amplifiers, especially with those boom boxes.

Now being vibration sensitive is different, same mode - except I can't hear it, only feel it, but I get the same response - fortunately the meds I'm currently on controls it all!



I'm glad your Doctor is working with you and let your Doctor know about it, there's plenty of information and more about it out there on the 'net!

(NOTE: Amps & Boom Boxes are a problem for pacemakers and other medical devices as well)

Stef-
I agree w/you COMPLETELY about losing the driving privileges...I was hesitant as well, but the amplification I had (especially it being opposite of my surgery) had me worried and I needed some closure. Only sometimes are the amplifications painful and that's few and far between, its mostly just a brief amplification of a recurring sound for a few seconds, then to be followed by the "muffled" sound. To answer the question about the severity of my headaches and if they've improved post surgery, to tell you the truth, I can't remember how intense the headaches that came with the onset of the Complex-Partials before. I do know though that EVERY TIME, NO MATTER WHAT, a headache was always certain to follow. I've had a headache for the past 7.5 years of my life, so I deal with alot of them. I was on Topomax @ one time as well, but that was pre-surgery. For the longest time though, I've been on Butalbtal/Fiorecet, which helped, but with my consistent headaches and taking the med, I began having rebound headaches so now Im on 800mg Ibuprofen--better results.
KEEP IN TOUCH--even personal IM @ Clutch8185@aol.com
Best of Health!