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Old 04-15-2007, 08:02 PM #7
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Southie- Thanks for the information, I'll be sure and check out that website. My neuro seemed interested when I told her that I thought the problem was due more to the pitch in the sound than the reverberation after all and now I have some research to do. That's going to be a great help. Thanks!

Dave- It's comforting to know I'm not the only one who experiences these 'things' afterall. At first I think we're all hesitant to call them seizures but there's no doubt in my mind that's what they are. I only hesitate to call them that because I don't want to lose my driving privileges, which thankfully hasn't happened. Like you, I've noticed that I can be in many different environments with really loud music and be ok and then there are other times when little things really bother me (not actually triggering a seizure but at the same time driving me crazy, painful even). My husband says I'm abnormally sensitive to noise now. There's no doubt though that what happened at that concert house was a complex partial, that's too familiar to me to mistake. Like you, that's what I was blessed with. It could be worse though. I'm glad you have a sense of humor about this, it helps, and no it doesn't offend me, I joke about it too.
Have your headaches gotten any better since your surgery or have they gotten worse? I went on Topamax finally this last year and it made a really big difference with my headaches, wish I would have done it sooner. It's helped with the aura's etc too. Think I'll be spending a bit of time on it, which is fine with me, better than the alternative, nothing worked before.
Take care & God bless you too!
Stef
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